I'm fairly new to this ms thing (dx in May) and luckily, so far, only with invisible, mild symptoms. But I'm trying to figure out what my body experiences.
How does hand tingling starts with MS? my little fingers have been tingling a bit, on and off for past 2 weeks. I wonder if it's "Cubital tunnel syndrome" or just MS showing it's alive and well. Any experiences out there?
Cubital tunnel syndrome
My fingers tingle when I get overly tired or if I touch something hot. Like getting clothes out of the dryer, washing dishes, etc. 😕❤🌷
It’s the MS I have it in my fingers and toes sometimes it goes away sometimes it doesn’t. If you can e-mail your neurologist you can let them know what your feeling.
Don’t get to nervous about it.
By the way I am ssdw1958 I am sorry we had to meet his way. I say to talk to your doctor because one we are not doctors here but it’s a good place to ask questions to find out what other people are doing about there MS problems.
By far now
Hi anaishunter you know I ask my neuro that question all the time. And all I get is, well you are getting older. 😒 I'm only 52 for crying out loud! 🤣 😐
I'm also left handed, and that's where the tingling is. So, I'm pretty sure it's just that I'm using it to much?
Liked ssdw1958 said tho, let your Neuro know! MS it's different for everyone! And don't go looking for trouble!🤗💕
J🌠🦈
I have tingling in my right hand a lot, especially when I am using the mouse on my laptop. If I'm typing it seems to be fine but it happens when I use the mouse. This has been going on for the last couple of years so I suspect it's the MS because the 2 neuros I have told it to haven't said anything else.
Jessie
Yeah anaiashunter, i too get that tingling feeling in my fingers, off & on & sometimes it goes up my arms, ask your neuro. Bout it, it seems like it's our nerves electro in our CNS =central nervous system trying to figure out what our antibodies are doing & cuz of our mylan sheath is being destroyed, so our bodies are all out of wack. Not doc's but some of us were in medical field for some yrs. I was a CNA studying to be a M.S. R.N. so I have studied alot bout the brain & anatomy...Blessings to ya!😍💜❤🙏🐈---Jazmine
Thank you all for the replies. It helps to know that many others out there have the same questions, doubts,... I had my 2nd OCrevus on 07/14 and it has not changed anything (which is a good thing) - no side effects whatsoever. It's impossible to say whether it does anything to my ms because my symptoms are close to non-existent (2x vision in Jan but back to normal in March). Very mild tingling in left foot towards the end of the day if I don't exercise or be active regularly. This finger thing is almost nothing. In a way, I'm looking for troubles, being too self-aware of every little thing that's different in my body (I'm 52 so yes, my body is not like it was at 25).
My plan is to go on vacation next Friday, take care of my body -exercise, swim, ...and brain, read, play... My next neuro appt is mid-Sep.
They put you on orcevus and you were just diagnosed? I really thought the riskier meds were used only on those with advanced cases or who had stopped responding to a prior DMT. Were you offered a less aggressive medicine or did they just fast track you to orcevus ?
I get numbness in hands and feet from time to time; not usually all four appendages, thank goodness, but some mixture of one or two. I’m not positive yet but think it might come on when I’m stressed. It can last for a couple hours, days, or weeks. Like yours, mine isn’t much of a problem, just an oddity.
Interestingly, though I wasn’t diagnosed until 2016 and hadn’t had any numbness for many years, my first episode with it was back in 1992 when my right foot would get numb, off and on, for the greater part of that year. Whether it was coincidence or not I’ll probably never know, but after I started taking Vitamin D, it resolved itself. My neuro thinks that was likely my first sign of MS.
I have it in all my fingers from time to time, for a few months now. I have a new spinal cord lesion. Might want to get that checked out!
Excuse me? kdali And you weren't going to tell us? Are you alright?
Much Love 🤗💕
J🌠
Yes, I’m getting there 😁 I’m sorry! Not a new one again, but this is the one that has been causing all my drama the past few months and the reason for changing to Ocrevus! I didn’t have the finger sensations until after the steroids wore off 🤷♀️ My initial complain was cold/painful socks and difficulty climbing stairs.
Thank you! 😘
Please, keep us posted ok? And quit being sneaky about it!!! 😐🤣😂 Not even sure how I caught it! 🤔
🤗💕
J🌠
I promise I wasn’t being sneaky, but it’s been at least two months since my MRI, and three since symptoms started. I get to make phone calls today to see if I’m ever getting my infusion or if I should just order more shots of a drug that isn’t working for me anymore 🙄🙄🙄👎👎👎
My low point was two months ago in Vegas, in front of my family, in the middle of the Forum Shops 😵😭 So I have a recent crappy comparison to make me feel like today I’m a rock star 💪🏼😁 even with this dumb cold 😂
Thank you so much for the love!! 😍😘🤗
I have been having the same except mine is my wrist n hands holding the phone is the worst idk if its the ms either and mine also travels up my arm and its painful
I have numbness in two fingers in my left hand, as well as both feet. Five years ago, it was also neuropathy in my left hand (also painful). And I’m left handed, so the pain made it hard to write. Fortunately the painful part is gone now. Anyway, my doc ordered an emg to make sure it wasn’t carpal tunnel syndrome. It wasn’t.
Both of my feet are numb I still have some feeling but they're numb most of the time
To jessmcd2. GRRRR your doctor using the excuse you are getting older is wrong. Not a diagnosis, but those are rare these days. Sorry but it hit wrong button. Told two neuros, arm/hand was so numb pain woke me at night. One said, sleeping wrong way never did any tests or even looked at hand (swollen) The other said you got MS, what do you expect.
Finally told GP and he said try a little PT. Yes probably a storm of degenerative disc syndrome with some cervical MS lesions. Still doing e,ercises to keep symptoms at bay. Not perfect, but one less thing to keep me up at night.
However I will agree that you will learn a lot more anatomy and physiology aS you age
Peace in all things, yes I forgave them for being simply human.
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