TOP TEN REASONS YOU SHOULD JOIN OUR MSAA CHAT ROOM!

Hello everyone it's Fancy1959. For everyone in the chat rooms to understand what a blessing it is to be part of this extended family I am writing a post about the top 10 reasons becoming a member of our chat room is a life changing experience for people diagnosed with MS. . For those of you who I haven't mentioned it to yet I have gotten permission from the National MS Society to promote our MSAA chat room at the Central Kentucky MS Walk on April 1st. So, I'm putting this post together to display at the MS Walk. I would love to have input and if you've got a reason you think is better than my top 10, please chime in so I can correct it to make the best possible poster with the top 10 reason to join our MSASA chat room at the MS Walk. So here are the top ten reasons I can come up with.

Top 10 reasons for joining are extended family at the MSAA National chat room.

1. Become part of our extended family and network with literally hundreds of other people with MS.

2. Be part of a safe place with caring, compassionate, and kind individuals where you can ask questions, voice your concerns, and seek information from those facing the same challenges you are.

3. Get the latest updates on research as it relates to MS.

4. Receive information about the latest clinical trials and new drugs that are currently in the process of being approved by the FDAA.

5. Share in the humor we often seek out to lighten the mood and make ourself laugh about the good times and forget about the challenges we face if even for a few minutes.

6. Being able to find out about resources that you never knew existed.

7. Having shoulders to cry on when times get tough.

8. Gaining back the feeling of respect and being able to help others in their time of need really boost your morale and makes you feel less like a handicapped individual and more like a productive member of society. Something many of us thought we would like never feel again.

9. Being part of a chat room that seeks out all individuals affected by MS. Caregivers and loved ones who often feel left out but play the such an important role in MS. Younger generation of twenty and thirty year olds who are facing MS and know not where to turn. We network and try to get them to talk to one another to know there are others in their same shoes fighting this dreaded disease. In attempt to make sure that the chat room is represented by both male and female patients facing the challenges of MS. All the above individuals have unique insight to offer that is beneficial to all MS patients.

10. Realize that "Together we are stronger".

Share your ideas and will update it as necessary. Thanks for any and all input.

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12 Replies

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  • I'm thinking Fancy1959 lol give me time ! 🌠

  • All the time you need Jess. I'm counting on your ideas and opinions.

  • This so great, Fancy1959 ! You summed up our beautiful online Community very nicely, especially coming from the perspective of someone who's in the thick of it, knows how to use it to its fullest potential, and wants to make it even better.

    Looking forward to what our other friends on here have to say!

    And, yes, good luck and spread the word about My MSAA Community offline! I encourage everyone who benefits from being a member - whether you post frequently or just reply occasionally - to spread the word out MMC and HU...we all know there are certainly others out there who could benefit from sharing their stories with everyone on here :)

    - John, MSAA

  • I need posters also johnMSAA my walk is in may πŸ˜πŸ˜…πŸŒ 

  • Great! Working with HU on some materials for offline promo.

    - John, MSAA

  • Thank-you! i have meeting people with MS at a pace of several a week and i have been directing them toward the chat room. It's challenging when you have no material to hand out.🀐😀

  • Understand the challenge as well, Fancy1959 :( Working in a nonprofit atmosphere where we always want the majority of our efforts to go back to the MS communities that we serve, it sometimes takes time when working with other partner orgs to get the most efficient cost and use of resources...the best bang for all of our bucks! Thanks for being patient!

    - John, MSAA

  • Good post Fancy1959. You seem to have hit the nail on the head. I can't think of anything else. Well done, blessings Jimeka

  • Fancy1959 the reason I started reading, and what validates me the most, and what is most educational, and calms my anxieties the most is when I read about MSers who have the same weird and what I thought was unique symptoms as I do. I no longer take a list to my doctor because I have read about someone having the same symptom in this chat room. Or someone will ask, for ex:, has anyone had trouble with their tongue burning? WHAT? You kidding! I have had Burning tongue syndrome for 14 yrs! That's MS/also? Ok, Judi, problem solved. And it comforted the other MSer. A commonality of symptoms that neurologists try to tell us are not related to MS but hundreds of MSers have them? Ignore them and listen to us and relax. We're not going crazy! And Oragel helps and give up spicy foods, btw!

  • Thanks for again reflecting on all the wonderful attributes of belonging to this great group! I hope the walk goes well!

  • 10, ha I laugh at u. It is really 11, u get to meet me if u r lucky & my bizarre sense of humor. of course #12 is that we get to meet U. Yes U have something to offer, never forget that.

    Royce

  • Why thank-you kindly sir. Item # 13 is the most important of all. The public gets to meet not only you, (item 11), and me, (item 12), but the entire faithful followers who each play an important role in making the chat room all it is today. πŸ˜†πŸ˜‰πŸ˜ŽπŸ˜ƒβ˜ΊπŸ˜ŠπŸ˜€ etc. etc.

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