Starting Tysabri : First injection Friday... - My MSAA Community

My MSAA Community

9,441 members21,224 posts

Starting Tysabri

kandykone1 profile image
18 Replies

First injection Friday morning. Scared. Nervous. Excited. Ready. Need this to work. Been off DMT for two weeks now and wasn’t happy about it, but understand it’s part of the routine when changing. And honestly been feeling GREAT the last two weeks 🤔

Written by
kandykone1 profile image
kandykone1
To view profiles and participate in discussions please or .
Read more about...
18 Replies
Royjr profile image
Royjr

Hope it works for you

kdali profile image
kdali

Hooray!!! I hope you feel even better soon! 🎉

RoyceNewton profile image
RoyceNewton

Good luck, hope it works very well for you and side effects are minimal

Kenu profile image
Kenu

Good luck with Tysabri! It was great for me for seven years 👍 Ken 🐾🐾

greaterexp profile image
greaterexp

I wish you the best and hope you get great results. Please let us know how you’re doing.

Raingrrl profile image
Raingrrl

Good luck! I was on Tysabri for 5 years and it kept me stable.

kandykone1 profile image
kandykone1 in reply toRaingrrl

Love hearing that

Angelchef80 profile image
Angelchef80

Good luck! I have been on tysabri for almost a year now. So far has been great for me.

kandykone1 profile image
kandykone1 in reply toAngelchef80

Love it!!

Texandyroe profile image
Texandyroe

Hoping this works for you. I’ve been on Tysabri for almost 10 years now and in that time, no new lesions or growth of the lesions I do have. Make sure you have a good book and a blanket with you...it’s always cold in infusion centers.

kandykone1 profile image
kandykone1 in reply toTexandyroe

Will do thanks for the tip! Happy to hear your results!!

sashaming1 profile image
sashaming1

Tysabri worked for me for 7 years. No issues or side effects. Had to get off of it when my monthly blood test turned positive for JCV. Went to Lemtrada - to my disappointment, have had numerous UTIs since (a side effect of Lemtrada).

Tazmanian profile image
Tazmanian

Tysabri worked well for me until I tested positive for jcv

DoraAnn3265 profile image
DoraAnn3265

It worked really well for me! It gave me a boost of energy that lasted 3 weeks...so I knew when I was due for my next infusion lol...I was on Tysabri for 7 years, until I tested JCV +...I wish you the best of luck!

Juleigh21 profile image
Juleigh21

Good luck today! I did 44 doses and loved it! Wish I could still be on it!

twooldcrows profile image
twooldcrows

relax and enjoy this new med....

kandykone1 profile image
kandykone1 in reply totwooldcrows

Thank you!

kandykone1 profile image
kandykone1

All went well!!

Not what you're looking for?

You may also like...

Tysabri

I was diagnosed two years ago and have only been on Copaxone. My neurologist wants to put me on...
Pbargal profile image

Tysabri

Ok went to my Tysabri infusion, my next dose is at the end of the month....its been about 2 weeks....
Bkboo profile image

Tysabri

I have been taking Tysabri for 3 1/2 years now. I have had zero relapses and no side effects from...
Mark1499 profile image

Tysabri

I'm going to be getting to take tysabri next month and I wanted anybody's feedback on that infusion...
Leahdevora profile image

Tysabri

Is anyone taking this? If yes, what have your experiences been like?
MS2014 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.