Roller coaster ride with MS

[doveflyfree]

Ever since I was diagnosed with MS my emotional health has been on a roller coaster as well as my physical health. In January of this year I woke up and couldn't walk or breathe very well. I honestly thought I was dying. My son took me to the hospital and I was in bad condition. I was diagnosed with COPD and pneumonia and it really scared me. I was in bad shape. Psychologically I can't handle much more and physically I am struggling. I took a walking test and my oxygen dropped low within one n a half minutes. I'm now on oxygen. I know God keeps me here for a purpose. Not positive what for many days. I'm on alot of medication and changing doctors is very difficult. The medication keeps me going. My primary doctor doesn't fully understand me and I am in need of more help from my nurse assistant. I get 15 hours a week and I am asking for 5 more hours. Does my doctor think I enjoy being ill?? I feel like my quality of life is up to the doctors. I'm not strong enough to change doctors right now with this corona virus it makes it harder to make changes. I feel really bad that I am not very supportive to you all on this site 😕. I can hardly keep up with my current situation. I live with my Dad and son but my dad is an alcoholic and my son is only 22 years old. I'm trying to stay here but have considered going to assisted living recently. I actually have a better life when my dad goes to work. I love him and my son just think I need experienced care. It's really great when the person who takes care of me is nice to me. I feel horrible when my caregiver is pissy with me. I try really hard to praise God each day even though times get tough.

Thank you for listening to me. If you have any suggestions or comments please feel free to let me know 😊

[Kenu]

Hope you get feeling better soon 🙏. 👍😉😊🤗 Ken 🐾🐾

[doveflyfree in reply to Kenu]

thank you 😊

[greaterexp]

I can hardly believe that you are so sweet as to worry about taking care of us right now! You're amazing!

I'm sorry about this really rough time. I'll be praying that you find a better living situation with as much help as you need, but also that your health improves.

Please try to take care of yourself as best you can. Know that we are there for you to vent to, and for a little encouragement. We all need that.

[doveflyfree in reply to greaterexp]

thank you 😊 God bless you 💖

[2littletime]

Sending prayers & love...🙏💖

[doveflyfree in reply to 2littletime]

Thank you 😊

[rjoneslaw]

I hope things get better for you

[pamgarner]

at times,it is so overwhelming and you wonder if you ever going to get out of the darkness,my favorite is, everyday is different and "this too shall change".It is and it does! I truly hope you get your health turned around.there are so many challenges,especially now. As an ex cheerleader,YOU CAN DO IT,YOU CAN DO IT,YOU CAN DO!we are the back up team, let us know what is going on

[doveflyfree in reply to pamgarner]

Ohhhh my thanks sooooo much!! I appreciate you!!!!!!! Yes this too shall pass!!!!! I can do it!!!! Thanks 😊

[RoyceNewton]

take it easy it does get much easier it just takes time. Get a list of all your meds and make sure that they are doing what you want them to and not interacting negatively.

[doveflyfree in reply to RoyceNewton]

great idea 💡 thanks 😊

[mrsmike9]

Your dad sounds like the largest part of the stress problem. Perhaps assisted living would be the answer to that. Hopefully at sometime you can talk to someone. Therapy has helped me deal with so many issues from way back which helps in the here and now. During Covid I know they are working with people through computer links. I think someone who is well versed in helping would be your best bet. But as said above, feel free to vent here and know you are supported!

[doveflyfree in reply to mrsmike9]

thank you so much 💓 I do appreciate you ❤

[mrsmike9 in reply to doveflyfree]

And we appreciate you as well! Don't be a stranger!!

[twooldcrows]

wow you need some better doctors and i understand it is hard to do but we don't mind you telling us all about it for we have been there ...hope you get some good help and maybe getting your own place with your son ...the stress is really hard on a person...take care and be safe...