Be strong, believe in yourself, YOU CAN ... - My MSAA Community

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Be strong, believe in yourself, YOU CAN DO THIS.

RoyceNewton profile image
7 Replies

Newbie msERS. Let me say first, THIS IS A DOABLE DISEASE. Yes, it really is doable, rather scary at first, but your Relapsing Remitting ms can be managed, adjusted for and coped with. It is not the end of "YOU". Think carefully, learn all that "YOU" possibly can, make good decisions and get ready for a very long journey. This is not the end of "YOU", it could just be an unexpected door opening to a future that "YOU" had never dreamed of.

ms affects the central nervous system, the myelin sheath surrounding those nerves and there are a great many miles\kilomtres of them throughout our body. It can attack anywhere and keep attacking the same spot multiple times. So with this variability"YOU" will find that nobodies ms is exactly the same. What works for me may not work for "YOU". "NEVER" be disheartened, "YOU" just have to look for another solution. This is not to say try a pill once and give up if miraculous results do not occur immediately, give it some time. I normally give something a month, enough time to get over any side effects and to see some sort of result when I look at myself very closely.

Now every medicine or procedure may have a negative side effect. Weigh the costs and benefits. I was no longer willing to "enjoy" the nightly pain and trips to the Emergency Room for my Trigeminal Neuralgia, so I got laser surgery on my face. I mostly do not feel my face like I used to, but I sleep at night. Cost and benefit. I hate needles, but many years of injections every other day have meant I still walk around and write "YOU". Cost and benefit. Think once, twice and three times, what is my cost of doing this, what is my potential benefit. Of course be careful when somebody tells "YOU" that your benefit is a cure. They are lying to "YOU" I look at things and say to myself, there are a lot of people with Relapsing Remitting ms in the world, why is this person not rich and everywhere in the ms literature if what they are selling is such a great cure. Cynical maybe, but it is my money and I rather like having it in my bank account, instead of theirs. I really do try to be open to new and different approaches to living with my condition, but I try very hard not to be a victim. Everything is always "COST and "BENEFIT"

Look closely with your eyes open, do not believe me I might be wrong. Start to "LEARN" about "YOU" and about your Relapsing Remitting ms. Be safe, be "STRONG and be flexible just never give up. This is a "DOABLE" condition and "YOU" have within "YOU" everything that "YOU" need to "DO" this. It is a long journey but just stay smart, stay strong and "BELIEVE" in yourself. Of course, wear your Depends and take your Disease Modifying Therapy.

Royce

20 years on my ms journey and counting.

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RoyceNewton
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7 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Yup, I take those needles RoyceNewton 💉 3xs a week!

Sorry to hear about your TM a few here have that. Was that your first symptom? 🙁

If anyone wants to learn more on RRMS CK this out....

mymsaa.org/ms-information/o...

🤗💕

J🌠

RoyceNewton profile image
RoyceNewton in reply toJesmcd2

Very first symptom 20+ years ago

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toRoyceNewton

I'ma gonna start a post on this, hope you join in!😀

🤗💕

J🌠

RoyceNewton profile image
RoyceNewton in reply toJesmcd2

okay, what do I do first?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toRoyceNewton

Reply to my post! 😀 About very 1st symptoms!🤗💕

J🌠

mrsmike9 profile image
mrsmike9

BUT sometimes I can't do this. I don't think there is any shame in having a breakdown and bawling. The thing is I can't let myself stay down, bawling. After getting it out it's a lot easier to go on.

RoyceNewton profile image
RoyceNewton in reply tomrsmike9

That works, a good cry does not make YOU any less.

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