For Lilitho8

[goatgal]

"I hear singing and there's no one there

I smell blossoms and the trees are bare

All day long I seem to walk on air

I wonder why

I wonder why

I keep tossing in my sleep at night

And what's more I've lost my appetite

Stars that used to twinkle in the skies

Are twinkling in my eyes

I wonder why"

If this hadn't been written by Irving Berlin, one of us might have posted something similar about the mysterious manifestations of our wiring systems.

[Bodega1939]

Well, that was really funny! I don't know how many or who in this forum have mysterious body signals, and it doesn't take much imagination to understand how it can happen. This past week has been one of mysterious events with no known cause for me. It is irritating because I can't predict it and that screws around with my efforts to keep my house in reasonable order and to keep my stacks of paper from falling down. It has rained so much lately I haven't been able to garden so it is in a state of verdant abundance and none of it within bounds. Sigh.

It seems all of us have the potential to have multiple autoimmune diseases going on at the same time. There is a large scientific literature base on this. I personally have MS, Sjogren's, lichen planus, RA and probably psoriatic arthritis and now very possibly Lupus. What lists like this tell me is there are probably several defects in our immune systems (it is incredibly complex) creating the havoc we call "MS". It really ought to be called MSC for Multiple Systems Chaos!

It also tells me it may be awhile before we get relief. ...and PhDs, MDs, NPs, nurses, etc. will all have to be alert to the weird signs and symptoms. I have 3 kids and none of them have anything like the mess I contend with. And they did not spend 3 years in a concentration camp either. Nor did they get rabies and have to have a crude anti rabies vaccine injected into their spinal cord. I strongly suspect the insult to this marvelous human body began then. We humans are really a marvel in my opinion.

It is also a celebration that we have survived as long as we have with these strange and often unpronounceable diseases. I pray we all have other humans with huge compassion helping us. We certainly cannot do it alone.

We should celebrate our human-ness and sing praises to what we have and cope as well as we can with what we are losing or is gone.

Thank you, Irving Berlin and goatgal! It is good to be reminded.

Nemaste!!

[goatgal in reply to Bodega1939]

I love the new acronym: MSC. It so aptly fits so many of us. I'm not tech savvy, but I know enough about building computer programs to know that if a single digit is omitted or misplaced, the whole program has a glitch. I suspect our own bodily systems are like this: one tiny signal error in the code has ramifications that appear when the program is run. I too have multiple autoimmune conditions and several birth defects: this tells me there are errors in the code laid down long before I was born.

[eharoot in reply to Bodega1939]

like the MSC

[Hidden]

It would make a lovely MS theme song. I don't smell blossoms though. My smell hallucination is more like burnt spam. Fortunately it hasn't happened but a couple of times.

[eharoot]

that's perfect. thanks