Ms movie

[luvhair]

Has anyone watched living proof on amazon...let me know your thoughts ty

[rjoneslaw]

What are your thoughts about the movie?

[rjoneslaw in reply to rjoneslaw]

I haven’t seen it

[MarkUpnorth]

Okay, now I know what we'll be watching next!

[Frances_B]

There was plenty of discussion about the trailer for it, and the speaking tour on this previous post

healthunlocked.com/mymsaa/p...

[bxrmom in reply to Frances_B]

Here is a link to the trailer: seelivingproof.com/

I have Amazon Prime so I may watch this.

Jessie

[Frances_B in reply to bxrmom]

And the thread I posted the link to also has the link to the trailer and contains quite a lot of useful discussion about the whole Best Bet diet marketing machine. I encourage people to go and read that thread.

[IFwczs]

I just bought the movie and will let you know,, thank you. I remember when you joined this forum -

rjoneslaw and I wanted to meet you but it turned out we lived in different states. How are you doing?

[rjoneslaw]

I’m getting better I had a relapse the last wk of Jan but I’m getting better

[JTZES]

I will be watching it shortly and let you know my thoughts.

[luvhair in reply to JTZES]

Ok

[kdali]

I think there was a discussion about it a few weeks ago. I did not watch it. You may be able to search the posts and find it.

[Frances_B in reply to kdali]

See my post above with a hyperlink to the thread you are referring to...............

[luvhair in reply to Frances_B]

Ok

[kdali in reply to Frances_B]

Ty!!

[JTZES]

What would you like to discuss about the movie? I just finished watching it.

Their are many points I agree with and many I don't.

Jeff

[luvhair in reply to JTZES]

Same here...i guess he said about could be a plugged vein n ur neck i wonder who n what kinda dr u go to for this...i havent read yet his diet stuff yet.

[luvhair in reply to JTZES]

What do u think

[JTZES in reply to luvhair]

I'll start out with the remitting vs. Progressive diagnosis. They didn't make clear after diagnosis and what he would truly going through during the filming.

I have taken all of the DMT'S mentioned and they did not work for me. I'm currently on Ocrevus which seems to work the best for me. My last infusion was done at my neororolisist hospital based infusion facility. The tab was $115,000.00 and my insurance has dropped them as a provider for the infusion. This is the big pharma they were talking about. You can't tell me that the medication cost.

The stem cell research is correct. That is the only way to repair your lessisions but it does not cure the primary issue of MS. a cure will have to be a combination of stem cells and something working with a DMT to control your immune system. I'll send more thoughts after a nap.

[JTZES in reply to JTZES]

I'll pick up where I left off. If you noticed he continues to work out which is good for everyone. Same with a diet. If you haven't eaten correctly for the last 20 plus years I don't think the diet is going to cure your disease but is good for over all health.

If you were or still a smoker the narrowing has probably already taken it's toll and it's not reversible.

Based on my MRI'S. I know I have narrowing of blood vessels in my brain and spine. If hypersensitivity is picked up in an existing lession from what I understand those areas are not getting addiquit blood flow. Which is causing damage but not an active flair.

The diet is certainly worth a try if your JVC positive. I haven't found a DMT that works for me that doesn't have the potential of causing PML. Tysabri has the highest percentage of eliminating future exacerbations. But will all most certainly cause PML.

I know someone with PML not from MS but being JVC positive and prescribed a medication that caused it. It is a nasty disease.

You would see a vascular doctor to check for blockage in your jugular or corroded arteries in your neck. I am going to talk to my neurologist about this.

Jeff

[JTZES in reply to JTZES]

One more thing to add is in regards to the MS Sociaty.

For anyone new too MS that is the site I refer them to. It does give a new paient the correct information they need.

I am very disappointed by the way they spend our donations. This information was appalling to me and I don't think they will see any future donations from me.

I noticed that any of the webanair are sponsored by a pharmasuitical company and the speakers are based on that manufacturer's information and not many other questions are answered. This is MS approved marketing and advertising. But they do their best to shut down any other MS site.

