My MSAA Community

Looking for support

I am new to the community. I'm 53 y/o, a mother and have had RRMS for 27 years. I remember so clearly, that day at the doctors office. My son was 2 then. My response, when I was told my diagnosis was: "You must have the wrong chart." To this day I still have some degree of denial. I have learned to deal with my grocery list of of symptoms I may wake up with on any given day, sometimes some, sometimes none. One thing I have learned, take it one day at a time.

9 Replies
oldestnewest

Welcome Cricket1029

3 likes
Reply

You'll find help if you want it here, or just some good spirits

3 likes
Reply

Welcome Cricket1029. Sending lots of love and support from your new extended family. We understand. My Mom had MS too, so I was the child also...

Wishing you a peaceful evening filled with unexpected delights.

(Or, you can just go grab a chocolate, a bath, some bubbles, and a few flowers to spread around the house- non toxic of course- if you have furry children too. ;)

I don't have a fireplace, so I play a virtual fireplace on the computer. Every day! ;) Just a Fireplace video off of YT. It helps lift my spirits a bit, sooth and 'warm' me, and, well, it somewhat provides the ambiance of what a real fire would do. Crackle and all!

My kitty loves it.

;)))

6 likes
Reply

Hi Cricket1029! I’ve was diagnosed with RRMS 18 years ago and told I had likely had it for 10+ years at that time. You will find people with all forms and experiences with MS on this forum.

4 likes
Reply

I have had MS for 26 years now, my daughter was just 9. Not a fun journey, but thankful for the things I can STILL do. I started Ocrevus last fall, so far so good!

5 likes
Reply

Cricket1029 welcome, and I love your attitude. Stay positive. Blessings Jimeka 🌈 🦋

3 likes
Reply

Cricket1029 You are so right about 'taking it one day at a time' because one day is never the same as the other. One say is good, the next better, then the next isn't so good. Just never know what we are in for when we wake up until we do. Roll of the dice. After getting the diagnosis, I was in shock, then acceptance, then denial, then acceptance again. Just a big roller coaster of emotions sometimes. I have had RRMS for a little over 11 years now.

Look forward to chatting more,

Jessie

2 likes
Reply

Welcome! You will find this group to be the most welcoming, non-judgemental group you could ever hope to find. Blessings to you for this new year!

2 likes
Reply

Cricket1029 Welcome to the group! Please feel free to ask questions, read along and please if you have a suggestion or helpful information, share it. I was just diagnosed last year at age 68! I also think I have a small degree of denial. I was so healthy, happy and the last thing on my mind was MS. You'll find many on here with similar situations and we all share MS. Kinda makes us all related! Lots of great information on the MSAA site. Just ask if you can't find what you need. We will try to help you! Let's all try to make it a very Happy New Year!

1 like
Reply

You may also like...