On a totally unrelated subject. - My MSAA Community

My MSAA Community

9,441 members21,224 posts

On a totally unrelated subject.

RoyceNewton profile image
46 Replies

I like a good strong cup of coffee in the morning. Spiked with Turmeric and some coconut oil. Maybe a little chocolate if O have some of that at hand. This not to say that a good strong mug of tea with milk and a little honey does not astray. My trigeminal surgeries really limit my tasting ability ao a strong aroma is a good thing. At least then I have another sensory input that reminds me of what things should taste like.

I still like a good lukewarm cup of coffee. What about "YOU" what do you really like?

Royce

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
46 Replies
Kenu profile image
Kenu

After two and half years I am very fortunate that some of my taste buds are coming back after chemo and radiation. Coffee has been one of the things to return and what a happy feeling 😁. Hot coffee ☕️ and a little creamer and I am set👍😊. I just hope other things start to have some taste again 🙏. Ken 🐾🐾

RoyceNewton profile image
RoyceNewton in reply toKenu

ahh how you miss the simple things in life

greaterexp profile image
greaterexp

With a change and decrease in tasting, my appetite isn’t very keen. But put a fabric store in my path, and I’m thrilled.

kdali profile image
kdali

The best thing about my day is V’s excitement when I get her up in the morning. I use to really love lattes, but I think my taste buds are hibernating.

jimeka profile image
jimeka

I can still taste chocolate, but otherwise everything is bland and unexciting 🦋

greaterexp profile image
greaterexp in reply tojimeka

You now have a great reason to eat only chocolate!

jimeka profile image
jimeka in reply togreaterexp

Who needs a reason 😂 🍫

kycmary profile image
kycmary

Royce I like a good cup of coffee I also like a good cup of herbal tea.

I stay away from caffeine products. Coffee and tea. 😊

RoyceNewton profile image
RoyceNewton in reply to

your loss mate, but if you can not taste it, there is always pretending I guess

in reply toRoyceNewton

absopure.com/blog/caffeine-...

🤐

healthline.com/nutrition/ca...

🤐

kycmary profile image
kycmary in reply to

Supremo herbal teas have NO caffeine in them just lots of flavor, you should try one or two find one you like. Mary

in reply tokycmary

I did not knew this!

rjoneslaw profile image
rjoneslaw

I haven't lost my ability to taste. But I do get in moods where I need salt and a good crunch

RoyceNewton profile image
RoyceNewton in reply torjoneslaw

a good salted chocolate perhaps, with nuts

rjoneslaw profile image
rjoneslaw in reply toRoyceNewton

No more like Doritos spicy nacho, chips, or food that has a fried batter on it ie pork chops chicken Sometimes with the food I eat the crunch and come back for the meat later

falalalala profile image
falalalala

Coffee in the AM. Sometimes tea in the evening.

Mssailor profile image
Mssailor

I have lost my sense of smell due to MS, so I am not sure what a lot of things taste like. I like a good cup of chamomile and lavender tea in the morning. But, I am not really sure if it tastes good or just feels good to have a cup of hot liquid in the winter.

RoyceNewton profile image
RoyceNewton in reply toMssailor

well understood, that I way overspice most things, do not like hot chilles or jalapenos though weird but that is RRms for me.

kycmary profile image
kycmary in reply toMssailor

In that case remembering how good it did taste probably helps a lot, it does me to remember how good something was then I enjoy it the best I can.

anaishunter profile image
anaishunter

One cup of coffee, first thing in the morning, is my ritual. I've tried many times to cut coffee during the day and replace it with herbal tea (ginger, hibiscus, mint, and many others). But that first cup of coffee is a must. Without it, my day does not start, and I'm useless for hours.

kycmary profile image
kycmary in reply toanaishunter

Oh yeah I got to have 1st cup of coffee some times 2.

dailygrump40 profile image
dailygrump40

I have to thicken my liquids so I haven't had coffee for a long time. I could go for a cup. I like my coffee like I like my women black and sweet and NO I'm not black. I just like the saying. I've gotten some pretty good replys from colored truck drivers when I'd tell them that.

