Sometimes it is fast sometimes it is slow - My MSAA Community

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Sometimes it is fast sometimes it is slow

RoyceNewton profile image
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Sometimes it is fast moving some times it is slow as treacle or cold honey. Our companion, Relapsing Remitting ms (RRms) is a tricksy chap. There are no rules as to how it moves, or what part of your body it strikes. No, I will clarify that there is one maybe two rules. First rule maybe is that it is going to get worse. It is a progressive illness, it progresses. Twenty years ago I had better than twenty twenty vision so the Royal Australian Air Force said, today it is somewhat worse. It progressed. Second rule is that “YOU” and I have a choice. The choice to accept this illness and do our best to come to terms with it and adapt to make our lives as great as we possibly can. There is no need to be constantly forlorn and downbeat, sitting in that dark corner crying and asking why me. In this our RRms life there are numerous people who do their personal best and are happy. Before we all were diagnosed (DX’d) with ms we were never promised an easy joyful life, well maybe one or two were. But for most of us I do not think multi millionaire family members are in ur gene pool, and winning the lottery. Well I have been trying for years and I think I have won five dollars, a great return on investment do “YOU” not think?

No, I do not feel that I was ever promised ease, but this diagnosis (dx) does not have to be hard. There are strange situations pain and embarrassment even betrayal but we all are capable of doing this condition. Day after day year after year forever until we die. Yes that is a big statement, a huge amount to get your head around. It is up to “YOU” to come to terms with this and to move yourself forward. We can not go backward, we have the condition. There exists today no possible cure. There will not be in my lifetime of twenty or thirty years. Perhaps in much younger peoples lifetimes, I do not know. I would suggest that “YOU” make every effort to slow your disease down, take disease Modifying Therapy(DMT) and prepare yourself for a very long journey with your ms. Lifelong, that long.

That is a very long time. Once “YOU” have your head around that start to work out what “YOU” can do to make this a great life for yourself. I knew of a woman early in my ms life journey who had a bunch of children. Braver than me but she wanted to have children, three or four I think. Her husband agreed and they got started. I think it might have taken a lot of adapting but they did it last I heard. So “YOU” see it is not hopeless the sky has not fallen on your head. Maybe a little but there are ways to exist with this illness. Set your mind a goal of achieving happiness and joy then do what it takes to achieve that. Do not let ms be the final line in your life story.

Royce

Go forth and achieve your goals

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RoyceNewton profile image
RoyceNewton
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carolek572 profile image
carolek572CommunityAmbassador

I agree with your post, Royce, but I would change your last line to read 'do not let 'ms' be the ONLY line in your life story'. :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

okay I can agree with that

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