Plasmapheresis (Plasma Exchange) - My MSAA Community

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Plasmapheresis (Plasma Exchange)

lmstunned profile image
17 Replies

Has anyone done a plasma exchange? My doctor is recomending I undergo a plasma exchange as my flare up did not respond to the 3-day steroid treatment.

I was wondering if anyone has under gone this and what was the result?

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lmstunned profile image
lmstunned
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17 Replies
greaterexp profile image
greaterexp

I hope someone is able to offer some thoughts. I haven't seen many posts about it when I used the "Search" button. It was mentioned in the other post that it was offered after steroids were found to be ineffective.

I hope you'll share what you learn, since we don't appear to have many members who have gone through this.

kdali profile image
kdali

I have not had one myself, but I’ve cared for plenty of patients that were getting it.

RoseySawyer profile image
RoseySawyer

I had it done in the hospital back in 2015 when I was paralysed. It takes out bad antibodies and replaces them with good antibodies. ❤🌷

RoseySawyer profile image
RoseySawyer

It helped me walk!!! Well that and God and my MS Specialist. I recommend it!!!!!!!!! 😀❤🌷

lmstunned profile image
lmstunned in reply to RoseySawyer

Thanks

sski1 profile image
sski1

I had PLEX (plasmapheresis) in January 2019 and it was amazing! I had a central line put in because I have stupid small veins and that was literally the worst part. That and not being able to shower! I was in the hospital with severe optic neuritis (was later diagnosed with MS) and the steroids didn't really help either. I'd do it if I were you!

lmstunned profile image
lmstunned in reply to sski1

Thanks for your reply. I have small veins also. I would be doing mine at an outpatient center.

sski1 profile image
sski1 in reply to lmstunned

I think they would do a tunneled line on that case which is what I had. It's not so bad.

RoseySawyer profile image
RoseySawyer in reply to sski1

They did my pigtail (tube) in the main artery on my neck. For 5 days (every other day) 😊❤🌷

lmstunned profile image
lmstunned in reply to RoseySawyer

did you do 3 treatments? My doctor is recommending 5 treatments

sski1 profile image
sski1 in reply to lmstunned

I did 4 treatments. Was scheduled for 5 and then I improved so much they let me stop.

lmstunned profile image
lmstunned in reply to sski1

Thanks

RoseySawyer profile image
RoseySawyer in reply to lmstunned

They left the pigtail in my neck for 10days so every other day They did it 5 times. After the first time, I was moving my feet. After the second time, I was moving my knees to my chest and sitting up in bed. I was completely paralyzed for over a month because of my very first relapse ever. My Neuro had the plasma done on me in the hospital. It worked!!! There's really no risk in doing it. It even takes your fatty plasma away. Lol 😊❤🌷

lmstunned profile image
lmstunned in reply to RoseySawyer

Thanks for your comments. I'm happy it worked so well for you. God Bless!

RoseySawyer profile image
RoseySawyer in reply to lmstunned

I hope it works for you. 😊❤🌷

lmstunned profile image
lmstunned in reply to RoseySawyer

Thanks

lmstunned profile image
lmstunned

did you do 3 treatments? My doctor is recommending 5 treatments

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