G’day my name is Royce. I have relapsing Remitting ms (RRms) and have had it for twenty plus years. I live with she who must be obeyed who has had it twenty three plus years. We are both on disease Modifying therapy(DMT) She has not had an attack in years and years, come to think of it neither have I. Take that anyway “YOU” like.
“YOU” are a newly Diagnosed person (newbie) with RRms. It is okay to cry, and I mean cry hard for days and days. It is very normal “YOU” are not weak or any other negative word that “YOU” can think of. This is an incurable disabling progressive chronic disease. There is no cure but feel free to look for it. Everybody does, but trust me there is not one. Of course “YOU” do not believe me, why would “YOU”? So feel free to look. I recommend Dr Alan Booster on Youtube. One of my favourites and I feel well worth listening to. my spelling might be wrong, I can never get his name correct.
Let me say to “YOU” this. “YOU” are going to be okay, “YOU” CAN cope with this illness. “YOU” may take years to get some sort of a handle on it. “YOU will have periods of attacks and periods of remission that is the nature of the disease, Relapsing Remitting. Do not panic it just is. Friends lovers family will abandon “YOU”. With the right mindset “YOU” are going to live a very long time with this illness. How well is up to “YOU”, nobody else “YOU”. “YOU” my sister\brother are the only person who makes the decision about how your life with RRms turns out. Okay ms does have a negative impact on things but how well“YOU” cope is still up to YOU.
Choose as much as “YOU” can, to make good smart decisions. Do silly things and know that there may be a price to pay. A price that “YOU” may not enjoy but ms demands a price be paid nevertheless. Behave slowly and intelligently and perhaps “YOU” can delay the price that ms asks of all of us. I feel my personal bill might be high as I have done every thing I can to minimise ms activity in my body. I am strong mentally physically and emotionally. Become this way yourself. Think every morning, “what can I do to thwart my RRms today” Taking DMT is a great start?”
Make the choice to be an active participant in your ms life, not a weak victim. I understand that it does take a little time to accept this way of thinking, we are here for “YOU” as much as we can be, we are not medical professionals, but we all have ms in some form. We may have been where you are, ask us how to cope. This is a lifelong illness and if “YOU” need help I personally will do my best to help. “YOU” are not alone no matter what anybody says. We am here.
Royce (the tortured writer)
As much as I can I will help. but you have to ask first.