[luvhair in reply to JTZES]

Yep..i hvnt got on his diet site yet..im tryin get the swank book..idk if you cant grow it n raise it yourself idk the organic is so much expensive for me.yep i used to work out alot before this evety time i try im sick next day i just dont know.m

[luvhair in reply to JTZES]

Agree

[luvhair in reply to JTZES]

Yep

[Lilith08 in reply to JTZES]

About the MS Society, in regards to this movie: Matt Embry makes it seem they want to shut him down altogether. He conveniently glosses over the fact that the main problem here is copyright infringement—his logo is very similar to theirs. And it would lead people to believe that his diet is related to and/or sponsored by them.

See earlier discussion about this film:

healthunlocked.com/mymsaa/p...

[luvhair in reply to JTZES]

Yep me 2.im jcv. So tried a few meds before i contracted this jcv..yea imma talk to dr also and agree with wht u said

[luvhair in reply to JTZES]

Me2

[JTZES in reply to luvhair]

How long have you been diagnosed and what are your symptoms?

[luvhair in reply to JTZES]

2013..after years weird symptoms..mine are heavy cognitive..fatigue..now.its moved to massive pain n legs feet arms..mite be ra mite not..major depression..isloation..30 lesions on brain..oh lord goes on n on..yea my career doing hair no longer no friends no nothing had such an AMAZING social life n i love doing hair.imma tough case they say..idk nothin seems to help me.i have nothing to do no where to go..was goin to day service program contracted the jcv..they have a major sewer leak there cant prove it though..so i stopped goin once i stopped my level on the elisa test went down n half..so that tells me a lot right there..how bout you.m

[JTZES in reply to JTZES]

Just to let you know we all have the depression and my main issue is acceptance. I see a therapist who helps a little.

Is the pain in your legs pins and needles or muscle spasms?

What I found for myself was to have goals to complete. Most I shouldn't do because I can hurt myself and make myself sick. But anything I do get done I consider it a success and will work on it again the following day.

I really think you need to stay involved in the group and give yourself something to occupy your day.

We've got it and we just can't wallow in our depression over it.

[luvhair in reply to JTZES]

Yep aggree the pain is hortible cant expain..yes i agree on the support group..very much..im tryin to find one close tht doesn't just talk about money donations and talks more about how to work with this and stuff like that..one tht welcomes you..and not just being very clicky..i heard there is one bout 30 miles from me that i will check out!

[JTZES in reply to luvhair]

It sound likes you need a group for support.

Are you on disability or in need of a job that you can do now. There are a lot of work from home customer service reps out there.

Stay positive and keep moving forward no matter how hard it is.

[luvhair in reply to JTZES]

No i did hair.this ripped everything from me..

[Frances_B in reply to JTZES]

If your comment about "narrowing of blood vessels" is referring to CCSVI - are you aware that the "inventor" of CCSVI has now finally admitted that his PTA procedure for "fixing" CCSVI is useless for MS. However, Matt Embry still has stuff about it on his website - which raises significant credibility issues for anything else he is promoting. The diet being promoted by Matt Embry has been around for quite a while and it's just another variation in the large internet collection of "Diet will overcome your MS" themes. I strongly urge you to go and look at the previous thread about this and have a look at some of the information on links in that thread. You will find the link to that thread about 4 posts from the top of this thread. If you decide to try any of the "MS Diets" keep in mind that they all come with an "escape clause" where you are usually told that it didn't work for you because you didn't follow it 150%. Caveat Emptor applies in full.

[JTZES in reply to Frances_B]

Frances,

Thanks for the response. I don't believe in any of the diet suggestions other than the fact they maybe healthier than how your eating now.

The narrowing of the blood vessels running to the brain was new to me. Is that CCSVI? I've been along time smoker and know I have restricted blood flow to my lungs. So this mentioned in the movie it raised my curiosity. Thanks for your information.

[luvhair in reply to Frances_B]

Ok thank you xo

[falalalala]

I have plans to watch it.

I first saw that guy on You Tube when looking to change my diet.His approach is less restrictive than some and is the way I might go if I ever get off my arse and do it.

[luvhair in reply to falalalala]

Yea i didnt look at his diet. I plan too also.!