has this happened to anyone else&what ha... - My MSAA Community

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has this happened to anyone else&what have you done,if there is anything?

pamgarner profile image
23 Replies

my legs were really fatigued but I decided I just had to vacume.After 1 room I could not stand up I was walking knees bent and staring at the floor,could not straighten my back,I am sure a new muscle weakness, is dr. going to send me back to physical therapy?yikes!

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pamgarner profile image
pamgarner
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23 Replies
rjoneslaw profile image
rjoneslaw

When my legs have fatigued they just completely gave out and down I went. I wasn’t able to stop it and I had to just sit there til they were ready to move.

I now know the signals when it’s about to happen so I go find a seat and sit there or I grab hold of someone and have them get me to a seat

It’s all fatigue did you really hurt your back to the point that after the fatigue subsided that you were still in pain? The pt may have to happen or rest and see if the pain goes away.

pamgarner profile image
pamgarner in reply to rjoneslaw

I guess I just get tired of this disease calling the shots.thanks

greaterexp profile image
greaterexp

Sounds awful! I'm sorry and hope you get your legs back under you quickly. I think I would see an opportunity to give up vacuuming.

pamgarner profile image
pamgarner in reply to greaterexp

oh yeah baby, looking for years for an excuse,awesome benefit!

greaterexp profile image
greaterexp in reply to pamgarner

Remember, it's not "excuse," but "reason." Huge difference!

SueAB profile image
SueAB

pamgarner, You simply ignored what MS was trying to tell you and that was "If you don't sit down for a minute, I will sit you down!" I have lived well with MS for over 30 years and that happened to me several times before I recognized the sign and now I sit as soon as I feel that weakness rear it's head.

pamgarner profile image
pamgarner in reply to SueAB

that is probably one of my biggest faults, I am so bull headed, but you are right

Raingrrl profile image
Raingrrl

I second what SueAB said. I had to learn to recognize that my legs were about to give out and then give in until they regained energy/strength. I hate to give in to anything MS dishes out but there are times I have to admit that it’s safer for me to do that. I fall enough as is.

pamgarner profile image
pamgarner in reply to Raingrrl

I just want to do what I want to do,you are right,gotta go with the flow!

Raingrrl profile image
Raingrrl in reply to pamgarner

Trust me... I just want to do what I want to do when I want to do it too. I have scars to prove how stubborn I can be. So now I try to reel in my stubbornness and listen to the cues my body is sending before it’s too late. Not always successful though.

goatgal profile image
goatgal

pamgarner One of the benefits that MS can bring us (and yes, I think this is a benefit) is the need to listen when our bodies try to tell us something. Ultramarathoners may be able to hit the "wall" and go on through, those of us with MS know that if we hit the wall, we will fall down. Learn to listen to your body: when your legs begin to quiver or tremble, they are telling you it's time to rest. When mine do that, no matter what I am doing (standing at the sink washing dishes, raking leaves in the yard), I stop and rest for a bit. The chore will still be there when I come back to finish.No need to work yourself into exhaustion.

pamgarner profile image
pamgarner in reply to goatgal

seems as though recoup time is getting longer,once the vacume is out just wanted to finish,oh the things we wish for with the disease.....thanks

goatgal profile image
goatgal in reply to pamgarner

pamgarner Oh, believe me, I do understand. Tasks now take me almost two days which once would take a Saturday morning. But I console myself: I am still here. The chores and tasks will always be here and I can still accomplish most of what I need or want to do. It's still better than the alternative!

Doubled51 profile image
Doubled51

I’ve gone they this many times I get so weak that my legs are bowed and knees bent and bent at waist. I have also fallen many times before I learned to just give in and sit down for a little while.

I was shampooing our den Saturday and kept pushing and luckily I fell on the couch.

So be careful and listen to your body and just sit down and rest when this happens.

Donnie

pamgarner profile image
pamgarner in reply to Doubled51

So I am not alone ,nobody wants to be in this company, glad I am not alone and you know thank you

Juliew19673 profile image
Juliew19673

Yes - getting to know your body's signs is skill that you learn. I'm still learning, on Christmas Eve I got home, after a short day and had to drag my right leg the final 10ft. Put myself to bed and awoke a few hours later and all was working once again.

pamgarner profile image
pamgarner in reply to Juliew19673

I want to do what I want to do,when I want to do it! Doesn't work that way, I refuse to give in but I need to listen to my body more thanks

falalalala profile image
falalalala in reply to pamgarner

I have the same problem . I do not quit when I should.

Look at the bright side though.That same bull-headedness will power you through a lot more than just this.

It's worked for me so far :)

Ikeeptrying profile image
Ikeeptrying

Sometimes when I'm tired but still walking my body just wants to lean forward and I start going faster and faster. My husband tells me to stand up straight but I can't. When I manage to stop I rest for a minute and then try again. It's horrible. Sometimes I think I'm going to hit the floor with my head. I'm going to start PT and maybe she can help. Could it be a particular set of muscles getting weaker? Or my brain sending screwy signals? Hope it's muscle related, don't think I can help the brain. I love this site. Lets me know I'm not alone when I'm just certain no one else has this problem.

pamgarner profile image
pamgarner in reply to Ikeeptrying

I have been to PT, I do believe it is our core muscles and back muscles, that Is fixable sort of,this stuff has me doing all kinds of things I don't like, like exercise! thanks

mrsmike9 profile image
mrsmike9

The vacuum can wait. It will always be there. You have to be watchful for signs and follow what they're telling you.

pamgarner profile image
pamgarner

I guess I was having one of those days, I want to do what I want to do no matter what!I was going to show this old disease, but it won for now.........thanks

TonyiaR7 profile image
TonyiaR7 in reply to pamgarner

It didn’t win. You just needed a rest. A slight reprieve. My legs seem to be bent do to MS and osteoarthritis. I may have contracture in right knee. So I am going to PT to strengthen. I am bless that my husband let me have a cleaning person every other week. But I know how you feel. When I make a mess on the floor, I want to vacuum it up. Don’t be hard on yourself. One day, one moment at a time.

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