DISABILITY: Not sure how to go about this... - My MSAA Community

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DISABILITY

REDLIPS44 profile image
REDLIPS44
β€’37 Replies

Not sure how to go about this. I have had MS for 19 years I now use a walker 24/7 and was just diagnosed with small cell lung cancer. I also have labored breathing hard to get around. I am very thankful I have help. Plus my daughter will come up once I find out the treatment plan for the cancer. Also waiting on an answer to see if Ocrervus can still be taken if I am going to have Cemo.

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REDLIPS44 profile image
REDLIPS44
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37 Replies
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dailygrump40 profile image
dailygrump40

Get a lawyer. With the issues you have at hand I feel its pretty doubtful you'll be denied if everything is presented properly and you might not have to wait an eternity for your hearing if they read your reasons why you're filing for disability. Good luck.

REDLIPS44 profile image
REDLIPS44β€’ in reply todailygrump40

Thank you, wanted to work as long as I could, but it takes so much out of me now, I can only imagine what it will do with Cemo.

jimeka profile image
jimeka

Redlips44 I have been thinking how to reply. I am lost for words. There are a few people on this forum who have been dx with both ms and cancer, and if you talk to Kenu he has come a long way. He will maybe be able to answer your question, but the best person to speak to is your doctor or neurologist. Please keep us informed as to how you go on, and please know that you can vent on here at any time, hugs Jimeka πŸ€—

REDLIPS44 profile image
REDLIPS44β€’ in reply tojimeka

Thank you so much

Kenu profile image
Kenuβ€’ in reply toREDLIPS44

The main thing is get your pcp, neurologist, oncologist and any other doctors on the same page. Get them to write you or fill out a disability form and then fill out SSDI paperwork and get it submitted. I did not need an attorney as it was well documented by doctors πŸ‘. Took about two months for response with approval and then had to wait for the five month waiting period and it started πŸ™πŸ‘. In the meantime I went on Obama Care for twenty five months till Medicare kicked in. Any questions send me a message and I will glad to help πŸ‘πŸ™. Ken 🐾

REDLIPS44 profile image
REDLIPS44β€’ in reply toKenu

Thank you so much. I just don't have the energy or patience for the paper work or filling out forms

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

tell your daughter you need help. Maybe she can come home sooner to help. It was very hard for me to ask for help. It does get easier over time, but you need the help now, so ask for it.

REDLIPS44 profile image
REDLIPS44β€’ in reply toMS_Indestructible

I have help now, I want her to wait until I tell her my treatment plan Tuesday, it breaks my heart that she will be leaving her 10 year old son.

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

it is only temporary, and you need the help. It will be okay

REDLIPS44 profile image
REDLIPS44β€’ in reply toMS_Indestructible

well she is very addiment about coming down.

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

good for her, you raised her right. It is your turn to let her take care of you. Let go of the need to take care of her, at least for now.

REDLIPS44 profile image
REDLIPS44β€’ in reply toMS_Indestructible

It's just hard. I am all she has left, her Dad died when she was 15.

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

more reason to let her take care of you. She appreciates you and wants the time with you. It will be good for both of you. You will not be an undue burden to her.

greaterexp profile image
greaterexp

As always, you've been given great advice here. I'm so sorry to learn about the diagnosis of cancer and that you have another hurdle to cross. I hope you do see a lawyer very soon to talk about disability.

Please keep us updated as to how you are doing with everything. I wish we could fix things, but we have soft shoulders.

REDLIPS44 profile image
REDLIPS44β€’ in reply togreaterexp

VERY SWEET THANK YOU SO MUCH

Peruzzot profile image
Peruzzot

Sorry to hear about the diagnosis of cancer. Let me know if you need anything I'm just the next town over from you. Do you still have my number?

REDLIPS44 profile image
REDLIPS44β€’ in reply toPeruzzot

I DO AND THANK YOU SO MUCH

carolek572 profile image
carolek572CommunityAmbassador

I am sad to hear of your diagnosis of cancer. greaterexp has said it best, we are all here to provide you with any 'soft shoulder' support that you may need.

Keep Smiling and Be Strong,

Carole

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply tocarolek572

Vshoulder?

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toMS_Indestructible

Yes, and because of you, I have started using a 'v' in front of the words hugs and smiles! Thank you! :-D

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply tocarolek572

no! Thank You, I feel honored. vhugs too U

REDLIPS44 profile image
REDLIPS44β€’ in reply tocarolek572

what does it mean?

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

V or v in front means virtual

REDLIPS44 profile image
REDLIPS44β€’ in reply toMS_Indestructible

ok Thank you so V to all xoxoxoxoxo

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

fantastic, you my dear are awesome!

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toREDLIPS44

vhugs and vsmiles to you REDLIPS44

REDLIPS44 profile image
REDLIPS44

Thank you for the kind words

kdali profile image
kdali

So sorry about your cancer diagnosis πŸ˜” πŸ’

REDLIPS44 profile image
REDLIPS44

Thank you

sorry for the cancer dx. It is just your time to stop working and to enjoy as much of the life you have now.

REDLIPS44 profile image
REDLIPS44β€’ in reply toMS_Indestructible

it would be a lot better if I could ENJOY it. UGH

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toREDLIPS44

you will, it just takes time getting used to the "new" you. Friends have a hard time when I tell the that I am the happiest I've ever been, they say but you are disabled and have so many health issues! Well I have found that both feelings survive with each other. Yes, I wish I didn't have my health issues, but without them I wouldn't be as happy as I am. Go figure!

REDLIPS44 profile image
REDLIPS44

your correct. Thank you

erash profile image
erash

Wishing you the best 🌈

IFwczs profile image
IFwczs

Please let us know how you are doing when you have a chance. Have you been through chemo?

TracyBelle profile image
TracyBelle

unitedpatientsgroup.com/uni...

The US govt has known that the CBD in cannabis kills cancer cells for decades. At this time, most states allow Hemp derived CBD oil, because hemp naturally does NOT contain THC. If you live in a compassionate care state, CBD oil not derived from Hemp is maybe more effective. I personally have seen CBD oil work when my mother in law was diagnosed with lymphoma in 2014. Her Dr was in shock after the first scan, and said β€œkeep doing what you are doing.” He knew that she was taking cannabis oil, and even though it was illegal in Arkansas, he was 100% supportive. The results have been validated over and over. Please consider this alternative treatment IN ADDITION to anything that your oncologist treats you with. It is NEVER meant to be a substitute for traditional medicine, and has even been shown to make chemo therapy more effective.

REDLIPS44 profile image
REDLIPS44β€’ in reply toTracyBelle

Thank you so much

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