Hi everyone made it to nero yesterday ..ahh long day thogh wowzer..well good news bad news...my white blood count was way over last 14 months finally down to 996 usually runs high 700s so i think well im praying mabe another 6 weeks should be were it spose to be ..ive got out of house all week but wow still get irritable..mri no new lesions ..but balance still not greatest on right side and arms...these drs dont go by types of ms i want to know what kind i have and why last 14 months i havent went into remission she said possible just pissible its went into secondary thts not wrote n stone..i refuse any ms meds because i contracted the jvc virus and im not down to risk pml..even though they say its a 5 percent chance of getting it..im usualky tht 5 petcent..idk my internest said never take the ms meds ive went to him 30 some years im going with his idea a nope..shes gonna have a sleep study done which ive been wanting forever..also the steriod iv treatments she said probably wont chance those anymore because im small frame and it can mess with your bones..idk they seem to help me..well i guess im n this fight alone makes it hard yall know the days we jyst cant do chit..ya know its easy for someone to tell you fight fight fight or just lay around give up its easy to say tht when u dont have this beast..but takes 2 weeks get jvc tesults back need prayers it hasnt went higher in levels..so idk its just rough..i guess i get pretty crying emotions sometimes she gave me samples of nuedexta..u guys heard of it have you tried it ..looking for how what everyone thoght s are on this what it do for you what side effects did you have ????
Nuedexta: Hi everyone made it to nero... - My MSAA Community
Nuedexta
I’m not familiar with Nuedexta, except that it can help with PBA and its symptoms of sudden bursts of crying, etc.
You’re in my prayers. I know it’s been really rough for you lately. Remember that you aren’t so alone now that you’ve found everyone here.
Ok thank you.sweetie
Hi luvhair sorry it was such a long day for you! My Neuro appt are like that also.
I hope today goes better for you! And remember your NOT alone in this anymore! 💕
So keep fighting, and keep smiling!☺
J🌠
You are never alone when you have MS and a group like this! Just get on here and talk, there is always someone listening.
Hope today is better.🌺🌹🌷💐
Hi! Diagnosed May, 2014 with RRMS and PBA. At first I thought God had me crying for all the times I didn't cry. Lol! Have been taking Nudexta since August 2014. Works great. No side affects for me. Can't stop taking or crying will come back. I drink a lot of water and eat Mediterranean style. In August of 2014, I found the Lou Ruvo Brain Center through Cleveland Clinic here in Las Vegas NV. You are Never Alone ; don't ever forget. MS is only for the strong. Smile Blessings to you and all.
I am not sure y they wont tell u what type of MS u have. Seems odd to me.
I am not taking any of the MS meds either cuz i didnt like the side effects but i take the meds that help with my symptoms. The side effects they warn u about are usually broad spectrum cuz it covers their butts. If anyone tried to take away my Prozac they wud have a fight on their hands for sure! My sister took it and it made her suicidal but ya never know how it can effect u unless u try.
And as everyone here has said - i will repeat - u are never alone here. MS warriors stick together. 🎗💪🏻💪🏻
Yea she thew some number one n numder 2 thing didnt make sence.then she said mabe no new lrsions mabe secondary im fn not beliving tht..shit..imma roll the dice and really i dont think they get the good n bad days really ...but no way not doing tht poison yea i got a nice.coctail of meds and like i said my internest said dont try anymote ms meds i trust him..i think well shit fighting this beast instead of trying to work with it..just a way diff live style im used to workin my but off doing hair ..going out..energizer..personally i think i need to just realize it took my whole life change i need to find a way to accept this life style..i think once i accept it and slow my roll and know that i guess its GODS plan..then maybe i will feel better idk its just a thought and if family n some friends tht dumped me when diagnosed just accept that once i can go to some different functions n stuff maybe everythimg will fall in place.
Ya i have been having a hard time accepting this as Gods plan but my minister has really helped me with that. The one thing he said that stuck with me is “its better to go to heaven missing an eye than be in hell with both eyes”. We may be broken but better broken and in heaven than whole and in hell
Thts really kewl .love it
Well i researched tht nuexta.idk some rare side effects i found n i usually get m i think im gonna not take it..just a feeling i have about it.
Go with ur gut instinct
