I'm sick of being sick

[CamsterDog]

I've had multiple sclerosis since I was 19. I'm now 25 and I'm just done. It's not fair that this has happened. I also have autism, severe depression, and temporal lobe seizures. My health is quickly spiraling downwards. I haven't been able to use my right hand fully since May. It's harder for me to walk and I've been falling a lot recently. I really want help to get better. I've been told to go vegan, which I'm not opposed to. A lot of that food is pretty good. I've been told to exercise but even walking gets real painful. Maybe I need to go back to a physical therapist. I'm a music major and I want to enjoy it again. Thanks to anyone who reads this.

[falalalala]

<<HUGS>>

[RoseySawyer]

I'm sorry your feeling that way. I feel pain on and off daily. So far it's tolerable. My balance is okay but some days seems worse. This disease is crazy. I understand the depression part. I to suffer from that as well as bipolar, adhd and anxiety. 😞 It all takes a toll. I hope you start to feel better. I like to walk, listen to music and do things that keep my mind off of everything that's happening in my body. My family also keeps me busy so that helps alot. I'm sending hugs. 🤗♥️🌹

[greaterexp]

I’m sorry for the weight this disease has placed on you while still so young. I think you are right on target with the physical therapy idea. Physical therapists and occupational therapists may be able to give you some great ways of preserving function and strength, as well as some wonderful ideas about adapting.

You’re in the right place for understanding. We all “get it.”

[rjoneslaw in reply to greaterexp]

I agree with greaterexp

[Midgey_Midge06 in reply to rjoneslaw]

Ditto

[Kenu]

Hugs and prayers 🙏😉 Ken 🐾🐾🎄

[Kat7797]

Maybe a new approach in listening to music would be a good start to knowing what you love about music. If I remember correctly Beethoven was deaf. The most hurt can make the most beautiful music peaces. Be optimistic. It really helps.

[RoseySawyer in reply to Kat7797]

☺️♥️🌹

[jimeka]

A music major, what instrument do you play? Only a suggestion, but why don’t you take time out each day, listen to your favourite piece of music, and sit back, relax and let the music teach you to forget about your problems. Hope it works, Blessings Jimeka 🤗

[CamsterDog in reply to jimeka]

Hi and thanks for your response. *pulls up PowerPoint* I play cello, piano, clarinet, French horn, voice, percussion, and bass guitar. Yeah being a music major, I thrive on listening to music. I love to sing in the car. It's very relaxing.

[jimeka in reply to CamsterDog]

Wow, multi gifted and talented. You must enjoy it. 👍

[Peruzzot in reply to CamsterDog]

Wow!! That's a lot of instruments! You can be your own band! COOL!!😎

[goatgal]

There are so many good ideas here that may help. Unfortunately we can't work miracles or arrive to change your situation. Only you can do that. Start small and be persistent. Yes, it will be difficult and slow but you can do this because it's your life and you are in charge. Go vegan one or two days a week to see how you like it. Find a good physical therapist who understands MS. Keep searching until you find the right one. Find inspiration by artists whose disabilities have forced them to draw or paint with their feet instead of their hands. If you are a musician, look for a way you can make music. I've played the piano since I was 5 years old. I played better at 14 than I do now at 79 but I play for me, for my pleasure, for my soul. Jacquelyn Dupree played cello despite MS. I believe Istak Perlman also has a disability. Gifted artists can rise above their handicaps. Believe in yourself, believe in your possibilities. Rise! Love yourself.

[goatgal in reply to goatgal]

Itzhak Perlman = my spelling was bad, but memory not so bad. He plays violin while seated because he had polio as a child : he wore leg braces and used crutches. He is still active but now uses a mobility wheelchair.

