Facial Paralysis on one side of face.

[Judi4]

Hello, I'm new to this blog. I was wondering, has anyone experienced Hemifacial spasm?

[Royjr]

I personally don't have that particular issue but I know fellow MS patients that is perscribed Botox for their issue. Hope this helps. Good luck.

[Judi4 in reply to Royjr]

Thanks for replying. I'm going at the end of the month for my official diagnosis with an ms specialist, so I'll discuss it with him.😊

[Royjr in reply to Judi4]

That's good, keep us informed if you can

[agate]

Hi judi4--I'm new here too. I've had hemifacial spasm. I usually don't know it's happening unless I look in a mirror. I have no idea how often it happens or how long it lasts but my guess is that it hasn't lasted long because nobody has ever mentioned it. Maybe people were just being polite.

[Judi4 in reply to agate]

Hi agate, I'm definitely aware when it starts happening. My left eye closes shut and my mouth feels like its pulled down and on occasion I have slurred speech. I have had this maybe for a couple of months now. A couple weeks ago is the worst it's ever been, that's when my husband and son noticed how slurred my speech was, I thought I was having a stroke. I know on another occasion my hair stylist asked if I had something in my eye because it kept closing. I just hope the specialist can explain this.

[WAshingtongirl]

Hi, I'm Dawn. I haven't experienced what you have, but am happy to hear you will be seeing an MS specialist soon. It sounds as though you are pretty positive you'll be getting a diagnosis of MS. For me, the diagnosis was a relief. After years of symptoms and one doctor thinking it was all in my head (he offered to make me a psychiatric appointment!), I viewed the diagnosis as a blessing.

I'm sorry you have MS, but hope a definite diagnosis helps you move forward and be strong. I also hope your doctor is able to help you with your current symptom.

[Judi4 in reply to WAshingtongirl]

I had an MRI with white matter and they describe some things with dimensions. They also found O bands in my spinal fluid. My doctor doesn't want to be the one to confirm it, so that is why he's sending me to an MS specialist. Plus the fact that my sister was was just diagnosed with MS. I have had doctors try to blame it on my bipolar from the which I tried to explain my symptoms were different. They wanted my to take a psychological test. Sometimes I hate doctors.

[agate in reply to Judi4]

I believe you must have had an MRI showing the white matter lesions that are typical of MS. I'm so sorry about your sister, and I hope that you'll have an understanding doctor who will guide you through whatever your diagnosis turns out to be. Like Tutu, I was relieved to know what was wrong with me and that it had a name and that other people had it but you may not have traveled that road at all and the diagnosis can certainly cause a person to make some drastic revisions in life plans. Many people go right on anyway with their plans, though, and quite a few are lucky in finding that MS doesn't get in their way much at all. You can tell yourself you'll be one of those lucky ones.

[WAshingtongirl in reply to Judi4]

It's taken me forever to figure out how to get back here and respond to you! 😁 Oh, well...I'm sorry your sister has MS. That, combined with your other symptoms and test results are concerning. My spinal also showed the banding. My neurologist diagnosed me on that and symptoms even though my MRI was clear. But still, it took 9 years before I was diagnosed. My MRI finally showed plaques. Hope you are happy with your new doctor and get a firm answer.

[Judi4 in reply to WAshingtongirl]

WAshingtongirl thanks for responding back. I appreciate you taking the time to chat.😊

[WAshingtongirl in reply to Judi4]

Let us know what you learn at the end of the month. Thinking of you during the waiting time.

[3jaysmom]

Yes, I have the trigemenial stuff going on when a flare is bad. I actually had a BAD stroke yrs and yrs ago, when the 1st dx of MS came out of that.

I have gone to the ER, and they were sure it was a stroke, but now they know the ms is causing the drooping. The drooling is driving e crazy, but nothing to be done about it, except face excersizes, which work part of the time..

I know it's scarey, but not so much when you think of it's just the da***MS again lol

[Judi4 in reply to 3jaysmom]

3jaysmom I'm sorry to hear about what you are going through. This is a very frustrating disease. After reading a lot of these posts I think doctors need to get their crap together and stop giving us mixed information. I just went to the MS specialist and he's telling me the Hemifacial spasms are not related to MS. The first time it happened I actually thought I was having a stoke. I'm at a loss as far as what to do. This is why people hate going to doctors because they can't get a definite diagnosis.

[3jaysmom in reply to Judi4]

Thanx for the answer, Judi.. I really get frustrated with the docs; seems theyr'e specialists in the field.. not so much! I take it all with a grain of salt anymore..