SECONDARY N RA

[luvhair]

Hi everyone..havent been on awhile...last time i was talkn bout contacts n vision the dr.tryin some others still cant see outta them..anyway,my pain in arms n legs n back has been extremely the worst..i called ms dr.....im still pretty much way out there depressed..she said last march RA blood work over a few points so probably the prob...i asked her exactly where is my ms ..she said its.probably went to secondary..i knew this a few years ago n my heart..tryin azulfidine which i was on years ago for chrons..but makin me feel sick..cant breath ..unless i take naproxen..um im just all alone deal with this really.m invisible to any one..yeabl im angry as crap no energy to get food n stuff lucky get relief once a week.really struggling..does anyone have secondary give me more info n RA..😪

[rjoneslaw]

Im sorry ur going through what is happening

[luvhair in reply to rjoneslaw]

Thank you..

[rjoneslaw in reply to luvhair]

u are so welcome

[greaterexp]

I wish I had some answers for you. I'm just sorry you're suffering so much right now. Come and vent any time.

[luvhair in reply to greaterexp]

Really well ty..im just cant take it no more

[dailygrump40]

I had to give up the contacts 3 or 4 yrs ago. I was put in bi-focals and my giasses also have stents to bring my vision back together so I no longer see double. I've been wondering if the new contacts made like bifocals. If they can make them to correct your vision like glasses with stents. I'd give them a shot if they do.

[luvhair in reply to dailygrump40]

What are stents

[dailygrump40 in reply to luvhair]

I'm sorry. Prism. Stent didn't sound right to me either. If you aren't sure what prism is. Here's a link to help explain itgoogle.com/url?q=https://ww...

[luvhair in reply to dailygrump40]

The dr said no to prisms..guess gotta keep makin them stronger or somethin...idk..he seems know alot bout ms..at least i only were contacts a day or 2 a week since i dont work..trying different trial contacts rite now!!!

[dailygrump40 in reply to luvhair]

Prism realigns your vision. The more you need, the thicker the lense will be on one side.

[luvhair in reply to dailygrump40]

Yes thts what he said

[goatgal]

luvhair Oh you dear, I am so sorry that you are experiencing a perfect storm of autoimmune conditions. I feel for your struggle to get diagnosed and treated. Those of us who live alone know what struggles you face. I am sending virtual Hugs, a pot of tea and gingersnaps in your direction.

[luvhair in reply to goatgal]

😪hugs to you thank you

[Ggwhitney]

Good morning,

I just saw your post and wanted to say hello and also to tell you I have some I also have rheumatoid arthritis and secondary progressive MS. I would love to talk with you,

Not sure to post a private message. You may know?

my Email is [e-mail]

You are not alone there are a number of us with RA and SPMS

[luvhair in reply to Ggwhitney]

Ok tht sounds great...im not sure bot pm messages on here..but u can please email me i just got new email not sure how to work [e-mail].

[carolek572 CommunityAmbassador]

My goodness, I will be sending you warm thoughts that you can find a way to recovery soon. Is there something that your doctor can recommend to ease your RA without upsetting other things going on? Please let us know how you are doing.

[luvhair]

Hi well tryin azulfidine.i was on it long time ago for my chrons but this time really messing with me and also naproxen...

[Hidden]

I was dx in 2013..in retrospect MS was there for years before. To be honest, by the time I was dx, the trajectory was decline mode in high gear. My Neuro now concurs that it’s likely secondary progressive. I get one symptom addressed, and the next one hits with force. Just the past few months it’s been bladder meds no longer working, ITI, anemia and currently I’m dealing with hip pain and likely spasticity-to where I can’t stand on that leg! Of course we’re depressed!!! Gratefully, I take meds and have a talk therapist-I need both! And coping techniques I’ve learned from cognitive therapy. Hang in there- just take it day by day or hour by hour if need be! We are earning our resilience badge!!😬😁

[luvhair in reply to Hidden]

❤ok...yea this depression n.just taken my life.

[Hidden in reply to luvhair]

Are you seeing anyone for help with that? I have a “medication management ” psychiatrist and a therapist that help!😬

[luvhair in reply to Hidden]

Hi yes i am....guess just so angry