Need support : Hello everyone!! I am... - My MSAA Community

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Need support

doveflyfree profile image
12 Replies

Hello everyone!! I am struggling again I'm not sure why my ms treatment is working but some days are making me emotional. I really need to stay in communication with you all!! You're my life line!! You all understand me. I'm sorry for not staying in touch. Sometimes I feel like I am making it through this life with Ms and other times I feel like I have failed my family. I used to be strong and the one everyone turned to for support and now I am barely staying afloat. I need to find joy in my life again and It's really hard.

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doveflyfree profile image
doveflyfree
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12 Replies
greaterexp profile image
greaterexp

You're in such good company here. O think everyone of us with MS, with few exceptions, feels that roller coaster with its ups and downs, all which can change suddenly. My emotional changes don't always correlate with my physical symptoms. When it's a less than perfect day, physically or emotionally, I try to remind myself that tomorrow or the next day will probably be better, and it nearly always is. When it's an off day, I try to do things I find relaxing or encouraging. For me, that's quilting or watching videos about quilting, watching old, upbeat movies, or talking with my funny sister. A little pampering can do wonders, like a fresh new hairstyle, chocolate, or some other favorite food. Getting out of the house, even to take the dog to the park nearby lifts my mood. Doing something for someone else keeps my mind off of myself.

Coming here to vent is marvelous, free therapy for me, too. I'm so glad we're here for one another, for you all help me so much. I hope you feel more encouraged very soon.

doveflyfree profile image
doveflyfree in reply togreaterexp

Thank you very deeply!! I appreciate all your support and responses!! I feel the love!! It's nice knowing I am not alone in this crazy MS life. For me a little support goes a long way!!! Love is free and caring is free but they are priceless and necessary to live with MS!! Thank you all very much!!!!

Kenu profile image
Kenu

Agree with greaterexp that we all have our ups and downs. It can make it really hard when other things happen and we have to deal with it also. Sometimes just when you think it’s mellowing out and stable it hits us again🤬. I was having some minor ups and downs but really doing ok and then my wife of 42 years doesn’t wake up from her sleep 😴😣😢. It’s hard and we don’t know why but we need to stay positive and move forward. Tomorrow is a new day 👍. Take care 🙏😉 Ken 🐾🐾

rjoneslaw profile image
rjoneslaw

I agree with greaterexp and kenu

Birdymom3 profile image
Birdymom3

You are strong we all need people that understand our situation because it is constantly changing, I am sure that your family and friends are doing the best that they can because they love you and so do all of us.🙏for the you to receive the support that you have shared with all of us ❤️

Jazzihorsecat profile image
Jazzihorsecat

Yes, the emotional ups & downs of the M.onS.ter! We all know it very well dear friend, & This Family is my life-line too, as I don't have 1 friend out here locally! It gets really lonley! No1 understands it when ya can't speak well, or ya forget their name! My new song, "Oh Well!" "Please don't ask me what I think of you, I might not give the answer that you want me to!" So, just hang in there! Agree w/ Greater & every1 else!👍😀Stay Strong!💪 We all L💗VE YA! 🌹💜Jazzy

goatgal profile image
goatgal

The reply from greaterexp is full of wisdom based experience and practical suggestions. Like so many of us, I too find my moods unpredictable. Activity works for to pull me out of these black holes even when I must force myself to do even the simplest task. Usually by the time I have made the coffee, or gone out to let the hens roam, the mood has lifted. We are indeed fortunate to have this forum, where responsive friends gather to support us. I'm very glad to see your post again even for a less than joyful reason dear doveflyfree.

leking1 profile image
leking1

My love and prayers are with you. We have all been there, and will be there again. It is an up and down journey, both physically and emotionally. This group is my lifeline, too. I am alone, and it is too easy to get caught up in my own issues. I have my fur babies, who help a lot, my garden, when it isn't so hot I can't go out the door, and I volunteer at the Humane Society when I can. Blessings to you! May the Angels watch over you.

Kompany profile image
Kompany

It’s nice to have you with us! We all struggle & are here for you. I myself may not be a daily poster but do read daily for the connection. Knowing that everyone here understands & doesn’t judge is comforting. You must know that that when you read the loving & caring posts 💐

Nice to have you join us again 💕 You’ll be afloat in no time, even if it means on your back looking the puffy clouds making out doggy or kitty figures floating by to relax 😁

sashaming1 profile image
sashaming1

Depression is common with MS patients and there are many treatments available: eg. I take Citlopram for minor depression. Talk to your Dr.

bxrmom profile image
bxrmom in reply tosashaming1

sashaming1 is correct about depression being common in MS patients. I take 30mg of Cymbalta nightly for mine. There are many choices of out there nowadays. I have been on an antidepressant for many years and this is my latest. It really does help me with my emotions. Talk to your dr about what might be right for you. Keep us updated.

Jessie

mrsmike9 profile image
mrsmike9

I get it. I just started with a new therapist yesterday. I really like her and I think she will be able to help me. Perhaps that is something that would help you?

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