RoyceNewton profile image
RoyceNewton in reply todailygrump40

Back in the day I very much had the pleasure of some young ladies that were black & sweet, it was well worth the effort, o and I come in half-caste.

RoseySawyer profile image
RoseySawyer

I absolutely LOVE LOVE LOVE iced coffee!!! 😍 Anything to warm/hot to drink numbs my mouth and my taste buds leave for a while 👀, so anything I eat after something warm/hot doesn't have a taste to it for a few hours. D*mn MS. 😊❤🌷

quegh profile image
quegh

"Real Chai": In one pot bring some milk, cardamom seeds, and a little saffron to a boil. Shred a chunk of ginger and add it to another pot with water and bring it to a boil. Immediately add the black tea and black pepper. That is enough to get the tea out of the tea so mix it all together in one pot. Bring that pot to a boil 3 times. Add sugar to taste. inflammatory, high neurotransmitter, smells awesome, and tastes grea.t

guitarguy profile image
guitarguy in reply toquegh

Now that sounds good! And interesting as well. Any further info you can provide as in specific products would be very much appreciated. You wouldn’t by chance have written this down at some point would you?

Dave

quegh profile image
quegh in reply toguitarguy

It is really long so I sent you a message with details.

guitarguy profile image
guitarguy in reply toquegh

Thank you very much! Much appreciated. I’ve found that getting/making a good to great Chai is more challenging than it might seem.

quegh profile image
quegh in reply toguitarguy

Hahaha absolutely! The problem is that once you make real chai yourself, that, you will never, ever like powdered chai again. I have never found a single shop that makes real chai. In those cases, a latte is better since it is 50% milk.

guitarguy profile image
guitarguy in reply toquegh

I couldn’t agree more. Thanks again.

RoyceNewton profile image
RoyceNewton in reply toquegh

I am going to try that this year on my summer trip

quegh profile image
quegh in reply toRoyceNewton

Then I am going to clean up the recipe and post it soon.

leking1 profile image
leking1

I'm with you....love that hot, black coffee in the morning!

guitarguy profile image
guitarguy

Well, it goes something like this. Years ago I was served a coffee drink in a restaurant after having dinner with someone else’s wife (just kidding on that part 🤫). That was a turning point for me. It was simply bliss. Never having been one to leave well enough alone I started experimenting with with different concoctions. The final result was as follows: 1 large cup of strong coffee, preferably Kona Peaberry, 1 shot of Grand Mariner, 1 shot of Kahlua, and finally one shot of Baileys Coffee flavored, which to my consternation has been replaced by Mocha flavored Baileys. Add some cream and top with whipped cream. I submit this as the perfect Winter drink. Oh, you’ll need one last thing. Someone to help you get to your room. Don’t knock it till you’ve tried it, trust me. Never order this in a restaurant or anyplace away from home as they charge you for three premium ounces of liquor which can get pricey. I haven’t had one of these in a long time but I have a promise to keep with a woman I worked with for 25 years and ended up hiring. She took ove my spot (at my strong suggestion) when my disability ran out and I was summarily terminated, and who became my best friend. She and my wife also became good friends as well. Neither of us have any family locally so we tend to spend the holidays together. I promised her one this Winter. She can use the guest bedroom since there’s no way we can let her drive after one of these. I haven’t had one of these in a while since I pretty much lost my taste for alcohol a long time ago. My wife is the same, gave it up over 25 years ago. And yes, I am a coffee snob so the Peaberry is only a rare and special treat these days due to cost restrictions. But OMG! Waking up to a pot of Peaberry brewing is a very special morning.

Anyway, try it. You can thank me later.

Otherwise I enjoy a variety of teas hot and cold as well as a steaming hot Chai Latte.

