Good afternoon, my name is Kyle I'm 30 and was diagnosed with Multiple Sclerosis in the fall of 2016. I have a 2 year old son with my girlfriend of 5 years and am learning how to be a dad and family man while adapting to whatever MS has in store for me every day.
Hi Everyone: Good afternoon, my name is... - My MSAA Community
Hi Everyone
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Don’t get to excited and welcome to our crazy group of MSers. Main concern is to get as much information about ms and ask any questions here, we are not doctors but we have years of learning experience in our family group 👍. Find a neurologist that specializes in ms and a good pcp that both are on the same page! Check out the DMTS and what is best for you, but get on one asap 👍. I was diagnosed over twenty four years ago and have been on seven different DMT’s over the years as they quit working and new better ones came out. Be aggressive and learn and take care of yourself! Get ahold of MS One on One and get your own advocate to help 👍. I now wear an afo for foot drop, have fatigue, pain, and heat sensitivity, but I’m upright and still get around. I have been on disability for the last three years and now on Medicare with a supplement. Mainly due to diagnosis of cancer ♋️, not ms. I was diagnosed at 39 years old and continued to work till Cancer. Stay strong and positive attitude towards life and family 👍🙏😉. Ken 🐾🐾😎
Thanks Ken. I'm sorry to hear about the cancer but it sounds like you are doing a great job staying positive. That's one of the things Im trying to work on.
Welcome to the group OverMS I was diagnosed in the fall of 2006 as well. Stress is what brought my first symptom on..blurred vision for no apparent reason that I could think of at the time. After an Ophthalmologist appt, an MRI, and then a neuro that did further testing I was dxed with rrms. I started on Copaxone daily until the 3xs a week dose came out. A couple of years ago I started Tecfidera because I was tired of the needles and running out of injection sites. So far I have been doing good on Tecfidera and don't miss the injections. I have been on disability due to a bad relapse in 2008 from the flu that left me with bad vertigo. I don't drive anymore due to vertigo either.
Look forward to getting to talk more,
Jessie
Welcome! This is a great group of helpful, supportive people, who are all eager to share ideas and information. I'm sorry about your diagnosis, but am glad you found us.
Be sure to check into what MSAA can do for you, too.
Hello OverMS...and welcome, but sorry about your dx...I was dx in the spring of 2016. Stay positive as newer treatments are always on the horizon and you’re still young enough to see possible breakthroughs in your lifetime. I’m on Ocrevus and so far so good. Nice you have a growing family...children can bring us so much joy and healing with just their little smiles. Many blessings 🦋🌺
Hi and Welcome. ☺️❤️🌹
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I like what your pic says OverMS Hitting Rock Bottom Will Teach you Lessons the Mountain Top Never Will.
Also the adapting. Always have to adapt. Especially with a 2yr old! Wait until he turns 3! 😂
Happy Father's Day!
🤗💕🌠
Hang in there. I am 59 and I was 25 when I was diagnosed which at tge time my sons were 6 months and 3. Being there wasn't anything for MS except steriods it has been a long rough road but my wife and I akways found humor in everything that we went thru. Stay tough and I believe by the time your my age there will be a cure
Welcome to our group OverMS! I have learned a lot from this group and have ended up making friends. I was diagnosed at the age of 56, took Copaxone for 12 years, workout with a trainer. I have had MS for 14+ years and my two daughters are older than you! 😀❤️🌸
A very warm welcome to our MSer Family here OverMS, Here you'll get the best support, laughter, & any kind of help that u may need. Haapy daddy's day!🎼 Grab a good Ol'cup of Mushroom joe☕👍 & I have to very highly recommend an awesome life-changing(For the much better) to u, 1,000's of men & women have got these books & have changed/Reversed any of the many 80 Auto-Immune diseases out there! The 2 awesome books are, "The Candida Cure", & "Healing Mutiple Sclerosis", by Ann Boroch. I have been on this candida cleanse & leaky-gut healing for 7 months now & I can now say "I used to have M.S.!"💐👍💪😃 no more pain, no more spacisity, & much more stable!👍👍💪
Again welcome & now you are Family too! Many Blessings💐Jazzy🌹💜
As per Kenu's response, AND, Do Not Overlook, But Look Into HEALTHY EATING. Pick diet, any diet, for auto-immune disease. (Typically eliminating processed "foods" and whatever else they believe in.) My M.S. neuro told me of Dr. Terry Whal's, which I follow with modifications for myself, but I still do a pretty close hunter gatherer diet, though I fish a lot, and do most of my hunting for fruits and veggies at the local produce market, staying clear of all the processed food lurking in every aisle and most end caps! I'm getting better. Slowly....but haven't had a relapse for over 5 yrs now, after decades of them.
But remember, for a diet to work, you really have to. Sticking to it! No you Don't have to prevent your 2 year old from having chicken McNuggets, BUT, you have to give them up! LOL!
Welcome Kyle! I’m new to the group so I am also just getting acclimated here. I have a 4 year old son (and 3 adult daughters and 3 grand babies lol). The biggest message I can send you is to remember to extend grace to yourself and understand that you do not always have to be everything to everyone at all times. MS is a challenging balancing act and it is super important to communicate with your significant other about how they can support you when you are not physically or mentally able to carry the load. I failed at this miserably in the beginning and it led to resentment, stress, and many symptomatic days.
I hope you find kindness, support, and affirmation in this community 😊
Welcome to the group. It sounds like your doing all the right things as far as becoming a dad and family man.
As you work through your MS your son will adapt and learn a lot from his dad. You can't do more than teaching your son life lessons. Welcome again to the group!!
Hello OverMS, or Kyle, it's so very nice to meet you. I am glad you have found us and we promise to always provide you a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. I feel very fortunate as I had Ms for years and was unaware of it while my sons were young. Luckily if I hadn't known I had it in there was no way to fight it or treated I would have freaked out. At least once I was diagnosed we had bmt's on the market to try and contain it but unfortunately a lot of damage was done before I was aware I even had it.
Once again no question is too small or no question is stupid unless you don't ask it and you need to find out information that we might be able to provide. We are so glad you found this and you now are officially a part of our extended family MS patient living around the world. Please take care until we speak again and remember that together we are stronger. Fancy.