Family, help me out here. This is a serious question. Do black women have different ms to everybody else? Why do they feel that they need\want a separate ms group than us? I do not understand why they have a black woman with ms forum.
Before "YOU" jump on my head, my mother is black, from the West Indies, my father is very white from Tasmania, Australia.
So I am just curious, I thought ms got us all, I did not know it got other ethnicities differently.
Royce (your ms writer and brother)
Just curious
Written by
RoyceNewton
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I find the question puzzling. If any person wants a separate forum they feel meets their needs better, then they have that freedom. I don’t personally feel a need to have a separate forum for people over 60 with MS, but if I felt that this forum did not meet my needs in that regard, I might decide to try to start my own, understanding that it may be a very small group.
Hello RoyceNewton - Multiple sclerosis varies among people of different ethnicities and races. You may be interested in the cover story, "Disease Effects and Needs of Minority Populations with MS" from MSAA's 2017 Winter/Spring issue of The Motivator: mymsaa.org/publications/mot...
Also, in addition to the video resource that Jesmcd2 posted, MSAA recently conducted a webinar discussing health disparities and the impact of COVID-19 on the MS community. To access the recording of this webinar, please visit: mymsaa.org/videos/understan...
Oh, my friend, I am almost scared to answer your question. My findings over many decades has been that people of any particular race tend to stay together and block themselves off to the outside world, I will say this about any race, I will say this about bird species, and for that matter, insects... I've seen the Praying Mantis hang out with others of their own kind, never saw a wasp try to join their group. Like Jesmcd2 states, it is their choice to do so.
Simply, it is a choice, and I applaud them as they deal with different social issues than others. When it comes to this MS group, all are welcome and were never refused, unless they make edgy comments that are found to be over the edge!
YOU are sweet to be so sensitive. Of course everyone is welcome here. I 😍 that about this group. We are all different. Some are connected to a different political party, others are a different religion from me, some are farmers while others have a different sense of humor. It's more important to me that we have this one thing in common. I know you get me when it comes to MS. If I didn't feel safe sharing here, for whatever reason, yes, I would find a different group. Something interesting to share with you is that I belong to a small group of therapists who have MS. We meet once a month (now over zoom) but usually in person. Although the group has been meeting for years, I only joined about 5 years ago. I also attend a support group for those with chronic illness, not all have MS. I have to say there is a plentiful amount of support to deal with MS. If i were African American, maybe i would want to join that group too.
From what I saw, they are diagnosed later than most people and because of that I assume progress faster due to late treatment. That is what I understood somebody can correct me if I misunderstood what I read
My best friend is mixed , with MS. She also belongs to this wonderful, loving and all inclusive group. The color of your skin never mattered to me- being a nurse & foremost a Christian.🙏🙏🙏
As far as I know the only thing that is different is melanin in their skin. I would think, however that black anyone may need a different forum as unfortunately the "black experience" is vastly different than a white person's is. Different doctor experiences, etc. It is horrible that it happens but it's true.
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