Progression

[RoyceNewton]

I can not think of a way that I can say this gently, so everybody gets this bluntly, This is a progressive illness. Everybody is supposed to get worse, some faster than others, some, the lucky ones, slower. I have never found out why this is, and I certainly have asked many people and often. Must really annoy Neurologists (Neuros), but they are paid the big money and I am paying so they get asked. I think that is only fair.

We all can do everything right, not quite sure what right is, and we still get worse, at least not better. This is the nature of our condition. Sad but true, we are not going to get better, "YET".

Our job, and yes it is a job, is to keep us as good as we can, so that day when there is a really good treatment available. We qualify to receive it. That is why "YOU" take your Disease Modifying Therapy (DMT) like clockwork. If it is to hard to take "YOU" tighten your bootstraps accept your fears and change. She\he who is the fittest at the best treatment arrival date wins, "YOU"do want to win don't "YOU"

Until that time, accept that this is a progressive disease and it is progressing, no matter what we do, or take. Just never stop taking your DMT and doing what needs to be done to get to that finish line, and do not despair remember it is progressive. Nobody knows exactly why it starts and nobody knows how to stop it 100%. Accept this and your heart will be lighter and "YOU" may even find coping a little easier

Royce

one day at a time until....

[Juliew19673]

Well said and thank you Royce!

[RoyceNewton in reply to Juliew19673]

my pleasure

[lbenmaor in reply to Juliew19673]

II agree. Perfectly said.

Leslie

[RoyceNewton in reply to lbenmaor]

thank you

[Mssusan]

Needed that .. thank you

[RoyceNewton in reply to Mssusan]

no problem glad it helped some

[anaishunter]

RoyceNewton - Data available out there clearly says that you're right. I can't help it but stay in denial about the progression. MS has impacted my body, just a bit. It has not changed my life (yet). So I'll stick with the hope that this is as far as the disease will go for me. And my mission is to keep it that way every single day.

Someday in the future, I will most likely be proven wrong. But hope is very powerful for the time being.

[RoyceNewton in reply to anaishunter]

Oh I m so sorry. Being in denial and not going onto a DMT will hurt you. Actually, it is hurting you now, you just do not realize it yet. Denial is truly not your friend.

[anaishunter in reply to RoyceNewton]

Don't get me wrong. I am on DMT. But I'll stick with the hope that it won't progress further (for now, for a while).

[RoyceNewton in reply to anaishunter]

all that we can wish for, for, anyway I think I did get you wrong, sorry

[anaishunter in reply to RoyceNewton]

No worries. I just wanted to clarify for everybody that I would not hope for no progression by not doing anything. Quite the opposite, I personally do everything I can - DMT, exercise, diet,... - and hoping that, yes, there will not be any progression.

[RoyceNewton in reply to anaishunter]

excellent, wish there were many more with that philosophy, great work

[kycmary]

Well said!! RoyceNewton

Mary

[RoyceNewton in reply to kycmary]

thank you, Royce is fine.