Has anyone here ever had plasma exchange... - My MSAA Community

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Has anyone here ever had plasma exchange for a relapse? Wonder why this was never presented to me as an option since IV steroids raise my

dogdaddy
dogdaddy

verywellhealth.com/plasma-e...

Has anyone here ever had plasma exchange for a relapse? Wonder why this was never presented to me as an option since IV steroids raise my blood sugars so high and didn't really help me at all other than getting my speech back both times!

13 Replies
oldestnewest

dogdaddy Never heard of plasma exchange for relapses but you should definitely bring this up at your next Neuro visit as it sounds like this is what you need if you have a relapse in the future! Please keep us updated on they say.

Jessie

greaterexp
greaterexpCommunityAmbassador

I think expense is a big factor.

dogdaddy
dogdaddy
in reply to greaterexp

right so I was never given this option because I don't have insurance and the hospital aid program is picking up the costs...just as I thought!!! I'm in the middle of a relapse as we speak! I have a grant from the assistance fund good until 2020 that would have covered the cost. I keep bringing this up to my neuro's to no avail!!!

Iona60
Iona60
in reply to dogdaddy

Is this the save as plasma pheresis? This was mentioned to me as an option if the steroids didn't work during my first exacerbation.

dogdaddy
dogdaddy
in reply to Iona60

I think they're the same. You must have insurance!

Iona60
Iona60
in reply to dogdaddy

Yes. I was at the Mayo clinic back then and it was at the time of my dx. It's never been offered by my current neurologist.

dogdaddy
dogdaddy
in reply to Iona60

oh...o.k.

Never received it myself, but I’ve cared for a few getting it, plasmapheresis. This was in an ICU setting and they were not breathing on their own. I thought it was only a backup plan for when the steroids didn’t work for the really sick ones 🤷‍♀️

dogdaddy
dogdaddy
in reply to kdali

It's rated PROBABLY EFFECTIVE in MS relapses so again I ask why was this never presented as an option?

kdali
kdali
in reply to dogdaddy

Probably because you reported some improvement or did not decline with the steroids. Good question for your doctor though!

dogdaddy
dogdaddy
in reply to kdali

but the steroids did NOTHING to improve my walking at all and my blood sugar goes through the roof with steroids. The only thing it helped with both times was getting my speech back but not to normal

I have an appt soon w/my Neurologist and am going to ask about this. Thanks for the info.

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