Struggling at 25: Hi, this is my first... - My MSAA Community

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Struggling at 25

Lulzy profile image
11 Replies

Hi, this is my first post. I was diagnosed with Relapsing MS on my 18th birthday in 2011, on top of that I have been struggling with ADHD since first grade.

It is hard, but I do not get depressed. I am frustrated, but that is only because I have refused to give up. I feel that I have come very far in my personal journey, spiritually and emotionally. I am always looking to improve, always looking for my best next move. Being upset will not help, being afraid will not help. I strive to see beyond distraction and focus on the big picture.

The definition of "Struggling" - Striving to achieve or attain something in the face of difficulty or resistance.

I'm normally very easy-going and silly, but my condition.

Is serious business.

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Lulzy profile image
Lulzy
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11 Replies
pamgarner profile image
pamgarner

so sorry,you are sooo young.But that has it's advantages,I am sure you will bounce back quicker than us oldsters.We all have multiple issues but you have a great attitude,We are great group of people,everyone is so supportive!

Diva1976 profile image
Diva1976

You have such a pleasant attitude:) I’m hoping you are better off in the long run being that they have captured your MS at a young age.

quegh profile image
quegh

Hi and thanks for the positive and inspiring words. Everyone deals with this differently. You are a fine example.

jimeka profile image
jimeka

Hi Lulzy, you have the right attitude, very positive, which in the case of ms is good. Are you on any DMT? Blessings Jimeka 🦋

Lulzy profile image
Lulzy in reply tojimeka

I have never been on DMT, is that something MS patients get prescribed? 😮

Lilith08 profile image
Lilith08 in reply toLulzy

DMT = Disease Modifying Therapy

That’s the catch-all term for any of the drugs designed to put us into remission (e.g. Rebif, Tysabri, Ocrevus)

Lulzy profile image
Lulzy in reply toLilith08

Oh i see haha! I am on Gilenya, and its working much better than the Rebif i started off with. I got confused with another drug known as DMT 😏

greaterexp profile image
greaterexp

I'm glad you found us and hope you find tons of encouragement here. You've already offered encouragement to the rest of us with your post.

I'd imagine most of us would say that facing MS has helped us grow in many ways. We'd gladly give it back, but I know I'm grateful for the good things MS has taught me. Having the support here has helped so much in keeping a positive attitude, too. We cry together, but we also laugh together.

mymsaa.org/ has much to offer, so take a look at all their resources.

falalalala profile image
falalalala

You're tough. :)

Lilith08 profile image
Lilith08

Welcome! I recognize the struggle with ADHD, at least somewhat. I never had trouble as a child but in my late 30s I started having attention problems. It now seems possible my brain acts like one with ADHD but because of the MS.

mrsmike9 profile image
mrsmike9

So sorry we have to embrace you into our group at such a young age! You sound like you have a good attitude toward this hand we've been dealt. Don't get too discouraged when you have down times because we all get them. When I was diagnosed the only person with MS I knew used a scooter to get around. Then I discovered that the meds now are SO much more advanced than when she was diagnosed so I realized that may not be my future. (Or it may but so far, so good.) Keep your chin up and stay in touch with this group. There's none that know the ups and downs of this better than we who have it.

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