Use it or lose it, a piece of wisdom an ms specialist once told me in a Queenland ms Society conference long ago. Of course I did not listen and I no longer can run, barely drive a car and worst of all, being a bloke (guy) there are certain things that I could do that are now just memories. I will leave that to your imagination and your thoughts are probably correct.
If “YOU” have a skill that “YOU” want to keep. Practise practise practise and do not stop. Our brains are very smart lumps of fat. That is what they are, different to gut fat but still technically fat I am pretty sure. If “YOU” do not keep your neural path ways open and build new ones. Abilities that “YOU” once had “YOU” will lose. When I was a child I had an accident and severally damaged my left arm. So much so that doctors were going to remove it. My Mother said no and I was put back together. A special brace was made that made me exercise my arm nerve and slowly rebuild the connection. I grew up to serve in the Air force, shoot guns and type. Eventually to fly aircraft. I practised struggled and persevered all that time. Unless I show anybody and tell them the story they would not know that I was once nearly armless.
Today unless I stick my finger very far down my throat a person would never know that I had had three surgeries on my facial nerves. I can mostly swallow liquid with out choking. Okay, I can barely taste but I know what things taste like so I get by. Point is we have a progressive chronically disabling condition. Things get worse and do not come back one hundred percent. If “YOU” want any ability to stay “YOU” have to train yourself and keep doing that until they bury “YOU” I understand that “YOU” maybe under the illusion that just taking a Disease Modifying Therapy (DMT) will get “YOU” through, but sorry it will NOT. This illness takes work and determination. “YOU” are not like people with ms twenty thirty or forty years ago. “YOU” have DMT, not a cure but a help. “YOU” have mine and others experience. There is absolutely no need to make the dumb mistakes that we did. Learn from us ask questions and have the better life that some of us wish we had.
use what “YOU” have. Train your body to do what “YOU” want as much as “YOU” can. As a baby how long did it take “YOU” to walk, run, talk? Think about that and “YOU" might like to get started. This is a very long journey that we are all on. Lifelong as a matter of fact as there is no cure, just treatments.
Royce
So use what you do have and keep at it
