They never happened. All the images that I saw when I was a newly diagnosed(Newbie) the horror tales that I heard They never happened. They told me that Trigeminal Neuralgia was nicknamed the suicide disease. It hurt, it really hurt, but I say this today. So I guess I screwed up as I am very much alive.
Just because somebody says oh poor you, or that your days are numbered. It does not mean that is what "YOU" have to do. "YOU" can always beat the odds, be the exception to the rule. The only thing that is stopping "YOU" is "YOU. This today, in 2018 is a very DOable disease. Relapsing-Remitting ms (RRms) is not more than a sharp unexpected turn in the path, that is your life. Look and find within "YOU"the strength, the "WILL" the "GRIT" that yells at "YOU" NOT ME, NOT ME I CAN DO THIS, I WILL DO THIS, I AM DOING RRms. Get your picture on a wall. A picture that people look at and say, I can do it as well. She did her ms and did it very well. Be a light that others look to and think if she did it there is no reason why I can not do it as well. Yes, I can it is within me. I have that strength, nothing beats me.
This is only RRms and I have got this, believe it. "YOU" will bend, but "YOU" will not break, "YOU" HAVE THIS condition. Believe in yourself, others have, so "YOU" can do RRms,well. "YOU" are the special one. Your picture is on the wall. You "CAN" and I am glad to have known "YOU"
Royce
Thank you for you.
Written by
RoyceNewton
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Royce, please just remember that MS is very individual and affects each and every person dramatically and completely different. I am very glad you have never had to experience the Dark Side of MS. Unfortunately not everyone is that lucky. And the longer you live with MS the more likely you are to gradually experience worsening disabilities that are or can be difficult to live with day in and day out. Fancy.
Generally, I take your comment with the good intention it is meant, but please never tell me I do not know the dark side of ms. I understand that you likely read a great deal on this forum but I will take this time to talk to you directly. Do you know what trigeminal Neuralgia is? Usually, it is on one side of the face. I have enjoyed it on both sides, 3 total surgeries so far. I think my od record so far is three or four, I try not to remember. I am pretty sure that this year is my 20th anniversary of ms. My dear, I most certainly have seen the VERY VERY dark side of ms. You managed to catch me at a bad moment which is why I write this now.
Understand my intentions are only ever o give somebody a little strength on a dark lonely night.
Royce you have said a mouth full & I agree with you 100%. none of us(humans) have an expiration date stamped any where on our bodies, I wish the "good intention people" would STOP & think before they say something! But they don't. that's my rant for now. Mary
Royce, I am currently living with the left side of my face bring paralized so I too have been through and understand MS more unpleasant sides. Two weeks ago, I was rushed to the hospìtal due to another severe fall where I was diagnosed with my 11th concussion . They thought they were going to have to staple the head wound because it bled so profusely but once it was cleaned up we managed to get it to stop without Staples. Thank the dear Lord.
I was was simply responding to your initial statement. It was not my intent lecture at you because I do not like his type of post . Please forgive me . But having apologized I also do not like to be lectured at or told that I have not experienced the many sides of MS in the almost 25 years I've had it as well. I totally agree with your sentiment about providing someone with support on the dark and lonely night but I believe there can be ways to do it through support and kindness that do not involve lecturing. Forgive my taking the time to speak to you directly as well. Fancy.
obviously being overly sensitive I took your innocent and polite statement to be a slight, yes ms really does affect one's emotional stability at times. Your statement was obviously not meant to be a put down though I am sure that mine can be read that way. Rest assured no permanent offence was meant so please do not take any.
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