How am I, I look so good. Of course I do, how do you feel that I should look? Sarcastic reply. Thank you very much nice of you to say so. Polite reply then again there is another option, that long one being your whole medical history and woes. My favourite is a shrug, some moments are better than others this is an okay moment, but it will not last long. It never does but I will live with that.
How “YOU” respond is your choice. I was never taught at school how to interact with disabled people, or how to act as a disabled person. I just do my best and understand that others are doing their best. twenty years ago I was diagnosed with ms. How that doctor must have felt giving me that diagnosis. I have felt for that woman for years. What a thing to have to tell a young vibrant man. Glad I was not in her position. Being Diagnosed (Dx’d) meant changes. a new reality, but it turns out to be nothing that i can not handle. It must have been very hard for her and for others to react to me. This I understand and cope with. They are doing their best and they do not have the knowledge and tools that I have. They just have seen advertising and images of ms, that is just not me today or tomorrow. I like “YOU” will do everything that I can to look good, the world only needs to see me on those days. I have learned my strengths and weaknesses. I have adjusted my behaviour and my interactions with people. I like “YOU” accept there ignorance as just being what is, I do not fight it, it just IS. It is life.
Decisions are made by me for my benefit. There is no reason to be rude and cruel. This has happened to us, we can not change it. We can not cure it and make it go away. We all have to find our own way to adjust and cope with it. Learn from it and teach those who ask for your help as your experience and knowledge grows. It will as “YOU” walk your ms life path. Make it a positive experience, do not to regret the past or what was and may have been, look forward to the future with your shoulders back, a smile on your face and keep looking straight ahead.
ms is a quandary but smart moves make it very doable. Challenging at times but very doable and far from hopeless.
Royce
A great ms life can lay ahead if that is what you want. A cure, I am sorry NO
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RoyceNewton
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Royce there may be a cure, one day, but it is in the future and we live in the present, our MS effects us now, in the present. Hope for a cure but take care of yourself and your MS now, because if you don’t you may develop disabilities that effect your sight, balance, thought process, etc. that cannot be reversed when/if the cure comes. A cure usually means stopping the disease process (you no longer have the demyelination in your central nervous system thus no new symptoms) not reversing the effects of the disease that have already happened (which is re-myelination) that is a whole different issue.
You are right, this disease/condition is doable, it takes determination and a desire to live. Allow yourself time to process that you have MS 😮🥺😤😏then find out everything that you can about it 🧐. Learn how it effects you and what you can do to impede the progression of it, do what you need to do then find a way to move on with your life. It can be a good life, even a great one if you allow it to be. 🙂🙃
Sorry Royce, I must be in the mood to sound off.😬🤭❤️
Every once in a while, someone will come to me with news of some new treatment, miracle drug or "cure". I have been through this many times over the years with diabetes.
I am still diabetic and they are still helpful
As for people commenting on how well I look? I'll take it!
It beats someone saying I look like hell.🤣
It never did me any good to ruminate on things that are not under my control.
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I am here to learn how others cope with the everyday living of MS.
