Crashing

[mbrooks20]

I have been off of the steroids for 3 days now. I have been totally crashing ever since. I find myself falling asleep at odd times. I even fell asleep in the waiting room at the doctors office. Still waiting for them to start the next 5 days of IV steroids now.

[greaterexp]

Get better quickly!

[mbrooks20 in reply to greaterexp]

thank you

[leking1]

I'm so sorry. Has your Dr. checked your potassium level?

I usually experience a real boost of energy after the first day or so of solumedrol, then a big drop after the IV's end...ask your Dr., and feel better soon!

[mbrooks20 in reply to leking1]

I WILL ASK HER

[Jesmcd2 CommunityAmbassador]

Feel better very soon!! Why more steroids? 🙁🤗💕🦈

[mbrooks20 in reply to Jesmcd2]

Thank you, I am not out of my exasperation yet the first round didn't work.

[bxrmom in reply to mbrooks20]

Sorry, you are not out of exasperation yet. Hopefully, your Neuro will give you a taper when you are done with the steroids. Most of the time when I had to infusions I would have lots of energy but one time in 2007 I had no energy and was really tired. Hope you feel better soon. Keep us updated.

Jessie

[carolek572 CommunityAmbassador]

Feel better soon

[Mjcarbo]

Hope you feel better soon. Did you taper off the steroids? If you don’t stop them slowly all kinds of crazy things can happen.

[mbrooks20 in reply to Mjcarbo]

no the home health nurse just took out the IV and left. Now she has to come back out and do another IV treatment and I find that I keep falling asleep which is kinda funny.

[Jesmcd2 CommunityAmbassador in reply to mbrooks20]

You might want to email your neuro about a taper, while you wait mbrooks20 ? And tell them what's going on. Especially since they are putting you right back on. Although they might think your going to to need the taper later more!🤔😂 IDK nutting anymore!🤣😂🤗💕🦈

[mbrooks20 in reply to Jesmcd2]

i emailed her today asking about the taper.

[Hidden]

Hope you are doing better soon

[mbrooks20 in reply to Hidden]

thank you

[Juleigh21]

I believe you were diagnosed in 2018. Are you on a DMT yet?

[mbrooks20 in reply to Juleigh21]

I was diagnosed in January of 2018. I have tried Tecfidera, Aubagio, and several others. I am awaiting approval to start Ocrevus. I have been diagnosed with Primary Progressive Multiple Sclerosis. This is one of the longest exasperations I have been in and I am now starting to wonder if I am ever going to come out of it.

[JTZES]

The full dose should be given on continuous days. Even if home health care is required.

[hairbrain4]

I hope you get better soon & get approved for the Ocrevus. I'm on it & it has been great.