Secondary Progressive

[Boxofchocolates]

So I kinda knew...but saw my neuro today and he made it official. Secondary Progressive now, instead of Relapsing Remitting.

Feels strange... I know it's just a label, and many here have been through this before me, but it made me pause a moment today.

I paused for the irritation of it, but also to be thankful for all that I have and all that I can do, even with this MS bug that bites me.

Hope it's not "biting" you too bad today, friends!

[Hidden]

😐

I am sorry to hear that...

It is awful, but it sounds like you decided to take the high road. To be thankful for what you have.

A hug and a prayer for you🙏

[Boxofchocolates in reply to Hidden]

Thanks, Redhead4377. I think that a positive attitude really helps, friendship (and of course some good chocolate) can't hurt either!

[Frances_B]

Some people who were RRMS and get told that they are now SPMS find it a relief because they are not constantly looking over their shoulder for a relapse about to pounce on them. For some people SPMS is actually more "stable" than constantly worrying about relapsing.

[Boxofchocolates in reply to Frances_B]

Great perspective, Frances_B. That makes sense to me, too!

[Tinker-Belle in reply to Frances_B]

True! I agree.

[Kenu in reply to Frances_B]

Totally agree that you are more stable and slow steady progression. No relapse’s , that’s how my neurologist explained it to me. I have been steady and no relapse for over ten years and going on 27 years of MS. Staying positive and keep moving forward and taking control is the key 🔑 to successful life 🙏👍. Ken 🐾🐾🤪

[rjoneslaw]

sorry to hear that

[Jackjosh]

Im sorry keep fighting. My doctor saod she dont like labeling she says its either aggressive or not

[Tinker-Belle in reply to Jackjosh]

My doctor doesn’t like the terms, either. Progressive is how he describes it.

[tiffortat]

💜I appreciate you for sharing this. I’m in year 11 of Relapsing Remitting. Being grateful for what I can still do doesn’t take the fear away, but I remain hopeful...

[greaterexp]

I'm sorry you had to hear the words, but you have a great perspective and attitude. I suspected I was headed that way, but it did feel different hearing my neurologist suggest I might be there. I'm still doing well overall, and that's what, I think, is important. You're wise to focus on all you can do, rather than a label.

[Tinker-Belle]

Yes, it’s just a label...an irritating label but, I love your take...pausing, also, to be thankful for all you have and can do. MS has made me a much more grateful person! I am thankful for that.

[rube_623]

i'm secondary progressive too. are you on any medication(dmd) for it?

[Boxofchocolates in reply to rube_623]

rube_623 I started Ocrevus this year, after many years of Rebif, and Avonex.

[pamgarner]

welcome to the club nobody wants to join!i was told that a few agos,the good thing is nothing has changed.......... just another day in the world of ms

[Boxofchocolates in reply to pamgarner]

Yes, just another day!

Glad we can encourage one another.

[twooldcrows]

ha you can now no that all those weird things going on are not you loosing it just the monster playing games with you ...go on your strong and can keep on doing all that you set your mind to do....we are warriors together and is doesn't matter what they call us we will keep on keeping on ...go girl you can for you CAN...still go do what you want to do...love and much happiness....

[Boxofchocolates in reply to twooldcrows]

I don't want the monster to play games with me! (pounding fist on floor like toddler) but I will go on my strong, like you said. We ARE warriors together; thank you!

[mrsmike9]

All you can do is keep on keeping on. I hope the label won't make you depressed. (I think it would me for a few days.) I think you have a better attitude than I do. Indulge in the biggest chocolate bar and add a Land O Lakes cocoa with that. The chocolate mint is to die for!