Phone call from Neuro!!: I received a... - My MSAA Community

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Phone call from Neuro!!

CalfeeChick profile image
CalfeeChickCommunityAmbassador
21 Replies

I received a personal call from my Neuro today. I am to stay in quarantine until further notice. My most recent labs have me as enemic. Low white & red blood cell counts. Postpone resuming any infusions until I get my counts up. My next scheduled appointment will be a video on laptop. Isn’t it amazing how everyone accepts that we should all know how to do these things. They are sending me email instructions 😊😁

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CalfeeChick profile image
CalfeeChick
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21 Replies
erash profile image
erash

Be safe!

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to erash

You too😊

TexasLawman profile image
TexasLawman

The only personal call I got was when she told me that I had MS.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to TexasLawman

My first Neuro called me on the phone to tell me I had a MS. Very nonchalantly. Told me not to be upset, that I’ve had a long life already. I saw him the next Monday collected all my files I never saw him again. I am very happy with my new Neuro! Been with him a little over three years😊

Violonchelo profile image
Violonchelo in reply to CalfeeChick

Cells?

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply to TexasLawman

That REALLY SUCKS!!!

Stay safe. Prayers

kdali profile image
kdali

Telemedicine is taking off right now! I’m so glad you can stay home and work on making blood cells.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to kdali

Thank you! And hubby loves to do the shopping and the cooking. I’ll give him a break every few days and make dinner 😊

rjoneslaw profile image
rjoneslaw

be safe

greaterexp profile image
greaterexp

Please be careful!

Midnight-Blue profile image
Midnight-Blue

So sorry about your lab results but it’s best to stay inside anyways. My doctor knows I read my own lab results (It helps in the long run.) so besides my “wonderful” age now I seldom go out. And, look at it this way - where would we go anyway? Everything is closed! Since we’ve been “advised” to stay indoors be kind to yourself! Do those things that you’ve been too busy to do before! Read a book 📖! Watch a movie 🎥 on TV 📺! Take a bubble bath 🛀! Make the best of a bad situation!

jimeka profile image
jimeka

I think by the time this virus is over, we will all be more computer literate. Stay safe . I hope the hip has healed well, hugs Jimeka 🤗

Neworleanslady profile image
Neworleanslady

That’s a nightmare! I guess thank God your doc is on top of it. How will you do groceries?

4fishylady profile image
4fishylady

So sorry about your labs. I have an appt. with my GP for regular check up on Tuesday. Still on schedule. My white cells are always low.

sashaming1 profile image
sashaming1

To avoid COVID-19, I consider myself to be in hibernation. I may be in a high-risk group - age and possibly a low white bood cell count after MS meds.

mrsmike9 profile image
mrsmike9

Oh, for a life living in sweats! Be comfortable!

Violonchelo profile image
Violonchelo

Hallo. I have MS since 1998.

You are very optimist, and know all about red and white cells?

Tell me more about MS and cells, please.

Thanks

carolek572 profile image
carolek572CommunityAmbassador

Isn’t it amazing that perhaps 5 years ago, this video chat would not have been possible? Keep Smiling :-D

LeannEHl profile image
LeannEHl

I'm spending quality time keeping my bird feeders full, and keeping my ancestry web site up to date. Happily my fingers can still type, since my handwriting has gone from calligraphic to a scrawl.

Hubby is working from home. Thanks goodness we still have his old desk, albeit in the guest room taking up significant space. I was switched from Gilenia to Mayzent a couple of months ago, when I last saw my neuro's nurse-practitioner. For that matter, it has been over two years since I've actually seen my neuro! I can only assume that he still exists!

LeannEHl profile image
LeannEHl

Hello Violonchello, 1998 must have been a good year for MS diagnoses! Prior to that I was misdiagnosed with myasthenia gravis. I have since been retested for myasthenia, but that came back as 'unable to completely rule out', so I may be so lucky as to have both!

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