Topsy-turvy

I was an active kid in school.

I topped my convent school of 1500+ students in my high school - Tenth standard.

I played all games and sports.

You name it and I played it. Excellently.

I gained 91.2% in 12th class too.

I passed my Engineering in ECE department with distinction too.

My team won the overall championship under my captaincy too.

I cleared the entrance and joined India's biggest software giant.

My job required me to travel, extensively. I stay at Hyderabad, India.

I travelled to Bhopal, New Delhi, Dehradun, Kolkata, Alleppey to name a few. Basically, the length and breadth of India.

I was a go-getter!

Later, while I was playing badminton, I took a smash shot and I felt like momentary dizziness and an electric-shock like feeling in my neck. I ignored.

Later, when I was giving presentations, my speech slurred. Weird feeling.

I got checked at my local hospital and they dismissed and said nothing.

You are a young boy with full of energy, everything is alright with you, doctor claimed.

I'm an adventurous person too. I went to treks. I did paragliding. Camping on hill stations was a regular weekend getaway.

One day, I had trouble with my walk. Later I wasn't able to balance properly.

I had my CT Scan and nothing.

I got checked at a super speciality hospital too. They simply said stress and prescribed antidepressants.

I later had trouble to climb stairs at my workplace. I always preferred lift/elevator. Even for a floor!

I was stared. I got weird looks. I cold-shouldered them!

I later consulted a neurologist.

The doctor was doubtful that it could be the symptoms of Multiple Sclerosis.

I thought, medical field is advanced, there might be a cure!

But, I found that there isn't a cure yet!

A person like me, who didn't even get a fever from childhood got MS, that doesn't have any cure!

The doctors suggested an MRI and I was confirmed with PPMS! 😭

My life was turned upside down. All my dreams got shattered. A heavy blow to me and my family.

I was on Rebif, initially.

My job went for a toss.

Later I was on multivitamins, only.

Now, I'm an SPMS patient.

I'm eagerly waiting for a breakthrough in MS.

I was suggested by many to try Allopathy, Homeopathy, Naturopathy, Ayurveda and all.

I'm an atheist and don't believe in these illogical and silly stuff.

You all, please be cautious and do not fall prey to those unscientific treatments.

[RoyceNewton]

Thank you for your suggestion, are you by chance Anglo-Indian? Expecting those treatments to cure you is a bad idea. They help with symptoms, but a cure no. Do you still live on the subcontinent?

[Hidden in reply to RoyceNewton]

I'm an Indian by birth.

I'm still in India.

[RoyceNewton in reply to Hidden]

figured that, thought you might have been Anglo Indian, where in the world are you?

[Hidden in reply to RoyceNewton]

Asian.

[RoyceNewton in reply to Hidden]

Thank you

[Hidden]

By the way, I have a Rollator to walk.

[REDLIPS44 in reply to Hidden]

me to. I hate it. when I go to a restaurant, just bulky

[Iona60]

Wondering if they are using ocrevus for spms in India. Many in this site are having great results with it.

[Hidden in reply to Iona60]

Rare. I'll try that. Thank you. 😊

[jimeka]

Why did your dx change from PPMS to SPMS ? 🦋

[Hidden in reply to jimeka]

Maybe because of discontinuing interferons.🤞

[Raingrrl]

Hi Hidden ! My career was in technology so I worked with a lot of young men from your country just like you: smart, competitive and very active. I can't imagine how frustrating it must be to go from such an active life-style to dealing with a disease like MS where you don't control what happens with your body. I too was told it was just stress by more than one doctor before I got my diagnosis. Its common to grieve the life that was interrupted and to have challenges accepting your new normal.

As Iona60 suggested, look into the DMT called Ocrevus. It could help you a lot. Do a search on Ocrevus in this forum and you will find the conversations we have been having about it. Its odd that you went from PPMS to SPMS unless the original assessment of PPMS was wrong. SPMS follows RRMS. PPMS means you never have remissions.

I was diagnosed over 19 years ago. I use a combo of Western medicine to treat the disease, diet and exercise to keep my overall health up and homeopathic remedies for symptoms and stress. As a former engineer, I research everything to death before I try it. This is what works for me...you need to find what works for you.

[Hidden in reply to Raingrrl]

Thank you Raingrrl .

Your positive approach invigorated me.

Thank you for being a supporting pillar to me.

Thanks a ton. 😊🌺

[Jesmcd2 CommunityAmbassador]

Hi Hidden and welcome! I hope you can find some comfort in knowing that your not alone in your struggles here.

MS has a way of taking away. It doesn't matter who you are. Here we learn to different ways to cope. I still get angry. And it's ok. We are in this fight together! The good and the bad! So yell, scream, then laugh. We are here for you! 🤗💕

J🌠

[Hidden in reply to Jesmcd2]

😊🌺

[Jesmcd2 CommunityAmbassador in reply to Hidden]

So what do you do with your time now? Hidden ?🤗💕

J🌠

[Hidden in reply to Jesmcd2]

I'm confined to a room, now. Mobile phone is my friend. I watch TV.

[Jesmcd2 CommunityAmbassador in reply to Hidden]

I can understand that! But you can still take walks? Even if they are short ones?

🤗💕

J🌠

PS. I would be lost without my phone n net. 😂😂

[Hidden in reply to Jesmcd2]

I take walks in my hall with the help of rollator. 😊

[IFwczs]

Have you tried yoga therapy?

[Hidden in reply to IFwczs]

IFwczs Allopathy, Homeopathy, Naturopathy and Ayurveda doesn’t work, at least for MS. Don’t waste your money.

Coming to yoga, it is just like doing physical exercises! You might ease your symptoms. Nothing much.

Please, don’t fall prey to the advertising gimmicks!

Thanks.

[IFwczs in reply to Hidden]

Supremo, I was diagnosed over 4 years ago. I have tried pretty much everything including (unfortunately) Chinese herbs.

I disagree that yoga is just exercise. I have tried tons of different physical therapy in different places, exercise, tai chi and Pilates for years. There is yoga for disabilities. I have been doing this for over a year. My instructor has MS. She was gone sailing (!) for a month, and I need to catch up. I was in bad shape. This and Pilates really works to address the symptoms. And very soon you will realize that MS is all about your symptoms manifestation.

[Hidden in reply to IFwczs]

Please. Don’t ignore the fact that exercise helps. Helps MS people.

Yoga is an absolute gimmick. People who are in need fall prey to it and praise it. Please, be critical.

[IFwczs]

You will find out over time that you will need to find new neuro paths. Not mentioning stretching. If you know of any other exercise that can do this, good for you!

[Hidden in reply to IFwczs]

Please don’t say that - you’ll find out over time!

Yoga is not any magic potion that cures all, ALL!

As already known to you, exercise, particularly stretching, helps.

[CynthiaS]

Welcome Supremo! I too was a racehorse, always first! Athletic, photographic memory.... until May, 2014. Got diagnosed with RRMS and had paralysis on my entire right side. Regained everything in three weeks by doing OT and PT. Now feel like a horse in a beautiful pasture and now have two granddaughters. It's my new chapter and never limiting myself. My name is Cynthia Peace