Libido

[Maceymae]

Hi All, I started Tecfidera 5 months ago and my sex drive is gone. Reaching orgasm is impossible. I have always had a very high sex drive and now zilch. My lesions are in the thoracic area but it didn't effect me until I started the meds. Has anybody else had experience with this med/problem? I seen my neurologist today and it was a rushed appointment so i forgot to ask her.My next appointment is in 6 months.

[RoyceNewton]

relax, this happens not sure of it is ms or the meds. I like you have a drive that is more like a dawdle. Masturbation helps and a very patient partner is a bonus. Unfortunately I think this may be our lot in this life

[Maceymae in reply to RoyceNewton]

Thank you RoyceNewton.

[jimeka]

Have you googled it? Blessings Jimeka 🤗

[Maceymae in reply to jimeka]

Yes I have and could find nothing so that is why I asked the question here. So many knowledgeable people.

[Peruzzot]

Many with MS have issues with sex drive. I'm on tecfidera as well but haven't had a sex drive for many years before even starting tecfidera.

[Maceymae in reply to Peruzzot]

Thank you Peruzzot.

[IFwczs]

Maceymae, I had been on Tecfidera for 4 years (on Ocrevus now). As useless as it was for me (I have progressive MS), Tecfidera has no side effects, and I assure you, MS is to blame here, not Tecfidera.

[Maceymae in reply to IFwczs]

Thank you IFwczs.

[IFwczs]

Have you ever considered Ocrevus? It is the only MS DMT that slows down disability progression. I don't think Tecfidera helped me at all, and I would have gotten on Ocrevus if it had existed when I was diagnosed five years ago.

[Maceymae in reply to IFwczs]

Tecfidera is my 1st. Only on it 5 months. The neurologist wants to keep me on this. I am in Ireland so Ocrevus would not be offered unfortunately.

[IFwczs in reply to Maceymae]

But the UK has already approved it - or is Ireland on a different healthcare system? By the way, I am originally from Europe and have 2.5% Irish blood in my DNA.

[Maceymae in reply to IFwczs]

Ooohhhh I am in the Republic of Ireland. Completely separate to the UK...

2.5% Irish you lucky person 😁

[IFwczs in reply to Maceymae]

But you are 100% Irish, right? We're just diagnosed 5 months ago?

[IFwczs in reply to IFwczs]

I meant to say "Were you just diagnosed 5 months ago?"

[Maceymae in reply to IFwczs]

Diagnosed last October. I had medical procedures to get done so only started meds in January. As far as I know I am 100% Irish but I would love to get the genetic tests that show the different nationalities going back centuries.

[IFwczs in reply to Maceymae]

23and.me is pretty decent for genealogy (but not medical - they told me I was less likely to get MS than the average person when I already had MS).

[mrsmike9]

I have not had desire or orgasm since MS. It stopped before the actual diagnosis but I know I had it before the words were said. I think it's an MS thing. Not sure what to do...

[Maceymae in reply to mrsmike9]

It is horrible in some ways yet other ways I just don't care. Going through the motions..

[mrsmike9 in reply to Maceymae]

My husband has e.d. so I don't have to pretend anymore...

[Katylouu]

Hi. I was diagnosed nearly 1 year ago now and I’ve apparently had MS for 20 years.

I started on Tecfidera 3 months ago and it’s definitely affected orgasm, it takes a lot longer and is much harder to climax now.

Hope this helps

[RoyceNewton]

sex drive missing, join the club my froend. Remember what it was like and learn to masturbate for as long as you canh. Another thing our annoying illness likes to steal from us.