Secondary Progressive

[Betennant]

Can I get better from this point? SPRR but really feeling bad lately trying to go up and down steps, feeling anything other than tired with pain and numbness an all time high in hands and legs and have little medical support. I started taking CBD oil. I am basically on my own. I hope this is a relapse, and I will feel better sometime. Do you think? I don't like this feeling. I gotta have hope.

[greaterexp]

I'm so sorry about how you're feeling. Does your doctor know about the change in your symptoms?

[Betennant in reply to greaterexp]

I have not found a good Doctor in my area yet. The specialist that diagnosed me in 2006 left for another job and referred me to a large Ohio Clinic. That didn't work out either. I could not afford them. I was rediagnosed again later here but after not doing well on the C of the ABC's, the neuro tried so hard to get me to take a treatment that I did not want for I was afraid of it,. and threatened to take away my diagnosis. I told him he did not give me my diagnosis and he could not take it away. I am on my own like many others and trying to cope. I must have honesty and transparency and since 2011, that is the Federal law.. The Neuro Opthalmologist that I was seeing told me there is no good doctor in my area. Other things not good, have happened. It seems the worst challenge for me now that I am feeling such scarey progression. I am not alone. I believe in God, and I ask him to help me, but the pain, numbness and the weakness and failing eyesight are so hard to bear. I am taking eye vitamins and things to treat the ever creeping osteo and joint degeneration. The pain is hard and I can't sleep much, and some people don't think that is MS but it is! I hope for all of you and applaud you all in your fight.

[IFwczs]

What DMT are you on?

[Betennant in reply to IFwczs]

I am not on a DMD. I did go on Copaxone once but I did not tolerate it at all. I was a late diagnosis. Not having a doctor I can trust is a big hurt to me, because I am essentially on my own. I have been reading of lipolic acid and the gut connection and I try to keep up with vitamins that I did not absorb correctly. I have been a big researcher in the past, but now I must pace more slower since my eyes suffer.

[leking1]

I know that it is scary...I was diagnosed with SPMS about 12 years ago. I asked for the truth about what the Dr. thought my prognosis was. It was not a kind and gentle answer, but I take that as a challenge, and yes, my life, and my symptoms are different. Some are worse, some are not. I can still walk, although I use a cane sometimes. I can still garden, although I don't always do my own mowing....sometimes I do, more often than not, I don't, my legs won't hold me up long enough to push a mower over half an acre of heavy grass. I still haven't learned patience,

but I have learned how to rest when I need to. I am on my own, still drive, although I am retired now. Do you have a Neurologist? If you don't, get one. You need someone who can help you with the symptoms you are experiencing and give you the medical support you need. There is Hope...you can feel better, and you will.

[Betennant in reply to leking1]

Not many in NC WV. There should be, but there are not. Still, God is there for me. He has told me in a round about way that I need B-12. I have been taking some biotin and a complex, but feel a bit more energy since starting B-12.