A Child's Fear

[mbrooks20]

My daughter opened up to me today. My relapses scare her so when I make a joke about it it's not so scary to her. She is 15 and I try to keep her from being scared but I'm not sure what else I can do to calm her fears. She worries that I am going to get worse. Any tips on how to calm her fears?

[Kenu]

Many people who have MS become stable and don’t get any worse 👍. We all have our ups and downs but as time goes on we adjust and the people around us do too😉. Best thing to do is stay on a DMT and hopefully keep it under control 👍. With new research there are new better DMTS coming out all the time 👍. Just stay strong and positive attitude moving forward🙏😉. Ken 🐾🐾

[RoyceNewton]

Kenu is correct. Be sensible about your ms and let your daughter see your research. Actually ask your daughter to help you research. Let her see that it is not all doom and gloom. That there may not be much chance of a cure but a very bright future is entirely possible and ms is not 100% hereditary

[mrsmike9 in reply to RoyceNewton]

Yes, I like that thought of letting her join with you, reading up on it. Perhaps she could go with you to the neuro? I think that sometimes when we try to shelter the kids we may do them more harm. They don't know so their imaginations go wild and surely in dark places. Let her know the truth of what is happening so she can see the light parts. Plus, would she like to join this forum or a similar one if you don't want her to see your posts???

[RoyceNewton in reply to mrsmike9]

o I have no problem as long as they are appropriate in your opinion. There is a lot of dark stuff out there and a lot of pie in the sky scams just make her aware of that

[Timeflies5]

Hello mbrooks20, sorry to read of your relapses. Hope you’re doing okay. But, I agree with Kenu here, too. You didn’t mention the type of MS you have, so I’m just going to generalize and add a different angle.

I’ve also had to be aware that even my children were not only concerned about me, but deep down concerned about their possible risks, too...that’s normal...I don’t know if you think this is the case or not...but, maybe a family counselor can help or maybe you can help her to see the research that shows chances are extremely favorable that she will not acquire MS either. I believe she has a 98% chance that she will not be afflicted herself if only one family member has it.

MS is also know as the “snowflake disease” meaning there are no two cases alike...so, we can have similarities, but one persons journey will be different from the next...you can find more info on the MSAA website. Besides, treatment has come a long way with improving quality of living for many of us. This may help ease her mind all around. I would also keep it brief and then distract her with a fun activity she loves to do. Being available for any questions, here and there, will also help her feel more secure and optimistic.

We know it’s always best to embrace the moment and wisely live life to the fullest for today...it makes no sense to worry about yesterday, it’s done...and no one knows what tomorrow will bring...at fifteen, adventures are just starting to unfold...so here we are...left with the here and now...make it count! Hope this helps...many blessings 🦋🙏🏻

[mbrooks20 in reply to Timeflies5]

I have RRMS. I started goofing off and making jokes about it so it's not so scary to her. I got a book called Curing Multiple Sclerosis and she said that she was reading it first. I always encourage her to do research with me.

[leking1]

My son went through the same

thing. We had a very open and honest talk about my MS, his fears, and between us, his fears were calmed, and he was reassured that both of us would be able to live long, productive lives. That was over 30 years ago, and we are both still going!