Introducing myself

[Lakenya32]

Hello Everybody!!! I am new to this group. I was recently diagnosed with MS. I am only 32 years old, single and no children. It is hard dealing with it at times. I have severe migraines and back pain a lot. I am trying to hang in there. Anyways, I started treatments for MS. I was taking Copaxone but I had bad side effects from it. I don't rather I was giving myself the injections the wrong way or what but it had me feeling really bad. I read some post that others experienced the same thing. So, I am supposed to start a new drug called Tecfidera. I hope it works better. Has anyone taken Tecfidera? Did it help or make things worst?

[Kenu]

Welcome to our crazy 😜 group of MSers. Sorry 😐 to have to meet this way, but you have found a great community of people who care. I tried Tecfidera about two years ago and I had too many side effects 😢. I am on Aubagio fifteen months and doing great 👍. Last two MRI’s were stable and no relapses 🤗. I have been on seven different DMT’s thru twenty three years of MS as newer and better ones came out 👍 Good luck and let us know how it works 🤷🏼‍♂️🙏🐾 Ken

[Lakenya32 in reply to Kenu]

Thanks for you reply!!! I hope Tecfidera helps. If it doesn't help, I will ask my neurologist about Aubagio. Geeze, these medications sure does have some weird names. LOL!!!

[greaterexp]

Welcome to a great group. We look forward to getting to know you better, so feel free to ask questions and vent. We don’t have all the answers, but we sure support one another.

I wish you well with your new DMT. Let us know how it goes.

[ssdw1958]

I was on Tecfidera for about a little over a year. When I first took it I got the red cheeks but that went away pretty fast. It did work but now I am on Ocrevus I started that in September.

I am not glad that you have MS but I am glad they figured out what you had pretty fast. We’re a pretty good group of people to talk to find out what going on with this disease called MS you can ask us just about anything. But do remember we are not doctors.

I hope you have a good weekend.

Take it easy!!

[Morllyn]

Welcome to the group! Sorry about the diagnosis though.

[Peruzzot]

I'm on tecfidera now. I've been taking it about 6 months now. When I first started taking it I had some flushing symptoms for about 30 minutes after taking it. But that would only last 10-15 minutes then go away. I was on avonex before that and reacted very badly to that. I had very bad flu like symptoms without the flu for 2-3 days after the injection. After a month on tecfidera I didn't have the flushing any more. I like it a whole lot better than the avonex.

[MS_Indestructible]

welcome to a wonderful group of people. I was on Copaxone for the first several years after my dx. I am currently on Rituxan and loving it. You can do a search on this site for TecfideraI hope you do well on Tecfidera, in the search box in the top right side of this site. Drop in from time to time and tell us how you are ~terry

[RoseySawyer in reply to MS_Indestructible]

I love Rituxan. It's the only medicine I've been on since my coming home from the hospital on Jan 12, 2016.

[Fancy1959]

Good afternoon Lakenya32 from Fancy1959. Yes I was on tecfidera for almost 2 years. That was back probably in about 2015 and most of 2016. At the time I love its ease of use and I have very few side effects from it. But about a year-and-a-half and I started to notice that my disability was increasing. After researching more and testing I discovered the tecfidera had let me progressed from relapsing and remitting Ms to secondary progressive MS. I started ocrevus last year and I love it. Earlier this month I had my first clean MRI in The Last 5 Years. Buy clean MRI I mean that I had no enhancement of old Ms lesions and I have no new lesions appear. Finally my Ms will stable! Yahoo! So I am not planning to change therapies anytime soon.

We're glad you have found this and you have found a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. I can't wait to get to know you better. The more you interact with us the faster you will get to know us and we will get to know you. I know there is much we can learn from one another. Take care until we speak again. And please remember that together we are stronger in our fight against this dreaded monster we call MS. Fancy.

[CynthiaS]

Welcome to Lakenya32!! You have a great support group of new friends who understand exactly how you feel. Always open :). I am on Aubagio and was on Copaxone. I was diagnosed May 19th 2014 after just turning 49. Cynthia

[BigMar7]

Welcome Lakenya 32! You have found a great group of people of all ages who have lived with MS. You will learn lots here. 😀❤️

[WAshingtongirl]

Sending you a warm welcome, Lakenya32 . I’m sorry you have MS and that Copaxone sisn’t Work well for you. Praying the Tecfidera does. 💕

[Lakenya32]

Thank you guys for the warm welcomes!!! I appreciate it a lot. I had to change my neurologist specialist because he was not willing to listen or help me with my issues about Coxpaxone side effects. He didn't want to change my medicine or empathize or show support at all. At least that is how I felt from him. I am glad to see that other people in here have tried that medicine and I am not alone in this. Just because one medicine works for others does not mean it works for me. So far my new neurologist is trying to help me and find a medicine that might help me. Thank you all for your support. Now, lets kick MS butt!!! LOL!!!