Does anyone have appointments for August you’d care to share?

[greaterexp]

I’m still waiting to hear from OHSU in Portland about an appointment. Do you have an upcoming appointment?

[anaishunter]

2nd round of Ocrevus is tentatively scheduled for Friday 8/2. This is my first full dose. The two 1/2 doses happened 12 months ago. I'm more eager than fearful to have one finally scheduled.

Lots of lab results should arrive this week from the EPIC research I'm part of.

[kdali in reply to anaishunter]

Awesome! 🎉

[Kenu]

I go next week for teeth cleaning and in couple weeks a crown. PCP at end of the month for pill refills. Need to make appointment for recheck throat and hearing. All in all pretty good month coming up other than heat🥵 Ken 🐾🐾

[greaterexp in reply to Kenu]

Stay cool, Ken!

[carolek572 CommunityAmbassador]

Is it almost August already? I have an O infusion scheduled at the end of month. I am hopeful for you with regards to getting Ocrevus. Let us know of any updates, please?

[greaterexp in reply to carolek572]

I will. Thank you for asking. OHSU doctor (if I get to see one) will help determine if Rituxan is what's best for me at my stage of the game. I hope your infusion goes well and quickly.

[carolek572 CommunityAmbassador in reply to greaterexp]

I hope as well. I am wondering about Rituxan vs. Ocrevus and why one would be chosen over the other.

[greaterexp in reply to carolek572]

Merely money. Insurance won't approve Ocrevus, but insisted that Rituxan be tried first. That was when my neurologist thought that might be the way to go. But as she was thinking about doing an appeal with the insurance company, she had second thoughts about whether either would be the best choice for me. She wanted to see what OHSU had to say, since she doesn't have many MS patients.

[carolek572 CommunityAmbassador in reply to greaterexp]

It seems that it is all about money

[erash in reply to greaterexp]

U still haven’t heard from ohsu?

[erash in reply to carolek572]

Do u get this crap gap thing? Is it fiction or a real phenomenon...feeling more symptoms as approach next infusion 🤷‍♀️

[carolek572 CommunityAmbassador in reply to erash]

Hi erash In response to your question, no, I haven't experienced any more/worsening/new 'ms' symptoms as I approach my next infusion. But this is just me. I am like you, on the petite side, so perhaps that might be the reason. How are you doing these days?

[erash in reply to carolek572]

Doing well...some MS days (old Symptoms only) because of stress, crap gap, who knows🤷🏻‍♀️

Glad to hear u are still doing well 👍

[carolek572 CommunityAmbassador in reply to erash]

Stress is a nasty beast, so is this heat, but I cannot complain when the AC is doing its job! Keep Smiling, my friend, and be good to yourself

[falalalala]

Dr. Handsome,the chiro tomorrow AM.

I really need to stop calling him that .I know I will slip one day & it wont be a disc.

[carolek572 CommunityAmbassador in reply to falalalala]

To be a fly on the wall just to see the look on both your faces when that happens ~ priceless

[falalalala in reply to carolek572]

I have thought about this happening and will blame it on my friend who also calls him that. Yes,that is it.

[carolek572 CommunityAmbassador in reply to falalalala]

Whatever works for you

[jimeka in reply to carolek572]

I want to be a fly too 😂

[carolek572 CommunityAmbassador in reply to jimeka]

To be a fly, you would need to be a pest, of which you are not.

[falalalala in reply to carolek572]

Another good answer!

youtube.com/watch?v=bjxf-eQ...(Not working as expected?)

[greaterexp in reply to carolek572]

...unless we're all flies together.

[falalalala in reply to greaterexp]

youtube.com/watch?v=bjxf-eQ...(Not working as expected?)

[falalalala in reply to jimeka]

Good answer!

youtube.com/watch?v=bjxf-eQ...(Not working as expected?)

[greaterexp in reply to falalalala]

Have a good appointment, and bring a little duct tape for when you address the doctor?

[kris1973 in reply to greaterexp]

falalalala greaterexp Or some poker chips...🤣

[falalalala in reply to kris1973]

🤣 Over my eyes?

[kris1973 in reply to falalalala]

falalalala Remember our weeding (on a hill)/wheelbarrow conversation? I’m surprised I do.🤣

[falalalala in reply to kris1973]

No!🤣

I hate when I do that!

