I have noticed that just thinking about leaving my house and going to a place I feel I need to interact with others is so stressful that I have flares. I have good intentions of going, just to back out. I love my family so much, but I still do not want to go. Stress hurts! And it seems a lot stresses me out. I can do my errands and such, but its much easier if I'm alone or with just my husband. I can be around my husband 24/7 and I'm fine with that. He is not a stress for me at all. Anyone else feel this way?
Thanks in advance.
Sissy
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SissyP
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My flare up of the hug was so bad my bp was 196/119 . My husband took me to the hospital and it took 5 hours to get it close to normal again. And of course the made me stay. So I just rather stay home and not stress. Sometimes a ride in the car gets me so uptight I just have to close my eyes. Lol if my husband is driving. It seems if go very early when I'm driving I do ok. I have been stuck in the parking lot waiting for my eyes to stop being crazy. I'm wondering if I should get on something for stress, but idk. More meds? I'm sick of meds.
I'm just rambling on. I have not joined a community like this before and MS has made my life so different. Having people that understand seems like a unique concept to me. My husband and I got together after I found out. He is amazing and tries to learn what he can. He is a very patient man to say the least.
We find comfort and tranquility in familiar surroundings where we know where the bathroom is, how to get from point a to b, etc. Most times I prefer to be in my own little world. It is great there! I am comfortable, no demands are made, I can go at my own pace.
Having said that, I think it is a good idea to get out socially now and then while you still can.
I struggle with the same thing. I even regret my decision to go places as it just tends to remind of how awkward I am. Nonetheless, at least I can do it now, so I will for now. Until it just is not worth it anymore. That just might be next week, you never know!
Yes my husband has his own company, and i use to love going and helping him. He does construction and painting is like therapy for me, but I'm done for a few days after. If the house is empty I'm good for a bit of work, but if someone is there I just cant do it. I guess over stimulation is a huge problem for me. I loved music before now it has to be played low.
Yes. My husband encourages me to get out, so far with no kicking and screaming from me. I usually deal with it better than I thought I would, but I would still rather stay home. Except for darts night, but nobody else plays that night we go so everybody else is at the bar and I can tune them out. Except the noise is sometimes almost crippling. After only having a coke I look like a drunk leaving but in this case that just makes me look normal.
Yes I was stepping out of the truck one day and my brain forgot I had feet. (Sprained both ankles). It was lunch time and the man that came to help my husband help me up asked if I had been drinking. I asked if water counts. So yes I totally get looking like I have been drinking.
I just feel guilty sometimes not wanting to be out in the world. But it's so much easier to stay home.
Like you, I feel more confident with my hubby and I can cope but give me an occasion with lots of children and I back out, as I don’t think it is fare for the parents to be contiually saying, watch Auntie, don’t knock Auntie. Also I don’t like family get together as I don’t like them seeing that my condition gets worse, I don’t like the sympathy, so I tend to stay home. Blessings Jimeka 🦋 🍫
It tends to depress me when they can all run after their grand children and I have to stay in the corner so I am not in the way. I used to be so active.
Yep I was at the gym 5 days a week 3 1/2 years ago. And now I just cant. I also dont like being around well intentioned people that say things like "go back to the gym or if you just (fill in the blank) you would feel better.
Hi SissyP! I have a beautiful 1965 Schwinn stationary bike in my bedroom for easy access. Before MS I exercised daily ; I was always doing something. Now happy if I ride atleast 3 sometimes 4 days out of the week. Try to step outside a couple times a day. Glad you're here. You're not alone. Blessings
I water my flowers every day. I do try to be in my yard some. Its going to be it 100's here In Texas this week, I'll have to water earlier. Thank you and hope you have a blessed day too!
Thank you! I get up around 3am to enjoy cooler temperatures. I live in Las Vegas Nevada and today we hit 102F (38c). I also use a green light bulb to relax my body.
Sissy, it's Fancy1959. This monster that we fly each and every day loves to steal away from us or self-confidence and makes us become isolated because we are no longer the person we were sometimes even if a year ago or months ago. Letting this monster win by stressing over going on small errands or out in public is allowing it to permit eyes yourself probably the worst thing you can do. By doing so you deprive your soul of human interaction and we all need that and are healthier when we receive that. I would suggest a couple ways to perhaps start to lessen the stress of interacting with others besides your husband. Do you have a best friend that you used to do everything with and has now lost touch with? Perhaps you could make an effort to revitalize the friendship and simply start out with home visits for a month or two. When you're stressed level lowers perhaps the two of you could just go out for a quick lunch somewhere. Start with baby steps and work your way up. That way the stress level will hopefully be easier to maintain at a lower level instead of diving in over your head. But if at all possible do not let this monster did take your life or take away or self-confidence and your sense of self. As many of us old timers in the chat room know, having MS is a daily fight to beat this monster and make sure it does not steal from us our sense of self.
We are only a post away anytime you need to talk. We have broad shoulders to lean on and big handkerchief to give you when you need to let the stress out through tears. Please don't be a stranger because I think you talking to other people in this chat room who truly understand what you're going through can only help you work through your stress. Take care of yourself until we speak again and please remember that together we are stronger!
Hi SissyP i have the same feelings and im so glad i see others are having the same problem!!! It seems like each and every time I leave my house i get so fatigue and stressed totally. To the point i rather be at home but im not married but that is just fine because i probably wouldn't be able to handle him either 😂
I had a very traumatic backwards fall a couple of months ago, causing a 'severe concussion'. Since then, I have been to take my wheeled walker everywhere I go. That has certainly put an end to the falls, but having to lift this beastie into the back of the SUV can sometimes be a challenge. And don't even get me started on toilet issues!
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