This is more of venting. I don't like yo... - My MSAA Community

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This is more of venting. I don't like you ms! Go away!

Lindaofficial profile image
9 Replies

I HATE THIS DISEASE! I try to stay positive but I hate ms. I hate the pain I feel everyday.

I hope and pray for a cure to help all of us.

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Lindaofficial profile image
Lindaofficial
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9 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

We All do! Having a rough one this morning Lindaofficial ?

MS is more fickle than a guy I tell you what! 🤣😂 joking guys!

Hang in there!

🤗💕

J🌠

Lindaofficial profile image
Lindaofficial in reply toJesmcd2

I'm so tired of being in pain.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toLindaofficial

Are you taking anything? And if not, why not? MS and pain have a tendency to go hand in hand.

You should talk to your health care team!

Life is about being comfortable and living. You have to be your own advocate for your health.

My Neuro and I fight all the time!🙄🤣😂

He doesn't like my tramadol, I told him, I don't like my MS so were even. 😒

🤗💕

J🌠

Lindaofficial profile image
Lindaofficial in reply toJesmcd2

I'm taking aleve for pain, gabapentin, tizanidine.

I'll be ok.

bxrmom profile image
bxrmom in reply toLindaofficial

If you are still in pain with your meds, maybe a dose increase is needed? Or something else is needed, like Baclofin? I take Baclofin & Tizanidine for my spasms.

Jessie

greaterexp profile image
greaterexp

I wish I could do more than say I’m sorry.

I think many of us feel frustration with the pain itself, but also that so few doctors and our friends and family don’t really think of pain as a significant part of MS. I used to be a nurse, but I knew practically nothing about this disease except for what was in the limited textbook. Even when one looks up MS, pain isn’t often mentioned.

I hope you find a better solution for your pain. At least we have this marvelous group of people to vent to and who really understand.

Fancy1959 profile image
Fancy1959

Linda, to be truthful I bet you 95% of this chat rooms members hate the disease as well. So you're not alone in your feelings and you're always free to vent here. Sometimes I get so mad at the unfairness of this world that I just lose it. I did everything right. I was in the best shape in my life in my forties. I was thin, was a ball of muscle, had low blood pressure and low cholesterol and never smoked and hardly drink at all. Then in my 50s this monster Hits. So what did I do wrong what's a question I kept asking myself for the first couple years. Gradually I groups except and understand but I didn't like Ms by any stretch of the imagination but I was lucky to have MS because it was so many diseases so much worse out there. Think about this. At least with Ms we have a future. It might not have been the future we thought we would have a decade ago but we will grow old and be able to see our family grow up and grow old with our significant other. There are so many diseases out there where the future it allows you to see is perhaps only for the next year or two. I lost one sister-in-law two pancreatic cancer about a year-and-a-half after she was diagnosed. I lost another sister-in-law to breast cancer about two and a half years after she was diagnosed. Here I am, so I'm 20 years into this disease, and I'm still putting along. If we can keep our mindset and attitude positive full evening it will help your attitude with life and it will help with your Ms being less severe. Remember to think that our glass is always half-full not half empty. There are times when even the strongest of us need a boost and that's what we're here for! But try to make it your personal choice to make your attitude more positive and I think you will see results that you never expected to see. Realistically we don't expect to be able to keep the positive attitude going 24/7 365 days a year. When you need the day to vent we are here! Feel free to lean on our shoulders. Because we all do it. No one is immune to the bad days but with the support you'll find in this chat room, even the bad days aren't as bad as they used to be! We are so glad you found us! Welcome again to the family!

Kellyj44 profile image
Kellyj44

I know exactly what you mean. I feel the same way. It's very hard to stay positive I just tell myself that tomorrow is going to be better.

I'm sorry you are having so much pain. Also know about that. Going through a rough patch myself at the moment it's all gonna be alright, I keep telling myself.

Just pull that strength I know you've got and fight back with it. I'm with you girl. You just hang in there!!

In my prayers.

ssdw1958 profile image
ssdw1958

I know how you feel your not alone.

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