I just found this MS community and writing my11st post. I was dxd with rrms in 2002. I was married, worked for the courts and food server at night. Took in his nephew (Steven) as soon as we bought and moved into the house that I grew up in from my father. My ex husband was not present for me or Steven. I did all the shopping, cleaning, meals, and taking care of the bills while working 2 jobs. Then in 2007 he left me, Steven moved out, and by 2010 I lost EVERYTHING. Now I am disabled on SSI. live closer to my Daddy who is in beginning stage of dementia. My last MRI showed a total of 20 lesions on my brain. Had my thyroid removed. I also had 2 breast cancer surgeries in March. Even lost my excellent healthcare I had. It's been hell living alone with no friends, neighbors, family or children. Kaiser here has just doesn't care for me or my MS. No monitoring my health at all. So that's me and part of my story. Don't know if anyone out there is similar to me...God I pray there isn't. I look forward to this community. Thank you for reading!
My first post here.: I just found this MS... - My MSAA Community
My first post here.
Hi and Welcome! I'm sorry how it turned out for you. I hope things get better. ❤🌷
Hi and welcome to this forum. Sorry about the circumstances in which we meet. Here we all support each other. We all have ms or care for someone who has it , so we all understand. Many on here has been stripped of everything they enjoy, including husbands, they just can’t take watching someone they love go through what we with ms have to endure. We are always here so please feel welcome to vent anytime. How is the breast cancer noe? Blessings Jimeka 🦋 🍫
A very Warm welcome to you, Menmyms! To You, to the bestest, most awesome MSer warrior Family on the netty!!😍 I am so sorry what has happened to you😥 Just pull up a confy couch or chair, grab a good ol'cup of joe & join on in! Because now here Your Family too, so again welcome!💗❤💚💙💛Much Love, Blessings &🙏Prayers for Ya!---Jazmine🌹💜Rose
Welcome. Your story is unique, as is each person’s. But we share much in common in MS. We can encourage one another here, since we all understand MS, no matter what our own stories are.
This is a good place for venting when we need to.
Hi sorry 😐 you have been dealt this disease called MS I have had this disease since 2004 at least that what they say. I hope you will come back and talk with us time to time.
You have gone through so much and you are a strong person and you keep on going on. It was and is nice to know you. Stay strong.
Sandra
Welcome Menmyms ☺️ well I can tell you that you have friends now!
And if you need support you can find that here also! No one is really ever alone here!
I'm so sorry that you had to go through all of that, and then losing things on the back end of it? It's rough! And we get it! We really do!🤗
Health Care is not fun, especially when they don't seem to care, So YOU have to be your own self advocate! It's not easy sometimes, but you can do it! We have all kinds of tricks and tips for you! Just look around!
🤗💕
J🌠
PS or ask away! ☺️
MSAA has some great programs they can steer u towards. As does the National MS Society to help with health care costs. Hope that helps!
Sorry about your daddy. My daddy is my hero and i love him so much. My mom recently passed. She had Alzheimers. But what got her was pneumonia and then a heart attack. Spend as much time with him as you can but i hope u have help caring for him. The additional stress can wreak havoc on ur MS. Taking care of you helps take care of him too.
Sorry for the babbling. I sure lots of us here have similar stories but i saw u call ur father “daddy” so i can tell u r a daddy’s girl like me 💜💜💜💜💜
Menmyms,
Welcome to this forum!
It takes courage to share your story as you did in this post. It takes more courage to live it and ask for assistance when you need it. We are here to share our experiences, listen through posts, and offer a 'virtual' shoulder to cry on, should you need it. it helps me to know that I can turn to this forum and ask for anyone here if there is another way to deal with what this 'ms' has presented. Makes me more courageous.
Stay strong,
Carole
Welcome to our family!! This is a great way to ask questions and learn new info to help you.
I'm so sorry to hear what happened to you. I hope it gets better soon.
Leslie
Welcome to our group Menmyms! I am sorry you have had a rough time. I have also learned a lot being involved in this forum and have made many friends. I too have Kaiser, I see an MS specialist, but I have gone through 4 neurologists before I got the one I have. I live in Southern California. 😀❤️
Menmyms My heart goes out to you. Every Kaiser facility is different, but if you live in an area with access to multiple Kaiser offices, you may be able to find a Kaiser neurologist who specializes in MS. In Southern California, for example, Kaiser Sunset has a MS specialty. Navigating the Kaiser system can be difficult, to say nothing of freeways, but perhaps it opens a possibility for improvement in your treatment. When I was with Kaiser, no one told me this. I learned it from another MS patient with Kaiser. Perhaps among the many people here on the forum, you will find support and some answers.
Hello and welcome!
Welcome Menmyms It is a pleasure to talk with you. Hope things get better for you
I was going to like this post, and then I thought how asinine that action is! I'm truly sorry. We are made to wear this copastetic mask to make others feel comfortable, when we're looked at like unapologetic, self centered, antisocial cry babies. Although we are asked to do when we can't, go where we can't, be who we aren't, and compared to those who are not holding candles to the situations that many of us endure be everything we are not!!! I "UNDERSTAND" ! I'm sorry and not sure if you would accept a hug from a complete stranger, but in the scheme of things I've found that the simlaritys between a lot of us are greater than that of my own family! Again I'm sorry and KUDOS to you, you SUPER HERO !!! The he'll with pleasantries, keep fighting for you, strong are the people who live their he'll and have to climb in and out daily.
First WELCOME Where do live? We all have had set backs that break our hearts but if we let them they will make us sronger. Remember we are here for you and so is God and He is on call 24/7. I do not know how I can help but will try. I am 77 with PPMS, I lost my best friend 12 years ago but I do rely on his strength still, I want him to be proud of me. He was
God's greatest blessing to me and the perfect partner for a disabled spouse. I have 5 children, 2 girls are mine and the 3 boys came with Jim The oldest boy is in heaven, the middle boy lives in PA and the baby boy is here and will come if I call ( I do not call) The oldest girl lives 15 minutes away and prefers it that way, the baby girl lives in SC. I do know God and Jim are there for me . The hardest part is being lonely and I can no longer drive. I will try to help you however I can. Get that chin up and SMILE
Hello and welcome to our site. We are glad to have you join us. Between our over 3000 members, there is a treasure of knowledge, experience and caring. Feel free to explore MSAA, for info, comment & ask questions or just read along. We all share MS and many similar symptoms. Most importantly, we are here for you!
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