Dx'd in late 2016. I've been on Copaxone and Aubagio. Just got word that insurance has approved Rituxan after a 6 month denial and appeal. Good thing since I've had the oddest sensation that my knees are numb, but I can feel when I touch them. Have any of you experienced this? Maybe a new exacerbation? Appt with Neurologist tomorrow.
Hopeful,
KimO.
I hope you get some answers and I hope the Rituxan works at stopping the progression of your ms. Let us know what they say about your numbness, blessings Jimeka 🦋
That’s great that you see your neurologist tomorrow. I’m sorry about the new symptom. Let us know what you learn from the doctor. When will you start rituxin?
I will! The rituxan was ordered by my rheumatologist for the arthritis with agreement of the neuro. We'll have plenty to discuss today!
Hi latellama,
I have experienced a head-to-toe numbness since I first started having symptoms. I can feel touch but it's dulled compared to what it once was. Numbness is a common symptom of MS but I'm not sure if my version if it is common.
Hi latellama LTNS! How is the teaching? I hope your Neuro can help with the numbness that's going on. And you won't have to take the nerve conduction test!! 🤗💕
J🌠⛄
Work has been easier as the MS had stabilized. I've been away as my partner was dx'd with stage 4 colon cancer 1 year ago. It's been a roller coaster. We find out next week if the treatments did the job so he can be restaged. Good to see you all again!
The toes on my right foot feel like this. It's hard to explain numbness to people when you can still feel sensation 😜
I've had complete block-of-wood numbness before, so its hard to realize that this is numbness too. Thank you for reminding me.
My right leg and arm at that way all the time😠. When I am doing things I will see drops of blood and then look around to see where it is coming from? I have to be very cautious and think about it all the time when walking 🚶♀️ as I don’t know where my foot is? That’s usually when I have a fall when I get lazy and forget to think about it 😞. Hope things go well for you 👍🙏. Ken 🐾
I experience numbness alot when I'm overheated or touching something hot like hot water or if I'm very tired and I also get a fire feeling on my feet when I'm on them to long throughout the day. I haven't had that feeling in a long time but it sucks when I do. 😕😊❤🌷
latellama Funny that you post about this because I was mentioning to my husband this morning that my left knee felt all puffy and swollen but looking at it, it looks perfectly fine. I am curious as to what your neuro has to say. Keep us informed.
Be Strong,
Carole 
Sometimes my knees feel like volleyball, but they don't look swollen.
starlight5 ...sounds like you have the same numbness that I have. Its only in my legs from just below my knees and in my feet. Its like this deep numbness because I can still feel some things on the surface. I can feel light touches or the pin poke the neuro does during my routine exam. What I can't feel is the vibration from the tuning fork he also uses in the exam. So strange. He told me at my last exam that he thinks that the numbness in my feet contributes to my problem with falling. Its like I'm missing some sensory input.
When assessing sensation, vibration is lost before sense of touch. It’s often what we check with diabetics if sharp/dull is still preserved or we check what’s called 2-point discrimination. So your vibratory deficit makes sense.
Thanks erash ! I didn't know that. Its the weirdest thing to be able to feel some sensations but feel numb at the same time. I call it schitzo sensory perception.
Hmmm...I guess I have that too, schizo neuropathy and the odd thing is it can vary from day to day. Some Days the frozen coldness goes from my toes to my knees and other days it’s not there at all
Update: Neuro says my symptoms are probably related to sleep deprivation since symptoms don't last more than 30 ish hours. So referral to urologist to eliminate the need to get up every 2 hours. Then a sleep study. Huh. MRI before I start rituximab. So now we know. 
Glad you got some answers. Hopefully, the urologist and other tests will get you more answers and back to feeling 'normal' 😉 Keep us updated when you can.
Jessie
congratulation on the Rituxan approval. I've had 8 infusions of Rituxan and after my 7th one my neuro told me my ms is now stable. No new lesions and no new activity. I only have ms and use Rituxan as off label. I am curious if Ocrevus would work for arthritis as an off-label use, lol, probable not since they have Rituxan for that. You mentioned you've been on Copaxone and Aubagio, is your neuro taking you off any of these since Rituxan works so well for ms? My best wishes for your partner, I hope his cancer goes into remission. I have numbness in my legs and both feet, I didn't find Rituxan to change that but it may have stopped it from spreading. ~terry
Curious, how often r ur rituxan infusions? Is it every 6 mos like Ocrevus?
yes, once every 6 months
Every 6 months. 😊❤🌷
Yes, I will get to be off all other meds. This makes me so happy.
I don’t really have stiffness or spasticity in my legs. I do have neuropathy in the same numb areas in my legs and feet. I take gabapentin and have acupuncture as remedies. They help the neuropathy but not the numbness. One really weird thing that happens is that sometimes I get the sensation that my foot is slipping or skidding a little when I walk. It’s as if the surface is wet but when I look down its dry. It’s so strange.
Hmmm...I guess I have that too, schizo neuropathy and the odd thing is it can vary from day to day. Some Days the frozen coldness goes from my toes to my knees and other days it’s not there at all
At this moment my feet and all my toes feel frozen. 😕 Hopefully they warm up. 😊❤🌷
Mine is a strange numbness as well. I can feel a pin prick but it's dulled. also pain sensation and cold sensation is reduced.
in the last year, I have pain when my hands or feet get hot or cold. That is very annoying. Also, i get burning sensations in my hands and feet. Strangely, those sensations started after i began after I started the aubagio so I'm not sure if it's related to the meds because that is listed as a side effect.
latellama Numdness is, generally, an initial symptom for MS. Treat your feet with any massage equipment, to remove the numbness "feeling".
Pinch With Injection?
I'm sick of being sick
MS flare
Amusing, new symptom...