[kris1973 in reply to falalalala]

falalalala I think you were talking about weeding on a hill...which changed to me using my wheelbarrow for balance instead of my walker...which ended with bringing poker chips to our dr appts bc everything they tell us is “a bunch sh*#”🤣😱

[falalalala in reply to kris1973]

🤣🤣🤣

[bxrmom]

I have yearly eye doctor on the 5th, chiro on 14 & 28th, and most likely a visit to my family doc for Rx refill.

[Doubled51]

Pain management on the 9th.

Donnie

[janetb1968]

Hi I’ve got another MRI in October and seeing my neurologist also in October xxxx 😎

[erash]

Ocrevus 2nd full infusion 8/30. And can’t wait. I’m in the proverbial crap gap, if that’s a true phenomenon, and feeling more fatigue, heat intolerance, muscle weakness. Not as bad as a yr ago before O, but still noticing the difference. Bring on the O 🤞

[carolek572 CommunityAmbassador in reply to erash]

My fourth O infusion is the day before. I am counting my first 2 half infusions as one. I cannot say that I am feeling an increase of my 'ms' symptoms or anything that I can relate to 'ms'. But that's just me.

[kdali in reply to erash]

We seriously need to create the Ocrevus infusion party boat. Sailing twice per year, somewhere not too hot, massages, buffet options from vegan to carnivore, all the latest movies, pet therapy, and of course a pool.

[erash in reply to kdali]

And Dramamine for me 🤢

[kdali in reply to erash]

Of course! The others can have the booze 🤣

[Juleigh21]

I see my neurologist on the 2nd and get my second 1/2 dose of Ocrevus on the 6th. I suffered from “crap gap” every month I was on tysabri so I figure I’ll get it with O. My neuro told me that with O it happens in the beginning but the more doses you get should eliminate the gap. I hope he’s right. (Mines gonna hit around Christmas 😕.)

[kdali]

We have a level 2 ultrasound for cheese curd on Friday, but will not have the follow up to discuss the findings until the next week. I forgot to make my annual with my PCP, so I assume that will get done next month too 🤣

I hope you hear back from them soon, it’s been a long time! Don’t they want your money!!!!

[erash in reply to kdali]

Hope all is 👍 with US

[kdali in reply to erash]

Ty!

[lbenmaor]

I hope you hear from them soon. Are you on a waiting list until you get an appointment?

I have my Chiropractor, eyes and teeth appointments.

Leslie

[dailygrump40]

5th with physiologist,8th with my PCP and the 27th I'm having a house assessment done so they can make sure it's safe for me. My nuero had a navigator from the MS Society chapter that's close to his office call me. They only have a 3 hr drive to my house.

[Kitsey]

My Rituxan infusion is scheduled for August 6th. I’ve had no new lesions and no enhancements so I guess it’s doing what I need.

[greaterexp in reply to Kitsey]

Hurrah!

[Sukie427]

I have an appointment with my current neuro next week (I think) during which I intend to advise him that as he doesn't seem to have the time sufficiently to care for me, I am going elsewhere. Then I see the neuro who hopefully will become my new treater at Barrows Neurological Institute on the 28th, which just happens to be my and my soulmate's 41st wedding anniversary. So I am expecting good things.

[greaterexp in reply to Sukie427]

Congratulations! Woo hoo!

[Sukie427 in reply to greaterexp]

Even better. There was a cancellation so now my appt. at Barrows has been moved up to 8/12!

[Dpjinx]

I have a nerve conduction test tomorrow I’ve had one before. This is for my right arm/hand. It’s numb and no grip hopefully it will tell something. If not, more to happen.

[greaterexp in reply to Dpjinx]

I hope it went well. Did you get results back yet?

[Dpjinx in reply to greaterexp]

I did get results that day. They found nothing 😞 now for MRI. August 15.

[greaterexp in reply to Dpjinx]

It's good to have things ruled out, but I hope you find out what's going on and why soon.

[rlh1974]

I just had one and declined any further ocrevus. Did absolutely nothing for me. Like all others I have tried. Dr was great about it. Made a deal. MRI’s of my head and spine and if I didn’t show any difference he would be cool with meds to help with nerve pain and depression. If it shows progression then back on. But in the 5 years of my dx I haven’t had any change in my lesions. So hoping I can just not go back on.

[greaterexp in reply to rlh1974]

I hope you can be off of them if that's your goal. Here's to no lesions!

[rjoneslaw]

I have 1 on aug 19

Have 2 make 1 w/ pcp so I can join workout group 4 yoga zumba, n senior chair yoga

I found senior classes 2b easy on me so I tend 2b the only 1 in there who really isn't a senior