Dave

falalalala profile image
falalalala in reply toguitarguy

Sounds good!

in reply toguitarguy

Love your flair for story telling Dave. I used to like to drink Baileys and watch it snow, but I gained 20 lbs one particularly snowy winter and had to give that up. That and the fact that I can't drink alcohol anymore - 1 thimble full and I'm reeling like the proverbial drunken sailor because of the MS. Oh well. It was fun while it was doable.

stepsforNeeC profile image
stepsforNeeC

Iced caramel Latte are yummy as my once in a while guilty pressure:)

RoseySawyer profile image
RoseySawyer in reply tostepsforNeeC

I just had one of those Friday. 😊❤🌷

carolek572 profile image
carolek572CommunityAmbassador

Just plain old orange pekoe tea for me, and DD vanilla chai latte, but being lactose intolerant, these are but a memory. I do make it myself with lactose free milk but it's just not the same. I really enjoy what others in the forum have said about their favorite hot beverages! :-D

I've tried to give up coffee, thinking maybe the caffeine is a bad thing with MS. I've given up gluten, dairy, eggs, rarely eat sugar. I've tried decaffeinated coffee and it's not the same - the bite is gone. I've tried switching to tea. I like the idea of tea - sounds so healthy, so many varieties. And I do drink herbal teas in the evening mostly. But nothing replaces that morning cup of coffee. I buy organic beans, grind them (love that smell!!!), and drink it in the morning, black with a little coconut oil in it. There's nothing else like that wonderful coffee smell in the morning and that warm cup to get you going. Even if it's all in my head.

falalalala profile image
falalalala in reply to

How long have you been on your diet and did it take long to notice a difference in the way you feel?

in reply tofalalalala

I can tell a difference if I start eating sugar (like when cheating on holidays). I notice an immediate difference if I eat dairy, especially dairy plus sugar, like ice cream. My legs go numb. I also don't eat MSG - same reaction to that. The gluten I've mostly noticed in how my bowels function, and gut is related to healthy immunity. Eggs I'm not sure about, but I've gotten used to eating this way and if anything gives me any edge at all I stick with it. And with this disease we have so little control over anything that if doing an anti-inflammatory diet helps in some small way it's worth it to feel like I'm doing something that helps, even if it's just a little. What I do is based on the Wahls protocol, though I admit I have a hard time getting in all the veggies, but I do the best I can. Exercise is an important of it too, which I struggle with. Mostly my exercise is a stationary bike, some stretchy bands, hand weights. And I don't do nearly enough. But I figure whatever I can do on the days I can do it, something is better than nothing.

falalalala profile image
falalalala in reply to

I completely agree. I am still in the process of changing my diet.....and it ain't easy.Lol I do exercise already,so I'm good there. The diet I am looking at is McDougall's .I think it might be based on the Wahl's diet.Thanks for answering.It's good to hear of someone doing well with it!

Jazzihorsecat profile image
Jazzihorsecat

☀💗❤☕☕I have done a Jazzy-Buck's!!😃😄😀😊LOL! It has Tumeric, my Green's powder w/ spirilina, chlorella, alfafa sprouts, organic sprouts barley, Organic ashwagga roots, & veggies spinache, kale, & kiwi... Then dark 70% choco🍫, cinnamon, ginger, & flax nut milk, chocolate almond milk, all in a blender bottle, oh & morning thunder tea is a great. Coffee substitute...👍😃😄Gotta have my Jazzy'bucks! Great post Mate!☕👍Love Yaall!❤---Jazzy🌹💜

RoyceNewton profile image
RoyceNewton in reply toJazzihorsecat

double wow

Not what you're looking for?

You may also like...

Hand dropsy?

A new symptom?? Life isn't boring, that's for sure!! My new resolution was to laugh at everything...

Unnumbered post Sleep your answers 2 Apr 2020

I really really dislike when my very bad habits are infringed upon. I was hoping for a different...
RoyceNewton profile image

Post 751 a choice

Good day, Relapsing-Remitting ms (RRms) family. I hope the day sees YOU well and happy, at least...
RoyceNewton profile image

Amandatine for fatigue; anyone else on this?

I started Ocrevus at the end of May 1st ½ injection and 2ns early June. My fatigue has gotten...
JMWCO profile image

Another great day to be alive

G'day (hello) Relapsing-remitting(RRms) family. Another great day to be alive. I would like to...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.