copaxone

[judymax]

Any one know if copaxone gets less effective after being on it several years

[Kenu]

I was on Copaxone for twelve years and then had a couple relapse’s and then changed. One of my best friends has been on it over twenty years and doing well 👍. Everyone is different 🤷🏼‍♂️. Ken 🐾🐾

[RoyceNewton]

she who must be obeyed has been on it for twenty plus years and has had no activity for years

[Marcih]

I've been on copaxone for 2 years. No changes. Dr just started me on Ocreavus...says it's more aggressive. I get infusions every 6 months. 2nd dose will be in December. I am PPMS. 🤗 X

[1strider]

Just my 2 cents, Copaxone my first med and I was on it for a doz years or more. I'm not sure that it helped or hurt. I'm 70 now and know that Rebif damaged my immune system. When I was DXed there were not many choices and no national health care (as flawed as it now may be) so upon being dropped by my Ins at that time and with pre-existing preventing any Ins, the unreal expense of Copaxone and related MS meds and treatment used more $600,000.00 of my retirement savings. These MS drugs are no laughing matter on any level.

[falalalala]

I never made it past a few months with Copaxone. I had bad reactions to it and my neuro took me off of it.

I've never been happier to get rid of a medication.

[bxrmom]

When I was first dxed in 2006 that was the first drug I was on. I had a few relapses in the beginning but continued on it (different dosages and the 3xs a week dose came out) until a couple of years ago and switched to Tecfidra. I switched because I was running out of locations to do the injections. Everyone is different though.

Jessie

[LJMC]

I've been on Copaxone since 2003 & I've haven't had any relapses or other added M.S. issues since.

[geoff61t]

I have been on Copaxone since 1982 and had a couple minor relapses bu tI think it is great

[suznj325]

Hi Judy - I was dx in May 2001 & started Copaxone at that time. In 2011, I started questioning whether or not Copaxone was still working for me. I continued taking Copaxone. MRI's showed no new lesions or 'activity' with the lesions I had. And yet, I noticed worsening of some symptoms: increased weakness on my left side, more noticeable limp in left leg, felt fatigue more frequently.

We retired & moved to a totally different area - which meant finding new doctors..& a new neurologist! At my first appointment with the new neuro, after hearing my history, looking at a new MRI & a comparison to older MRI & other testing, she determined I had transitioned to SPMS.

I had stopped taking the Copaxone about a month before we moved. The new neurologist (she is an MS Specialist @ an MS Center) said that Copaxone wouldn't do anything for SPMS. The new dx also explained the changes I was experiencing.

I never had an adverse issues or reactions while taking Copaxone. Sometimes the injection site would get red - but quickly faded.

I hope this helps answer your question. If you want to discuss further, please feel free to write.

be well..,

Susan