facial nerves

[pamgarner]

I know you all will respond to me quicker than dr office so here goes,The last 2 days I have had a facial nerve jumping on my right check.Has anyone else had this ?is it part of ms?do we know,I have a feeling I am going to be forced to call dr.thank you in advance

[Hidden]

You need to look and see the Medication’s your on that used to happen to me when I was on the tesfidira (sp?) I had a very slight twitch under my eye 👁 it did go away. I would let your doctor know what is going on.

[pamgarner in reply to Hidden]

I will check with dr....(BIG SIGH) I know I need to,might be meds

[goatgal]

I'm no doctor, but when the trigeminal nerve misfires, it can be excruciatingly painful. Many with MS have experienced trigeminal neuralgia. On the other hand, a tic is annoying but not painful. I have both trigeminal neuralgia and eyelid tic on the left side of my face.

Both will flare and subside, as does the optic neuritis (also on the left). Do have this checked out so you understand what is going on.

[pamgarner in reply to goatgal]

I am so afraid that this is what it is,another thing...URGGHHH! that's why they call it progressive huh?

[goatgal in reply to pamgarner]

I'm so sorry. Trigeminal Neuralgia is so painful it will stop you in your tracks. See your doctor; perhaps you can get relief from the pain until the flare subsides.

[Bodega1939 in reply to goatgal]

I have wondered what initiates both the trigeminal nerve "tic" and/or pain and the spasms in more muscular areas of our bodies. It seems both occur when I have an abnormal amount of stress. Then I wonder if cortisol and the other adrenocortical hormones are involved. But, actually, mostly I wonder what I can do to stop it all!

[goatgal in reply to Bodega1939]

Somewhere in my posts is a poem about TN. The first time it struck it literally dropped me to my knees. I have now a great deal of experience with muscle spasms and spasticity. When I was mostly immobilized as I was healing from my fractured ankle. they were absent. Now, because I am active again with my gardening and outside joys, they return whenever I spend more than just a few hours outside. I am learning to listen to the signals my body sends so that I don't work until I am tired. That seems to lessen the hated/dreaded occurrences. I don't have your knowledge of stress hormones, but every single time I get in the car, drive 40 miles to the doctor and have my blood pressure taken, it is high...forcing me to tell them (once again) to take it after the visit (not when I have just come off the interstate), and NO! I will not take a different BP med because at home my BP is 130 over 70 consistently. I've charted this to show to my PCP. I am becoming more and more aware of how my body reacts to stress.

[dailygrump40 in reply to goatgal]

The high blood pressure at the beginning of the appt. Tell them "your white coat fever is acting up again." That should get a chuckle from them. Usually if my blood pressure is high when they first take it then they'll take it again about 10 minutes later. I'm surprised I'm not on BP meds yet. But mine does run normally 130's over 70's. When they first take it, it's sometimes 130's over mid 90's. That gets looks and questions.

[goatgal in reply to dailygrump40]

I'm just annoyed that they don't remember or listen to me. White coat fever is such a common phenomenon that they should alter the routine of taking it immediately. And the annoyance probably raises my BP!

[pamgarner in reply to goatgal]

you need to keep a log daily as proof you have white coat bp,they can't argue then.take your bp same time everyday until your next appt.take it to them and say "SEE I TOLD YOU".I have white coat bp and it is written in my charts but they still want to tell me I have high bp,and want to put me on meds,i won't as long as it stays normal at home.I also took my blood pressure cuff to the dr office to check it against theirs.....good luck

[goatgal in reply to pamgarner]

I do as you do/have done...it just doesn't change anything. It's just another example of how systems devalue individuals.

[Bodega1939 in reply to goatgal]

Thank you, goatgal! Yesterday I had a spasm in my left hand index finger. I used to get those when I was knitting or doing a lot of hand writing. Now it is just "whenever'. I wonder if somehow or another individual muscles/the enervating nerves are lacking something like potassium, or magnesium or copper. Who knows what?! Maybe our intestinal walls are excluding something we need to function well. We will be hearing about the gut biome more and more and what we learn I expect to truly benefit us.

Probably lots of people are misdiagnosed with respect to BPs. I, too, delay the reading. I meditate it lower and within a minute or so is is back to normal. Meditation works well for me...even to the point of often controlling pain. The BP is the most fun as it is immediate!

[goatgal in reply to Bodega1939]

Jah, I can do that too if they give me time!