For those interested in....: I have been... - My MSAA Community

My MSAA Community

9,187 members β€’ 20,915 posts

For those interested in....

Jazzyinco profile image
Jazzyinco
β€’21 Replies

I have been doing this & more & really starting to feel good again, WOW! Not used to being normal (whatever tht IS!(LOL!😍 so, here's the link. verywellhealth.com/dietary-...

Love & Blessings & PrayersπŸ˜πŸ’πŸŒΈπŸ™πŸ™πŸ˜€πŸ˜ƒ---Jazmune

Written by
Jazzyinco profile image
Jazzyinco
To view profiles and participate in discussions please or .
21 Replies
β€’
greaterexp profile image
greaterexp

It's so important to look at studies and educate ourselves. Thank for the link!

Jazzyinco profile image
Jazzyinco in reply to greaterexp

Yes it is, we-ll see if those wrk. Out or not...πŸ™πŸŒΉπŸ’πŸ’œPrayers & Love to ya. Jazmine

jimeka profile image
jimeka

Good link, thank you. Blessings Jimeka πŸ¦‹ πŸ¦”

thanks for the information and the link, I'll have 2 check it out

erash profile image
erash

How much of each r u taking?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to erash

That's what I'm wondering erash 🀣

I think most of us are in a high dose of vit d. I know I am. πŸ€£β˜€οΈ

Great post Jazzyinco cool with your docs 1st!!!πŸ€—πŸ’•

J🌠

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Jesmcd2

Check*

dianekjs profile image
dianekjs

Thanks for the article link. The research showing positive benefit from optimal vitamin D levels is pretty solid, and I have to take 10,000 IU/day to keep my serum level in the range my neurologist and rheumatologist both want. However, the high-dose biotin research has a long way to go, and the results from the small studies showing a worsening of disability and increase in new lesion development in progressive forms of MS is concerning. My MS specialist is on top of the research as well and did not want me experimenting with it at this stage - he said the risk is that it could make things worse instead of better. Everyone please be careful taking high doses of something that is unproven and has very conflicting research results so far. Sometimes the label "vitamin" can impart a false sense of safety. Vitamins act like drugs in the body and can have major effects, and the doses being used with biotin for MS experimentation are extremely potent. I will continue to follow the research but will sit on the biotin sidelines for now. I do supplement my diet with omega 3's, but nothing extreme because once again, we just don't know enough yet.

Jazzyinco profile image
Jazzyinco in reply to dianekjs

Great advice Diane, thanks, I'd rather experiement on the vits. Than being a human pun cushion & guinea pig for the Harmacutical companies anyday! LOL!πŸ˜‰β€πŸ’šπŸ’œπŸ’›πŸ’›πŸ’–πŸ’˜πŸŒΈπŸ’πŸ™πŸ™Many Prayers & Blessings---Jazmine

dogdaddy profile image
dogdaddy in reply to Jazzyinco

Is your meme Janice Joplin? I loved Janice!

Jazzyinco profile image
Jazzyinco in reply to dogdaddy

Yeppers, Dogdaddy, I Love Her to very much!!!πŸ’™πŸ’›πŸŒΉπŸ’‹πŸ’—β€πŸ’š i can sing like her too, it's inn the DNA, πŸ˜œπŸ˜‰Maybe was my song!!Hee-Hee "If I Could Ever Hold Your LITTLE HAND"πŸ˜€ 🎀🎀🎧🎁 look @ my pic in one of my posts, very J.J.!πŸ‘ love Ya!πŸ’—β€πŸ’šπŸ’™ Blessings--Jazmine πŸŒΉπŸ’œRose Joplin

dogdaddy profile image
dogdaddy in reply to Jazzyinco

I have every one of her albums :) I can't sing for shit! Lucky you if you can sing like Joplin :) I'd love to hear you sing one day!

