Annoyed with that groundhog: Hi! I've... - My MSAA Community

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Annoyed with that groundhog

cindyrn68 profile image
14 Replies

Hi! I've been absent for a while. My husband has ALS and we've been on quite the roller coaster ride the past few months. Whew!

On another topic, I am thoroughly put out with Punx. Phil. I haven't had winter yet and he's calling for an early spring. The South Carolina version of spring and summer keep me shut up inside with the air conditioning when I'd rather be outside with my camera. Ah well, more time for cross stitching.

Does anyone else have difficulty with their vision due to MS? I never know if I'm going to be able to see clearly, from one day to the next. It's much worse when my office gets hot. My eye doc can't find anything wrong. Our lovely IT guy brought me a large computer monitor so I can keep the screen enlarged enough to see. My relapses always start with visual symptoms (double vision, eye pain).

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cindyrn68 profile image
cindyrn68
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14 Replies
greaterexp profile image
greaterexp

Welcome back. You must really have your hands full with the condition both you and your husband have.

I hope we can see some of your photos. Hint, hint.

cindyrn68 profile image
cindyrn68 in reply to greaterexp

We are a hot mess together, that's for sure! We are lucky enough to be able to laugh at diseases and make our families shake their heads. Art is in hospice now and keeps the nurses giggling. I will share pics as soon as I figure out how to load them.

pamgarner profile image
pamgarner

what a challenge,you and hubby!sounds like you are keeping a sense of humor,that will keep you sane!I am not happy about phil either,didn't think about the heat yet,I was thinking that it hasn't been cold enough to kill the bugs,oh, the fire ants,flying roaches,spiders yikes!

cindyrn68 profile image
cindyrn68 in reply to pamgarner

Same here. Bugs everywhere.

jorrell profile image
jorrell

Haven't had a relapse in 8 yrs. But I will say it brought on 28 degree double vision and enough pain in my right eye to look at screw drivers with bad intent. When I overheat, double vision comes back with about a 5 degree offset. Then I go inside, cool off, wake up the next morning and all.is good. The legs take a day or so to come back to the point of walking. Hang in there that punk rodent hardly has the skill to make a mess wherever and whenever it wants to!

Brindisi1 profile image
Brindisi1

Prayers for all. ALS is very difficult.

May you have strength through all of this and good times and smiles.

IFwczs profile image
IFwczs

Phil got it wrong! It's snowing heavily two days in a row. Fortunately my state has its own groundhog who predicted a long winter.

cindyrn68 profile image
cindyrn68

Please send the groundhog and snow to SC.

bxrmom profile image
bxrmom in reply to cindyrn68

You can have our snow cindyrn68 :) We had snow for the last couple of days (got about 2") and this evening we are supposed to be getting 2-3 inches. The UP, as of Feb 2, was working on clearing 18 FEET of snow!

cindyrn68 profile image
cindyrn68 in reply to bxrmom

I’ll take it! I used to live on the Tug Hill Plateau next to Lake Ontario and miss it like crazy. Of course, when the citizens of SC find out I’m responsible for the snowpocalypse my life expectancy will shorten dramatically! 😂

kycmary profile image
kycmary

That was how my MS was diagnosed I had double vision up & down was returning to normal by the time he said probable MS. That was March in July I went numb shoulders down to bottoms of my feet. Optic neuritis. When it flairs it does hurt I take a washrag wet it then micro for 30 sec-1min lay down with it over my eyes. Some times it takes cool to feel better. Praying for you. Mary

mrsmike9 profile image
mrsmike9

Here is how the actual saying goes...

If the groundhog sees his shadow it's 6 more weeks of winter. If it doesn't see it, it's Only 6 weeks until spring.

Is your glass half empty or half full?

cindyrn68 profile image
cindyrn68

Never knew that. Interesting. My glass wants a refill of temps below 50 but I’ll take anything less than 60.

bxrmom profile image
bxrmom

My first symptom of MS was sudden blurred vision. Had to see an opthamologist who tried to tell me it was my antidepressant I had been taking for years. After a disagreement, he agreed to send me for an mri. Mri came back with lesions suspicious of MS. Off to the Neuro I went for further testing. MS it was after spinal tap. When I am tired, my vision will start to mess up on me and I know it's time to go to bed or take a nap.

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