Comorbidities

[agapepilgrim]

I never knew the meaning of that word until I read it in my neurologists report and he complained about my “many cobormidities” making it difficult to treat me! I had to use the dictionary to understand what he meant👹. Anyway, I have another cobormidity diagnosis: fiber neuropathy! Anyone else have this? It was determined by the tests done on my nerves and muscles conduction (or something like that, it was like a taser gun hitting them, brought me up off the table🤣), because those were normal. She said that was the only other thing could be causing the burning, throbbing pain in the calves of my legs. Demyelination of the fibers! Nerve fibers! What next! My primary care doc said I was an unusual case. The neuropsychiatrist said my life “story” was unbelievable and I should write a book. I was writing the other day and I had such an awful stabbing pain in my wrist I had to drop the pen! I actually hollered out in pain. Anyone else ever have this happen? My thumb wasn’t hurting as defined in carpal tunnel- just horrible pain in my wrist. So, have I done enough complaining? Oh, and I have gained 15lbs since stopping Topamax! Still on the MS diet so don’t know where it is coming from - guess it is chemical interaction changing in the body. My daughter recommended I take l-glutamine to decrease the pain. She said it lessens her pain from Crohn’s (which is intense for 25 years), so gonna start 2000 mg a day (along with my other 15 herbal/etc supplements). Need to post something cheerful, don’t I? Have you heard about the man going to church, was almost there, when cell phone alerted him, and he looked at the screen and it read “no service” so he turned around and went back home? 🤣🤣🤣🤣🤣 This photo is us trying to “fight” MS. We aren’t going to win, but we will keep living, loving, and laughing. As Tiny Tim said, God bless you, one and all!”

[jimeka]

Love it. 😊Sorry about all the other ailments that you have. I have come to the conclusion that multiple sclerosis means multiple ailments. As soon as you are labelled with ms, they start attaching other labels to you and then when you ask why, they turn round and say “ well you do have ms” I am so, so tired of that sentence. I have just received an urgent appointment to go to the cancer hospital for my throat, and then yesterday I had X-rays of my knee, so I am awaiting results. I joke with my hubby that I have all these appointments just so we get to spend quality time together, 😂blessings Jimeka 🍫

[agapepilgrim in reply to jimeka]

jimeka love your thoughts! Yea, I make doctor appts just to MAKE me get out of the house. Otherwise, I never get in the car. I get outside, but hate to “get ready” to go anywhere! And, it’s a great time to listen to favorite music with the hubby for the hour drive, etc cause all we do at home is have the tv. As for different symptoms being blames on MS, I was the opposite. For about 50 years, all my symptoms were blamed on fibromyalgia, arthritis, PTSD, depression, insomnia, asthma, bronchitis, gastritis, CFIDS, rheumatic polymylgia, migraines, tendinitis, bursitis, hypoglycemia, hypothyroidism, orthostatic hypotension, oh and don’t forget bi-polar.🤣🤣🤣🤣 Those are most of my comorbidities. NOW, neurologist said it was MS all along. Well, one of them said that. Another one said “you can’t blame everything on MS. You still have fibromyalgia and arthritis and tendinitis and PTSD “. Every neurologist has different opinion. I like the one reply on here that said neurologists are like pianists—one can play like a clunking marching10 yr old in boots and the other as smooth as a concert pianist sounding like a bubbling running brook. That’s what I found in the 5 different MS specialist neurologists I’ve been shifted to in the past 9 years. And psychiatrists and now neuropsychiatrists. I asked my primary care to get referral on see a new neurologist recommended by MSAA site, but his office didn’t follow through and I’m just too tired, too foggy, too angry, to follow through and remind them. But, it’s spring time, flowers are blooming, trees have buds, the sun is shining today, it’s not freezing, and I’m learning to stop pushing my body to do things that causes spasms and trigger points. I’m 72, and now I play mind exercising games on iPad and not feeling guilty about finally, literally retiring, taking life very, very easy. When the pain is dulled, I can talk on this awesome encouraging inspiring informative funny forum🥰🥰🥰🥰

[Amore55]

I loved your post and your response to Jimeka. I always enjoy what you say. My hands drive me crazy! I have to wear supports a lot of the time or they “claw” up. I have lost so much weight, I had to buy a size zero pair of shorts! I am glad you put some on, that is surely a good thing. Keeping you in my prayers. Love, Kelly xx