Jazzyinco profile image
Jazzyinco in reply to dogdaddy

Sure, no problem, i sent u a privy message. Hope ya read it...Love Ya!πŸ˜πŸŽπŸ‘πŸ’™πŸ’›---JazzπŸŒΉπŸ’œ

carolek572 profile image
carolek572CommunityAmbassador

Hey JazmineRose,

Eureka!

I have been on biotin, 1Xday, 500mcg, since my diagnosis. My neuro has me on vitamin D3, 2Xday, 2000IU for a number of years, and I recently added fish oil, 2Xday, 675mg, in December 2017, to the mix. So, unwittingly, I HAVE been on this. My neuro has noted that my PPMS progression has been very slow. Can I credit that to the biotin? I don't know.

My neuro has also mentioned, in the past, that my vitamin D levels were very low, so she prescribed the vitamin D supplement. That has made my level stay in the acceptable range.

I remember last year, I had stiff, achy joints. Fingers, hips, knees, wrists, lower back. If there was a joint there, it was sore. I added the fish oil, I feel SO much better.

Is this combo of supplements a key for a cure? Perhaps. I forwarded the article to my neuro and told her that I am open to take any tests to validate/invalidate the article.

So, you may be on to something!

Keep smiling,

Carole :-D

Jazzyinco profile image
Jazzyinco

Yep, i think so Carole, it could very well be, I am doing another experiment that I will let everyone know how it went. Ok!πŸŒΉπŸŒΊπŸ˜πŸ™πŸ‘πŸˆπŸΎπŸ’πŸ’–β€πŸ’šπŸ’œπŸ’™πŸ’–Many Blessings

lbenmaor profile image
lbenmaor

Thanks for the link. It's what I do which has helped me. However I can't take biotin because of my thyroid medicine.

Leslie

dianekjs profile image
dianekjs

Yikes - I just found this that is worth reading and quite recent. This correlates with what my neurologist told me and I’m PPMS so think I’ll definitely pass on the high dose biotin.

uspharmacist.com/article/hi...

Jazzyinco profile image
Jazzyinco in reply to dianekjs

Yikes is right Diane, then it is a fat soluable vitamun like D3 is, ant high dose of those can cause toxicity, reason I 'll do a low dose of it, like our Carolek does in mcg, instead of high mgs. So, yeah we do need to be careful with those fat soluable vitamins. Thanks for that link.πŸ‘πŸ˜πŸŒΊπŸŒΉπŸ’πŸŒΈπŸ’–πŸ’˜πŸ’ŒMuch Love, Prayers & Blessings---Jazmine

carolek572 profile image
carolek572CommunityAmbassador in reply to dianekjs

Hey dianekjs,

Interesting article!

My daily intake of biotin (vitamin H) is part of my vitamin B complex. My neuro is aware of me taking it, and I have been taking my vitamin B complex since my diagnosis in 2006. And it is a low dose, 500mcg, but according to the bottle, that translates to 1667% of recommended daily intake.

When starting on any regime, you should first discuss with your neuro/doctor.

Keep smiling,

Carole :-D

dogdaddy profile image
dogdaddy in reply to dianekjs

Must be why it made me feel worse....My whole right leg went numb

Lilith08 profile image
Lilith08

Good news about Vitamin D and Omega 3 oils, at least!

I ought to track my omega 3 intake for a while to see if I need a supplement as well. For now I’m trying to get it from eating β€œSMASH” fish at least twice a weekβ€”salmon, mackerel, anchovies, sardines, herring; truthfully, usually sardines as they’re not too pricy and are easy to get.

You may also like...

For those who may be interested...

over the tough things, is very inspiring to me. You may also find some comfort from these messages,...

Watch out for those Sisters.

answered by a nun in a long black habit who asks, 'What may we do for you my son?' He answers, 'I...

for those of you that did not know

Immunity info for those on Ocrevus

This article popped up for me today. https://multiplesclerosisnewstoday.com/news-posts/2020/08/21/oc

It WAS an interesting 2 days

I loved both doctors. But my neuro is kind of odd. Even with my records he wants his own MRI to be...