Day 5 of mavenclad

[Turtlepie]

I over did some things yesterday and didn't sleep well so guess what yes I have a headache. I am glad I am finished wthe the 1st cycle of year 1 still doing good and yes that nasty taste. I will not post every day. If something happens I will post it. I will let you all know when I get next month's medicine and will keep you informed how that goes. Thank you all fir you feed back encouragement prayers and well wishes. You all take care and have a great week.

God's Blessings

Pam

[Peruzzot]

Have you noticed any difference yet or is it still too soon to tell?

[Turtlepie in reply to Peruzzot]

I have not. I don't know what to expect. I was off meds for 3 and a half months before starting this and was feeling fine just my normal spasms and stuff like that nothing big. So I am hoping that I stay like this

[mm1527mm]

Thanks for sharing, blessings to you

[Turtlepie in reply to mm1527mm]

Thank you. You're welcome. It's a pleasure to do this

[Royjr]

Hope it continue to work for you. Keep us informed.

[Turtlepie in reply to Royjr]

Thank you I will

[jimeka]

Thank you. Do you take the medicine every month? I really do hope that it helps you, Blessings Jimeka 🤗

[Turtlepie in reply to jimeka]

You take pills for 5 days then a month later you do the same and a year later you do the same 5 day 2 month cycle and that's it

[jimeka in reply to Turtlepie]

I like this idea better than infusion. I hope you get your sore throat sorted. Blessings Jimeka 🤗

[Turtlepie in reply to jimeka]

I don't like the idea of infusion either. Thank you

[greaterexp]

We have high hopes that this kicks MS in the rear! Thank you for your updates.

[Turtlepie in reply to greaterexp]

I hope it does kick MSs rear. It's been a pleasure to give these updates and it helps me stay focused and calm

[pamgarner]

thank you,just sit back and hopefully the "miracles" will begin!

[twooldcrows]

take care ..

[Turtlepie in reply to twooldcrows]

Thank you I am trying

[twooldcrows in reply to Turtlepie]

stay positive it does really help ...be happy you are starting another great journey helping to get rid of the monster we all have...MS is ###############...do take care and watch if things are different and right it down and of course push for a solution about the nasty taste....love and much happiness...

[Turtlepie in reply to twooldcrows]

I am glad I have this place to turn too. You and so many others have been a great help. I will be looking for the answers to these issues I am having. I am glad to be able to pass on this experience. Thank you so much.

[MixedBag]

I just finished my 5 days of Mavenclad. Next month I will have the next 5 days. Do you feel any difference?!

[Turtlepie in reply to MixedBag]

I really don't feel any different just glad all the throat infections are beyond me now 6 rounds of antibiotics and 2 shots of steroids and a round of oral steroids was crazy. I do have some fatigue issues but I tend to do more in the warmer weather so I have that problem. I hope you do well and you will finish up year 1 with no problems

[MixedBag in reply to Turtlepie]

I have real issues following times and dates on emails or anything for that matter. Can you tell me when you started and stopped. My neurologist told me about three months. My MS is now in my stomach so I can't bend to do anything. It's horrible.

[Turtlepie in reply to MixedBag]

My first dose was January 15th I had to delay the second month because of the throat infections but was only off 8 days from when I was supposed to start month 2. So I started month 2 around February 18 or 19th can't remember for sure. I have been fine since no more throat issues. I hope that your MS issues get better I can't imagine having problems in my stomach like you have. You will be in my prayers

[MixedBag in reply to Turtlepie]

Thank you so much.

[Turtlepie in reply to MixedBag]

Your welcome. I hope that I will start year 2 in January and that I have no problems with it. Wish you the best