[CamsterDog in reply to goatgal]

Thanks! I do have a physical therapist that I've seen before and he's great but we lost touch in 2016 because of different views politically but I've set that aside and I plan on calling his clinic today. We don't have to be buddies again, I just need help to get better. And yeah, with a vegan diet, I plan on just taking baby steps with that. I still love burgers and steaks. Lol

[Peruzzot in reply to CamsterDog]

A friend of mine who plays team trivia with me is trying to go vegan. But she can't give up cheese and fish yet...mostly cheese though.

If you do go vegan or vegetarian try it only a few days a week to try it out.

[pamgarner]

you are correct.this disease is certainly not fair!I also have different things to deal with healthwise.It is so difficult some days.this is a good place to vent,I do it alot!sometimes I get up and put 2 shoes on (some days)and try to start out with MY plan and as you know we have to change plans often.if nothing else it does makes us more flexible.who said we don't have special powers?

[RoyceNewton]

6 years, that is a long time, I have had mine 20+ years. So long I forget exactly how long. Actually I really do not care. I have it, it is with me until I die, do I just live with it. I feel regrets and what if's only hurt a depress me. What can I do to make what I have better. I stumble, but still get where I am going. Fall, but I eventually get back up. I seek help and advice on many things, I even listen sometimes. There are more than one way to make my life good, I am going to find everyone of them, why do "YOU" not try to do the same. Life is worth living and "YOU" can make it that way whatever ails "YOU.

That does sound like a lot of medical conditions, "YOU" must be tough.

[mrsmike9]

I wish there was more than a heart to click on. Please know that my heart that I clicked was intended to be a hug...

[IFwczs]

I am going to private message you.

[DIsneyQueen]

Dear CamsterDog, please know you are in my thoughts and prayers 🙏🙏. This disease sucks and I am sorry it seems so overwhelming for you. I hope you can use your music to help bring you peace. Stay strong, we are better than what MS throws at us

[bxrmom]

This disease is anything but fair. I try to not think about the things that it has taken but the things that I can do. If I concentrate on what I can't do, it depresses me. I have had MS since 2006. Maybe talk to your doctor about doing some PT to help with walking and keep from falling. The depression part of MS can be hard as well. If not on an antidepressant maybe talk to your dr about getting on one. Gentle hugs to you. Vent anytime you would like!

Jessie

[CamsterDog in reply to bxrmom]

Heck, I've been on and off antidepressants for the past 10 years. Yeah, it all stinks but I'm still here. I've felt extremely suicidal before but there's that little 0.00001% of hope that I still have. Life has handed me a whole deck of bad cards but I still wanna contribute to the world. I plan on getting my masters in music therapy. I wanna help others who may be going through similar situations.

[Midgey_Midge06]

Hugs 🤗🤗🤗🤗

[2littletime]

My heart goes out to you...too young to be so sick. Try the therapy, who knows, it might help. I will keep you in my prayers😇

[Peruzzot]

Try the physical and occupational therapy, they can help find ways to work around any disabilities you have. Also ask about pool exercising that you can do to build up strengths without worrying about falling and maybe have less pain while doing it in the water. I tried a water aerobics class once before I had MS and it kicked my butt. The only classes offered around here are only done while I'm at work. So I just walk or use my gazzell. I walk slow but I can still walk. You just need to find something that works for you.

[CalfeeChick CommunityAmbassador]

Stay positive, keep taking good care of you.. We are here for you, ask or post here and we will try to guide you through this MS journey

[leking1]

I am so sorry that you74 are having to deal with all this . I am glad that if you have MS, you are in a world where there are multiple treatment

options. Hopefully, a cure will be found in your life time! When I was diagnosed in 1982,

yes, back in the dark ages, there was absolutely nothing! I am so proud of you for setting a goal, your Masters Degree in Music, and Helping People with Disabilities, whether physical or emotional. I worked at colleges for

most of my adult life. The energy can be uplifting, wild, or draining. Find what you need for you.We are so glad that you have joined us. Come by anytime, feel free to say whatever is on your mind...we understand. We KNOW!

[carolek572 CommunityAmbassador]

vHugs go out to you, CamsterDog