MAYZENT! I've been approved for the bran... - My MSAA Community

My MSAA Community

9,440 members21,223 posts

MAYZENT! I've been approved for the brand new DMT called mayzent!

Fancy1959 profile image
26 Replies

I've been approved for the brand new DMT called Mayzent? I have the starter dose and the first months caplets in my refrigerator unopened. With the pandemic going nuts across the United States I spoke with my neurologist and got approval to wait to start new DMT until the pandemic quiets down.

I really hate to wait because it seems like my MS is playing Havoc with me. I'm weak and tired, have little to no balance upon occasion and it happens out of the blue. But I decided make myself less of a target for the Coronavirus by keeping my immune system of it stronger that it would be if I did a DMT that we can buy immune system even more than the MS already has.

It took the way because I'm not doing well and it's been like this for the past several weeks now. But every night when I turn on the news my decision to wait is reaffirmed when I see how many new people have died across the United States. Knowing they're predicting 100,000 to 200,000 people to die in the United States scares the tarnation out of me. So I've decided to live with the MS running amok and hopefully coming through this pandemic in one piece.

Hopefully I can start the DMT in the next few months. Once I do I will be sure to keep everybody up to date on how it's going for me and if it's effective for me. Take care until we speak again. Stay inside and protect yourself. Remember we are never truly alone even in isolation, we are alone together! Fancy.

Written by
Fancy1959 profile image
Fancy1959
To view profiles and participate in discussions please or .
26 Replies
erash profile image
erash

Sure hope Mayzent gives you relief 👍

Fancy1959 profile image
Fancy1959 in reply toerash

Thanks for sending wave after wave of positive thoughts my way. You're amazing. Fancy.

tombouy46 profile image
tombouy46 in reply toFancy1959

Hi fancy. I'm sorry I just responded to your message from 10 months ago. It's late I'm tired. Never looked to see the date. I'm sorry kiddo. Tom/tj

greaterexp profile image
greaterexp

I pray it works well for you with no side effects. Thank you for keeping us updated!

Fancy1959 profile image
Fancy1959 in reply togreaterexp

I'll be happy to keep everyone updated because I don't know if anyone else in the chat room is on this yet. Thanks for sending all the positive thoughts and prayers my way. Thanks for the undying support I get from you. Fancy.

greaterexp profile image
greaterexp in reply toFancy1959

That's the beauty of this marvelous group! We really care about one another, and it really shows.

Thanks for always thinking of the group.

carolek572 profile image
carolek572CommunityAmbassador

I will keep you in my thoughts and prayers Fancy1959 through this. You are smart in waiting to start Mayzent. Together, we are all Stronger, my friend :-D

Fancy1959 profile image
Fancy1959 in reply tocarolek572

I will be sure to let every one know how it goes. My final test is the sixth hour initial dose and if that goes okay I'm in. I'll let everyone know when I scheduled it 6 hours long at the doctor's office. Thanks for all the support the prayers and the kind words. People like you make this world a better place. Thanks Carol. Together we are stronger. And we are never alone we are alone together! Fancy.

carolek572 profile image
carolek572CommunityAmbassador in reply toFancy1959

Your words are more important in these times, my friend. Keep Smiling :-D and lots of vHugs going your way, always.

Doubled51 profile image
Doubled51

Praying the virus stays away from you my friend.🙏🏻🙏🏻🙏🏻🙏🏻.

Donnie

Fancy1959 profile image
Fancy1959 in reply toDoubled51

Right back at you Donnie. Don't let this virus make you one of its casualties. Stay home and protect yourself but keeping away from crowd anywhere and everywhere! Remember together we are stronger. And we are never truly alone call me when we are alone together. Fancy.

Doubled51 profile image
Doubled51 in reply toFancy1959

Thankis Fancy I’m trying to stay home. Only go to drug store or grocery store and our Ingles grocery is never crowded thank God.

Donnie

bxrmom profile image
bxrmom

Happy to hear you were approved for the new drug. Smart to delay starting it until things calm down. I hope that when you do start it, it works well for you.

Jessie

falalalala profile image
falalalala

I hope it helps you :)

pamgarner profile image
pamgarner

cootie,cooties stay away,come again another day!it is like dodging paint balls!:)

Simply1216 profile image
Simply1216

Gm I pray it goes well please keep us un to date I have been taking zinc and orange juice to keep my umm system up and doing saying my distance hand washing which is normal they say keeping our hands from touching our noes mouth amd eyes everyone stay safe and healthy

hairbrain4 profile image
hairbrain4

I hope it will help you. It's amazing how DMT's have progressed just since I was diagnosed in 2005. Keep up the positive attitude cuz it not only helps you but is contagious & helps everyone.😁

DIsneyQueen profile image
DIsneyQueen

I have been on Mayzent since November. No side effects what so ever. I have not been more susceptible to colds or anything else in that time. Good luck.

kycmary profile image
kycmary in reply toDIsneyQueen

That's great news Disney Queen!!

MSsurfer profile image
MSsurfer in reply toDIsneyQueen

Have you experienced hair loss? I started Mayzent in September 2020 and have lost about a 1/3 of my hair. Thanks!

Humbrd profile image
Humbrd in reply toMSsurfer

Yes, I had hair loss. I'm on Aubagio. I lost A lot of hair that I could see my scalp. After about 3 months it stopped falling out. Then it started growing back and is back to normal. That was a year and half ago. I was told it would grow back and I kept taking it and now it's fine.

kycmary profile image
kycmary

Hi Fancy glad you got the Mayzent & praying it helps you love ya Mary

Iona60 profile image
Iona60

Best of luck to you on Mazent. How did you know that Ocrevus wasn't working for you?

mrsmike9 profile image
mrsmike9

Fancy!! I hope and pray the MS doesn't knock you down so hard that it will be too hard to bounce back. Be careful. Be safe.

BeckyAnn1966 profile image
BeckyAnn1966

I also have been approved but I am like you.

Holding out for better days before I weaken my immune system further.

God bless you and stay safe.

tombouy46 profile image
tombouy46

That's fantastic news with the Mayzent. I wish you the very best of luck. I had done the Lemtrada Infusions back in 2016 and 2017. I will never do anymore Infusions. your so smart to go with the oral med. I've been on all kinds of treatments. But I feel I've had it so long now that the meds just don't work anymore. My own opinion is the meds that are out there are pretty much for the younger folks and newly diagnosed folks. Good for them. I'm so happy they stand a better chance these days. So much money and research has gone into M.S. , I was diagnosed back in the early 80s with mine. but was able to work fulltime up until 2001, 2002. Then it all caught up to me. I try to walk with a cane but I'm only fooling myself. I keep falling down. I get so mad at myself. But I hate like hell to give in. I think I've messaged with you before fancy. Again im so syked for you. Fingers crossed you get relief. Tom./tj

Not what you're looking for?

You may also like...

Ocrevus......update.....numbers......results....etc. Hit me with it all

Hello family, it's Fancý. It is past time that we put together an updated poll about Ocrevus. I've...
Fancy1959 profile image

Feeling free

This picture was taken at an Ocrevus dinner. Got to visit with Fancy1959, because she was there,...

Starting Mavenclad!

I've been on Ocrevus since early 2022, and I really do believe that it's a great drug. But when I...
CatsandCars profile image

Well, rats

I haven't been seen by a neurologist for a couple of years after stopping Copaxone. I've enjoyed...
greaterexp profile image

take a Disease Modifying Therapy NOW

Not every DMT suits everybody. If your first one does not suit YOU, Try another then another....
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.