Victory!!!!: i just walked thru a room... - My MSAA Community

My MSAA Community

9,205 members20,942 posts

Victory!!!!

dailygrump40 profile image
27 Replies

i just walked thru a room unassisted (no cane) with a rug that sticks up about 1 1/2". It's been a couple years since I've been steady enough to do this. The room is about 20 feet long. I think the Ocrevus and Amprya are doing something. WOOHOO!!!!!

Written by
dailygrump40 profile image
dailygrump40
To view profiles and participate in discussions please or .
Read more about...
27 Replies
carolek572 profile image
carolek572CommunityAmbassador

That is fantastic news, dailygrump40 and keep up with the forward progress :-D

jimeka profile image
jimeka

I heard that Woohoo all the way over the pond. Congratulations. I hope and pray it continues 👏

anaishunter profile image
anaishunter

So happy for you! Keep at it.

falalalala profile image
falalalala

Awesome!

Kenu profile image
Kenu

Sounds Great 👍 Hope it continues 🙏😊😉. Ken 🐾🐾

Juliew19673 profile image
Juliew19673

Excellent to hear!

RoyceNewton profile image
RoyceNewton

fine victory to have, congratulations

greaterexp profile image
greaterexp

Hurrah!! How exciting!

Kitsey profile image
Kitsey

That’s such wonderful news. Thanks for sharing and please continue to keep us posted.

SueAB profile image
SueAB

Awesome! You must have the right combination!

kdali profile image
kdali

Congrats!!!! Ty for sharing the good news with us 🎉🎉🎉 I hope to hear more improvements! How long ago was your last infusion?

dailygrump40 profile image
dailygrump40 in reply to kdali

November. That was my first full dose. Next one is May 22.

kdali profile image
kdali in reply to dailygrump40

Oh wow!!! That’s very encouraging 🎉🎉🎉

MarkUpnorth profile image
MarkUpnorth

Great! Keep it up! I've tossed the cane about 3 months ago now, after needing it for about 5-1/2 years. Still a bit unsteady, but I keep on going forward! It does take a bit. Still waiting to be able to say, back to steady, but it is getting better and better! Did 15,600 steps yesterday! (Okay, that's a good, slightly higher than norm for me the last year or so, BUT WITH A CANE. Do miss the cane on long walks.....would a or a couple of trekking stick be inappropriate?...It is outdoors?...In the woods! Yeah, on paved paths, with tons of other people, including bikers, all at a high of almost 40°, in the sun, without the wind blowing. There is lots of shade and wind! There were recumbent bikers dressed like I would for ice fishing, to the racing bikers in their performance biking clothes. It took years with the cane to get to this point. But with, or without. Keep on pushing yourself!

dailygrump40 profile image
dailygrump40 in reply to MarkUpnorth

15,600 steps??? I wish. I know I'll get there just gotta keep pushing. I need to get into a fitness center. That would be a huge help. Would get me off my backside. LOL!!! Walking without a cane will feel odd and not being wobbly would get people questioning what I'm doing differently. It'll take some time but I'm working on getting passed needing it. Long walks? That's what the rollator is for. I'll be working on hopefully getting rid of it also.

MarkUpnorth profile image
MarkUpnorth in reply to dailygrump40

Keep in mind though, that I used that cane forever. At first to help my weak leg, but then for balance. But, when I put on my first step counter, years ago, I was lucky to get a 1000 steps, (including to/from bathrooms...getting dressed, all those things that were major at that point. 10,000 steps (what I read was recommended) was just a dream. One step at a time. It's just important, that you give it your all, consistently, and you will improve. Pre my first M.S. symptom, I would get an itch, and actually go for a walk, or a jog. That happened seldom, and it never amounted to much when it did happen. That's how bad it was when M.S. hit me first. Exercise?....yeah who's got time for that? Well let me tell you, it should be a priority, along with diet. Pick you poison. Paleo, Whal's, Vegan...., there is more and more on diet and illness everywhere you look.

dailygrump40 profile image
dailygrump40 in reply to MarkUpnorth

Yeah, the diet thing. Everyone says, My diet can cure your MS. I like the see food diet. I see food, I eat it. Hahaha. The biggest walking time of the year for me used to be hunting season. We would run drives all day and I can only imagine how many steps I took while driving deer. I also enjoyed just taking a walk mostly in the woods around the valley I live in. Wish I could still do that. You discover all kinds of new things when not really looking.

MarkUpnorth profile image
MarkUpnorth in reply to dailygrump40

Never drove deer. Had them come to me, still as a tree. Had a pair stop in front of my face, as I sat on a log. They were looking beyond me, to see if it was clear, fogging my glasses I was wearing, eyes darkened from the sun light. I always wondered, if I wasn't worried about them jumping over me and kicking me in the head in the process, and I hadn't quietly gave a a-hum, would they have cleared my head? I about gave them both heart attacks! Then, I wasn't into walking. Sitting has it's benefits too! Okay, I did walk about 2.5 miles into the woods from where I parked.

As far as food, look at the diets and people with M.S. who swear by them, as it helped them. The numbers are growing quickly. As an example, see Netlix, The Paleo Way, S2:E1? Food is Medicine. Same story, again and again.

dailygrump40 profile image
dailygrump40 in reply to MarkUpnorth

1st day of the season we sat. The second day and 2 weekends and the 3 days of doe season we walked the mountain. The stretch of mountain we drove deer was close to 2 miles long. The mountain ground has a gas pipeline that goes over it, which split the ground so we drove it both ways 3 different times in one day. Then the evening was spent butchering.

MarkUpnorth profile image
MarkUpnorth in reply to dailygrump40

Sounds like it worked!

jsb0410 profile image
jsb0410

That is wonderful! Sending prayers and thoughts of congratulation your way!

Mjcarbo profile image
Mjcarbo

Wonderful!

IFwczs profile image
IFwczs

Fantastic news, congratulations! Keep us posted. I don't know what I would do without Ampyra. And I am on Ocrevus as well.

lbenmaor profile image
lbenmaor

Congratulations!! Keep moving forward!

Best Wishes,

Leslie

mrsmike9 profile image
mrsmike9

YEAH!!!!

eharoot profile image
eharoot

that's wonderful dailygrump. what's the 40 for

Timeflies5 profile image
Timeflies5

Wow...that’s awesome...prayers for you that it stays on course...🙏🏻💕

Not what you're looking for?

You may also like...

Victories?!

you’ve had this week (big or small)! I think many of us what we think seems small; can actually be...

Victories!?!?

first Tysabri infusion this morning and so far it’s been very uneventful! Yay!!!!!!!! Let’s hear...

A Victory for A Purpose!

Saturday, July 8th, hubby and I walked a 5K walk to help bring awareness about the horrific crime...

Small victory

have been popping up this week. I’m not sure if they are me related or something else. I just know

Small victory

Just wanted to share a small victory! Haven’t been able to exercise since before my diagnosis (5 1/2