Lightening strikes in head: I'm wiring on... - My MSAA Community

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Lightening strikes in head

Stopthepain profile image
10 Replies

I'm wiring on behalf of my wife who has been diagnosed with MS for over 20 years. After multiple MS drugs over the years she is now living without any specific MS medication.

In the last year she has had occasional spiking attacks in the left side of her head. She describes it as lightening strikes to her brain. They have become increasing more regular such that she has been suffering this condition almost continuously for the past 3 weeks. The only relief, which is partial at best, is regular dosage of extra strength Advil.

Is there anyone out there that has the same symptoms and if so what have you done to relieve the pain, better yet, made it go away?

Praying for relief!

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Stopthepain
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10 Replies
greaterexp profile image
greaterexp

I’m sorry she is suffering so. What does her neurologist say about this? This sounds like a big change that should be evaluated by a doctor.

You’re both in my prayers for swift relief. Please keep us posted about what you find out.

Stopthepain profile image
Stopthepain in reply togreaterexp

Thanks for the thoughts and prayers. My wife is seeing a new neurologist soon.

jimeka profile image
jimeka

The pain in the left side of my head, is coming from a lesion I have in my neck. When it strikes I immediately put a microwaveable heat pad on the left side of my head. The heat helps sooth and helps me concentrate on the heat as opposed to the pain. I would consult with your doctor or neurologist and make them aware of your severe discomfort. Prayers and blessings Jimeka 🙏 🌈

Midgey_Midge06 profile image
Midgey_Midge06 in reply tojimeka

I have had the same pain i describe it as an ice pick stabbing my head.

The heat does work and for some odd reason i took the suggestion of someone to start taking CoQ10 - they have lessened.

I also see a chiropractor on a regular basis.

So i have no idea and u shud for sure check with the new neuro to be sure. Even try harassing her current doctor to try something to help in short term

erash profile image
erash

I have trigeminal neuralgia which is an electric shock to the face and associated with my MS. She should see her health care provider. I wish her well.

hairbrain4 profile image
hairbrain4

I have had those pains in my head. They usually preceded a flare-up or a relapse. I always know when I am about to have a problem. My neuro explained it as if the nerves are arcing like an uncovered electrical wire which caused the pain. She really should see her doctor & maybe have an MRI to see what might be causing the pain as it can be something serious.

Midgey_Midge06 profile image
Midgey_Midge06 in reply tohairbrain4

Awesome advice

Partexpat profile image
Partexpat

I've used over the counter migraine meds, which usually include small amount of caffeine , extra strength of course. Good luck

Tina11762 profile image
Tina11762

This sounds like trigeminal neuralgia. While it is excruciatingly painful it is treatable. There are several medications such as gabapentin and Trileptal that can be used. My father has had it for 30 years. There are also procedures that can be done where they freeze or heat the nerves. I don’t know what area you live in but on Long Island there is a doctor named Dr Brisman Who pioneered many of these procedures. They are usually outpatient procedures and while it is certainly not risk-free they are relatively safe. Good luck and please let us know how you make out.

Midgey_Midge06 profile image
Midgey_Midge06 in reply toTina11762

Gabapentin is awesome. I forgot. I take 900 mg a day

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