I fear I’ve lost my mind

[Juleigh21]

I have never had such problems with concentrating or remembering things as I have had this past month. Not sure what’s going on. It’s scary. I’m dizzy too! Haven’t had that problem in a long time. My brain feels sooooo foggy. I’ve had memory issues before with MS but never this bad 😢

[WAshingtongirl]

I’m sorry, Juleigh21 . This can be concerning, especially if it seems to continue beyond a day or two. Sjogren’s and MS together can be contributing to it (my neuro says it is compounded/cumulative with both diseases). How about stress? Have you been under extra stress this month? Getting enough sleep and rest? And I assume you’ve had your thyroid tested? If that’s off, it also can contribute to your symptoms. I hope you feel better-more confident in yourself. But call your neuro or rheumatologist if it continues. 💕

[Juleigh21 in reply to WAshingtongirl]

Thanks WAshingtongirl ! The dizziness started 3 hours after my last tysabri infusion (March 2nd). That was the worse dizzy spell I ever had. It’s not nearly that bad anymore. I was hoping it would be gone by now. I get blood work done the end of the month and see the neurologist April 10th. Hubby is going with me. He’s really worried about my memory. I just don’t have the energy to deal with all this at the moment. I am sleeping pretty well at night though.

[WAshingtongirl in reply to Juleigh21]

If your hubby notices the changes, they must be drastic. Hang in there til you see your neuro. I hope he has an answer for you—and that he’s able to help you recover from whatever is going on.

[SueAB]

Juleigh21, I don't know how old you are, but my neurologist told me that I should not blame everything on MS - old age was creeping in, too!

[Juleigh21]

I turned 55 two weeks ago.

[ssdw1958]

You must have a lot going on in your life don’t worry about it it happens to a lot of people even the ones that don’t have MS. I thought it was the MS and my sister said to me Sandra it not only you. You can’t blame everything on MS I said why not she said to me you are over 50 years old. You can’t blame it on the MS all the time, it’s the old age age thing.

Oh well I tried.

[jimeka in reply to ssdw1958]

How is your Uncle doing!

[ssdw1958 in reply to jimeka]

Thank you for asking he ended up in the hospital he had to have a transfusion and where he was couldn’t help him with the pain he was having in his legs. He is very frustrated with everything he is going through, we all can relate to that. The weather we are having here is so very cold and we have about 2 ft of snow ❄️ on the ground. We are all hoping the next storm takes a right into the Atlantic if not oh oh. My Uncle thought he was going to be transported to the physical therapy home during the blizzard and I told him they shouldn’t be doing that it’s to dangerous. Need less to say he is very confused with what he is going through. It makes me think what I may be going through and in the years to come which can make anyone nervous.

[jimeka]

I agree with WAshingtongirl , if your hubby is noticing than there is definitely something amiss. I would talk with your doctor, at least then it’s in your notes. Keep us posted, blessings Jimeka 🦋

[greaterexp]

I’m sorry for what you’re going through. It’s scary to feel so out of control with the dizziness and memory issues. I hope you get in touch with your doctor soon.

[jennie62]

You aren't alone, I have the same issues; I'm 55 too and have the same problem.

[itasara]

I just received a book which I recommend. My husband was visiting his cousin out west and the author of this book is a friend of his cousin, so my husband got to meet him. The author's name is Randall T. Shapiro, MD. The title is "Managing the Symptoms of Multiple Sclerosis." I am almost done reading it and it is very helpful. There is a chapter on every possible MS symptoms including "Cognitive Difficulties." I hear it is available as an online book. I have some cognitive especially short term memory issues. As some here have mentioned it is hard to separate MS issues from aging issues. I turned 70 three days ago. I have problems memorizing anything and being a singer I would like to memorize lyrics but that has proven to be very difficult. He does says, "The problem is very different from that sen in Alzheimer's disease...In MS the loss can be very spotty." He gives some suggestions (many of which I do, keeping lists, using my phone for reminders, etc.) and most of all he says taking an MS medication is top of the list. He does explain why cognition is a problem in MS in 50-55% of MS patients and 10%-15% have "significant problems." Have you mentioned this new change to your neurologist, Juleigh? This sounds like something he/she should know about.

[mrsmike9]

I made an appt. with my neuro for this exact thing. It is frightening!